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Nivo question
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Nivo question

› Forums › General Melanoma Community › Nivo question

  • Post
    • August 14, 2018 at 2:33 pm
    Rncab218
    Participant

      Hi,

      posted a month ago when I was diagnosed with a local recurrence of melanome 9 years after initial diagnosis.  Had unknown primary, two large lymph nodes removed.  Did leukine for ten months, no further treatment.  Now have had local recurrence, left arm and still cannot decide if I should do Nivo, tested BRAF negative.  Spoke with three oncologists at two major center in NY.  One leans toward watch and wait with scans every six months, one recommends nivo for one year, the other one gave me information but not leaning either way, its my decision.  So, I ask, any of you have done this treatment?  How tolerable is it?  Any of the major possible side effects occur?  Have you remained disease free?  Thank you so much, I need to make this decision soon as its already been two months sicne my recurrence.

       

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