Hi guys. I had my first dose of Yervoy and Temodar three weeks ago (after completing 6 weeks of IL-2 and the discovery of brain mets). 6 days after the infusion I developed some pretty miserable diarrhea. At the same time, I could feel my subcutaneous tumors shrinking. I did end up going on steroids, from which we are in the process of tapering off of.
Hi guys. I had my first dose of Yervoy and Temodar three weeks ago (after completing 6 weeks of IL-2 and the discovery of brain mets). 6 days after the infusion I developed some pretty miserable diarrhea. At the same time, I could feel my subcutaneous tumors shrinking. I did end up going on steroids, from which we are in the process of tapering off of.
I went to the Dr. this week so excited to show him the tumors that were so ugly (visible and black) are now nothing more than tiny tight seeds that you had to dig deep to find. The biggest one in my breast you can't find at all. I do have a few small ones hanging around, but the biggest news is, I haven't felt anything new in the last 3 weeks (that has not been the pattern).
I assumed this was the Temodar at work, as I understood IPI takes a while to kick in. When I mentioned this he said the Temodar isn't that potent of a chemotherapy, that this is likely a reaction from the IPI. AWESOME!!! Now I just need to be able to wean from the steroids and we try again in a few weeks, and hope that what is happening on the surface is happening all over, brain included.
I have scans again in September. There was a point I didn't know if I would ever see a September. What a roller coaster!
Thanks for all your courageous examples.
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