One Round Of Temodar And Feeling Good

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One Round Of Temodar And Feeling Good

This topic has 5 replies, 5 voices, and was last updated 5 years ago by BrianP.

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- March 26, 2019 at 4:07 pm
- Quote
mrsaxde
Participant
I did my first cycle of Temodar a couple of weeks ago — 5 days on. Thanks to the Zofran and the dosing schedule the pharmacist gave me, I had no issues with nausea or vomiting. My only side effect besides a dip in my appetite was three days, starting on my last day of taking the capsules, of feeling so dog tired that I could barely get out of bed. But then I started to rebound and for the last 2 weeks I have felt better than I have in months.

I see Dr. Sharfman on Monday, and I can't wait to ask him whether the way I'm feeling is from just once cycle of the medication or whether it's just a coincidence. Either way, I'll take it. Now I'm getting ready to be beaten down by another round of radiation. Hopefully that plus the Temodar will clear up my brain mets and allow me to get into another trial in the next few months. But in the short term things are going well!

-Bill

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Replies

- - March 26, 2019 at 8:27 pm
  - Quote
  gopher38
  Participant
  Well, "all my tumors magically melted away" would have been better, but this sounds better than a shart stick in the eye. Glad you're feeling better and things appear to be going in the right direction.
  - March 26, 2019 at 9:51 pm
    
    Quote
    mrsaxde
    Participant
    
    Thanks! I guess I should have also said that several skin spots that had appeared over the past couple of months appear to be stable and nothing new is growing on my skin. I know Temodar is a short term fix, but at this point I'll go with anything that improves my quality of life.
    
    -Bill
- - March 27, 2019 at 1:39 pm
  - Quote
  Bubbles
  Participant
  Hey Bill! Glad you are feeling better…whatever the reason! Hang in there. You are one tough cookie! Celeste
- - March 28, 2019 at 1:09 am
  - Quote
  jbronicki
  Participant
  So glad you are feeling better Bill. Hoping for radiation to be tolerable and quickly zap those mets so you can get back into another trial. Just glad you have some relief in terms of QOL right now. all appendages crossed for quick success!
- - March 28, 2019 at 2:19 am
  - Quote
  BrianP
  Participant
  That sounds great Bill. Hope you can keep the momentum going right into a new trial.

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