Not NED yet, but…
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Not NED yet, but…

› Forums › General Melanoma Community › Not NED yet, but…

  • Post
    • August 22, 2012 at 12:43 am
    audgator
    Participant

    …my onc was VERY pleased. I had a CT scan & MRI today a week after the end of the 2nd phase of my anti-PD1 trial at Moffitt. The MRI showed nothing in my brain just as before. We didn't get the radiologist's report before I left but my oncologist showed me the pictures on her computer. Some formerly big spots in my lungs & liver are now little spots and some formerly little spots were not visible.  So, yeah, I was very pleased too. Now on to the maintenance phase, infusion & scans every 3 months.    Dan

    …my onc was VERY pleased. I had a CT scan & MRI today a week after the end of the 2nd phase of my anti-PD1 trial at Moffitt. The MRI showed nothing in my brain just as before. We didn't get the radiologist's report before I left but my oncologist showed me the pictures on her computer. Some formerly big spots in my lungs & liver are now little spots and some formerly little spots were not visible.  So, yeah, I was very pleased too. Now on to the maintenance phase, infusion & scans every 3 months.    Dan

Viewing 20 reply threads
  • Replies
      • August 22, 2012 at 1:50 am
      Charlie S
      Participant

      Close enough for jazz and a plenty good reason to dance.

      Charlie S

      • August 22, 2012 at 1:50 am
      Charlie S
      Participant

      Close enough for jazz and a plenty good reason to dance.

      Charlie S

      • August 22, 2012 at 1:50 am
      Charlie S
      Participant

      Close enough for jazz and a plenty good reason to dance.

      Charlie S

      • August 22, 2012 at 5:15 am
      JerryfromFauq
      Participant

      Sounds great to me ! 

      • August 22, 2012 at 5:15 am
      JerryfromFauq
      Participant

      Sounds great to me ! 

      • August 22, 2012 at 5:15 am
      JerryfromFauq
      Participant

      Sounds great to me ! 

      • August 22, 2012 at 2:13 pm
      triciad
      Participant

      Many blessings for continued success!

      Tricia

      • August 22, 2012 at 2:13 pm
      triciad
      Participant

      Many blessings for continued success!

      Tricia

      • August 22, 2012 at 2:13 pm
      triciad
      Participant

      Many blessings for continued success!

      Tricia

      • August 22, 2012 at 5:48 pm
      Linny
      Participant

      Fantastic news Dan!! Congratulations!!!

      • August 22, 2012 at 5:48 pm
      Linny
      Participant

      Fantastic news Dan!! Congratulations!!!

        • August 22, 2012 at 6:45 pm
        Snickers60
        Participant

        WAY TO GO……………HOPE it keeps getting better and better !   :-)))

        • August 22, 2012 at 6:45 pm
        Snickers60
        Participant

        WAY TO GO……………HOPE it keeps getting better and better !   :-)))

        • August 22, 2012 at 6:45 pm
        Snickers60
        Participant

        WAY TO GO……………HOPE it keeps getting better and better !   :-)))

      • August 22, 2012 at 5:48 pm
      Linny
      Participant

      Fantastic news Dan!! Congratulations!!!

      • August 22, 2012 at 11:06 pm
      s Mom
      Participant

      YAY!!  That is GREAT news!

      Next update= NED!!!!!!!

      Bridgette (Jeff's Mom)

       

      • August 22, 2012 at 11:06 pm
      s Mom
      Participant

      YAY!!  That is GREAT news!

      Next update= NED!!!!!!!

      Bridgette (Jeff's Mom)

       

      • August 22, 2012 at 11:06 pm
      s Mom
      Participant

      YAY!!  That is GREAT news!

      Next update= NED!!!!!!!

      Bridgette (Jeff's Mom)

       

      • August 23, 2012 at 7:31 pm
      TSchulz
      Participant

      Great news, congratulations!  Thanks for posting.  NED is right around the corner….

      Best, Troy

      • August 23, 2012 at 7:31 pm
      TSchulz
      Participant

      Great news, congratulations!  Thanks for posting.  NED is right around the corner….

      Best, Troy

      • August 23, 2012 at 7:31 pm
      TSchulz
      Participant

      Great news, congratulations!  Thanks for posting.  NED is right around the corner….

      Best, Troy

      • September 2, 2012 at 1:18 am
      LynnLuc
      Participant

      Well Dan,

      How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

      • September 2, 2012 at 1:18 am
      LynnLuc
      Participant

      Well Dan,

      How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

      • September 2, 2012 at 1:18 am
      LynnLuc
      Participant

      Well Dan,

      How do you like Anti PD-1??? How do you like Moffitt? I hadn't rec'd an e-mail for a long time, so I thought  I would check up on you!!   Wednesday I go for bloodwork, scans, checkup with Dr Weber and if I am NED, my booster of Anti PD-1. This wek will be  week 101 of the trial for me. I will have two more boosters ( 3 months apart) and I will have completed the trial. I have now been NED 2 years and 5 months!  Lynn

Viewing 20 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.