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Opdivo

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    • January 22, 2019 at 5:26 am
    Red Dragon
    Participant

      My Mom was diagnosed. She found the tumor on her leg, it was found in nearby lymph node, but none was found in the neighboring nodes. So tumor removed lymph nodes tested, she started taking Opdivo, for like 11 months the side effects got so bad her oncologist said to stop.

       

      The side effects are rough, lymph node removal lead to lymph edema in her leg, constantly nauseous, and too week to enjoy the grandkids. So she took prednisone to alleviate the side effects, but has a blown pituitary, low grade guillian-barre.

      how long does this last? 

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        • January 22, 2019 at 7:28 am
        MarkR
        Participant

          I can only answer on the blow pituitary as mine failed as well and i’ve Been told that it’s for life.  Personally I’m not too worried – at the moment I take 5mg Pred daily as compensation and I carry on living.  I’m afraid I haven’t experienced the others so can’t help you there

          all the best

          Mark

            • January 22, 2019 at 3:33 pm
            neilarama2017
            Participant

              Has she tried a lymphedima pump for the swelling.  Most insurances will cover one, I use mine for my arm a few times a week and it definately helps, Tough with the leg as its mostly in the down position.  But elevating it when not standing along with ice could help.  Best of luck..

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