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Nivo treament #10 and update
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Nivo treament #10 and update

› Forums › General Melanoma Community › Nivo treament #10 and update

  • Post
    • September 23, 2018 at 10:45 pm
    iskitwo
    Participant

      I have not posted any updates in a while so here it is… I am official 10 treatments in (treatments every two weeks) So far the treatment side effects have been pretty mild. I have lost the thyroid which was no surprise since my doctor had warned me that is was a possibility. The fatigue has been overwhelming at times but I have been working full time and still full time momming to a 6 & 9 year old. So for those that have asked if it is possible to keep working and keep doing the thing you love to do the answer is a big YES!! Some days you may need that extra nap or bed at 7pm but you can do it!! I have now had my second set of scans since starting Nivo and last scans showed NO cancer!! I have really had to take a deep breath and process that….I guess because I know how tricky this cancer can be. But today I am going to enjoy every moment….the best lesson I have learned in this journey!! I still have 8 months of treatment ahead of me but so thankful for treatment options. I lost my grandfather to melanoma 24 years ago and I know how lucky we are now to have all these treatment options. 

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        • September 23, 2018 at 10:50 pm
        iskitwo
        Participant

          Sorry didn't mean to post anonymous!!

          Missy

            • September 24, 2018 at 12:48 pm
            stevek1959x
            Participant

              I also just completed #10 (two weeks).  My first scan revealed a "cloudiness" where i had 35 lymph nodes removed in my left axilla.  The SUV was 3.7 and they could not rule out cancer but also suggested that it could be from the surgery.  They will rescan in November and use the last scan as a base.  My thyroid is on the brink but the Free T4 has been adequate so no medication – yet.  I haven't experienced that much fatigue but I have had a continuous rash – lichenoid drug eruption on arms chest and back of neck.  I'm on a sterioid cream and we just started 10mg of predisone.  So far no difference in the rash.  This lichenoid rash  also caused the skin to lose its pigmentation much like vitiligo.  If you read my bio, you will notice that this crap came back after 12 years and my primary had a depth of .09.  I plan on staying with the 2 week program since this seems manageable.  Here is to a quick uneventful 8 months.

            • September 24, 2018 at 4:00 am
            MelanomaMike
            Participant
              Hi Missy! aka Anonymouse haha..boy, if one of us wanted to tear someone a new anal opening, anonymous is here for us! Not that we would, were a respectful bunch!..
              Yep, good ol’ Thyroid gland, mine has either left my throat & moved to Minnesota or quit working cuz i take Livothyroxin for it..as you know, pro’s & con’s of Therapy, “Friendly Fire” as its called on the battlefield, good organs get fired on accidently, some just get injured, some get on a stretcher…you Rock Mamma Missy! Keep it up!.. 😉
              • September 25, 2018 at 2:31 am
              Ridingaroundwith27Jennifers
              Participant

                Such great news!  Great job keeping up a full time work and mom schedule.  I'm also a full time working mom and melanoma patient.  It's tough but it's possible.  Very happy for you!

                Good wishes to you,

                Jennifer

                • September 26, 2018 at 4:52 pm
                marta010
                Participant

                  Hi Missy- in addition to checking your thyroid function, are your other hormone/adrenal levels being monitored?  My husband also had low cortisol and low testosterone (obviously not an issue for you) as a result of treatment. Strongly encourage consulting with an endocrinologist familiar with immunotherapy related side effects. Take care. 

                  Ann

                    • September 27, 2018 at 4:38 pm
                    iskitwo
                    Participant

                      I will have to check with onc and see what all they are checking for..Thanks!

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