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Nivo for stage 3
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Nivo for stage 3

› Forums › General Melanoma Community › Nivo for stage 3

  • Post
    • June 8, 2016 at 5:51 pm
    vickiaa0529
    Participant

      Hi

      Just wondering if anyone has heard if Nivo was mentioned at the ASCO conference for treatment for Stage3. My oncologist is pushing IPI and I would like to hold out for Nivo

      Thanks

      Vicki

       

       

    Viewing 5 reply threads
    • Replies
        • June 8, 2016 at 7:04 pm
        jennunicorn
        Participant

          I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

          Hope you're doing well 🙂

          • June 8, 2016 at 7:04 pm
          jennunicorn
          Participant

            I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

            Hope you're doing well 🙂

              • June 8, 2016 at 11:15 pm
              vickiaa0529
              Participant

                Thanks Jen

                Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

                Wish me Luck

                 

                • June 8, 2016 at 11:34 pm
                jennunicorn
                Participant

                  Best of luck, hope you have a smooth ride with Ipi!

                  • June 8, 2016 at 11:34 pm
                  jennunicorn
                  Participant

                    Best of luck, hope you have a smooth ride with Ipi!

                    • June 8, 2016 at 11:34 pm
                    jennunicorn
                    Participant

                      Best of luck, hope you have a smooth ride with Ipi!

                      • June 8, 2016 at 11:15 pm
                      vickiaa0529
                      Participant

                        Thanks Jen

                        Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

                        Wish me Luck

                         

                        • June 8, 2016 at 11:15 pm
                        vickiaa0529
                        Participant

                          Thanks Jen

                          Hope you are doing well. No I don't want to wait too long my surgery was April 4th, but I had to go back in for Cellutitius. It looks like Ipi it is since I haven't found anything about Nivo either. My CT and MRI are on the 15th so I should start sometime shortly after that.

                          Wish me Luck

                           

                          • June 16, 2016 at 7:55 pm
                          jvictoria
                          Participant

                            Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                            Good luck!

                            • June 16, 2016 at 7:55 pm
                            jvictoria
                            Participant

                              Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                              Good luck!

                              • June 17, 2016 at 12:34 am
                              vickiaa0529
                              Participant

                                Thanks right now I am not eligilible for Nivo for 3b

                                 

                                • June 17, 2016 at 12:34 am
                                vickiaa0529
                                Participant

                                  Thanks right now I am not eligilible for Nivo for 3b

                                   

                                  • June 17, 2016 at 12:34 am
                                  vickiaa0529
                                  Participant

                                    Thanks right now I am not eligilible for Nivo for 3b

                                     

                                    • June 16, 2016 at 7:55 pm
                                    jvictoria
                                    Participant

                                      Hi Jenn… I'm on Nivo for Satge 3B, I had no side effects until halfway through month 7 of the clinical trial. Then they all hit like the perfect storm. My 2cents: If I had not had the option of the trial, I would has gone down the ipi route without any hesitation. BTW-when I joined the trial, ipi was not FDA approved for stage 3.

                                      Good luck!

                                    • June 8, 2016 at 7:04 pm
                                    jennunicorn
                                    Participant

                                      I didn't see anything mentioned about nivo coming out as approved for stage 3 yet, not sure when that will happen. Would be nice if it happened soon, but make sure you don't wait too long, there is a window of time between surgery and start of treatment. I believe my onc said 12 weeks when I asked how long I could wait to start Ipi. 

                                      Hope you're doing well 🙂

                                      • June 9, 2016 at 5:37 pm
                                      geriakt
                                      Participant

                                        I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                        Tom 

                                        • June 9, 2016 at 5:37 pm
                                        geriakt
                                        Participant

                                          I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                          Tom 

                                            • June 9, 2016 at 6:44 pm
                                            vickiaa0529
                                            Participant

                                              Hi

                                              Thanks… I am just worried about the side effects from ipi

                                              Are you in the US? How did you get a Nivo trial?

                                               

                                               

                                              • June 10, 2016 at 6:46 pm
                                              geriakt
                                              Participant

                                                I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                Tom

                                                • June 10, 2016 at 6:46 pm
                                                geriakt
                                                Participant

                                                  I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                  Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                  Tom

                                                  • June 11, 2016 at 5:06 pm
                                                  vickiaa0529
                                                  Participant

                                                    Thanks… I would prefer the lower dose, I didn't know it was an option

                                                    I will find out on the 15th.

                                                     

                                                    • June 11, 2016 at 5:06 pm
                                                    vickiaa0529
                                                    Participant

                                                      Thanks… I would prefer the lower dose, I didn't know it was an option

                                                      I will find out on the 15th.

                                                       

                                                      • June 11, 2016 at 5:06 pm
                                                      vickiaa0529
                                                      Participant

                                                        Thanks… I would prefer the lower dose, I didn't know it was an option

                                                        I will find out on the 15th.

                                                         

                                                        • June 11, 2016 at 8:02 pm
                                                        jennunicorn
                                                        Participant

                                                          Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                          🙂

                                                          • June 11, 2016 at 8:02 pm
                                                          jennunicorn
                                                          Participant

                                                            Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                            🙂

                                                            • June 11, 2016 at 8:02 pm
                                                            jennunicorn
                                                            Participant

                                                              Not all insurance will approve the lower dose since it was not part of the approval, the FDA approval is for 10mg/kg, so insurance tends to only want to stick with the rules on that. But, sometimes, the doctor can put up a little fight to get the lower dose. Just want you to know in case that doesn't come as an option for you. 

                                                              🙂

                                                              • June 10, 2016 at 6:46 pm
                                                              geriakt
                                                              Participant

                                                                I am in Orlando FL.  My trial is CA209-238 (NCT02388906).  I interviewed for the trial after my lymph node dissection. 

                                                                Also I am told that IPI is approved for stage III at 10mg/kg. Your doctor has the option to offer a lower dose of 3mg/kg.

                                                                Tom

                                                                • June 9, 2016 at 6:44 pm
                                                                vickiaa0529
                                                                Participant

                                                                  Hi

                                                                  Thanks… I am just worried about the side effects from ipi

                                                                  Are you in the US? How did you get a Nivo trial?

                                                                   

                                                                   

                                                                  • June 9, 2016 at 6:44 pm
                                                                  vickiaa0529
                                                                  Participant

                                                                    Hi

                                                                    Thanks… I am just worried about the side effects from ipi

                                                                    Are you in the US? How did you get a Nivo trial?

                                                                     

                                                                     

                                                                  • June 9, 2016 at 5:37 pm
                                                                  geriakt
                                                                  Participant

                                                                    I am on NIVO at stage IIIB but to get it you have to be on a trial. It is not approved for stage III.  My trial is to show the benefits of this treatment at stage III so it will take time for results. If you have the option for Yervoy at stage III I would take it. You are only looking at 4 infusions every 3 weeks and then 3 infusions every 3 months.

                                                                    Tom 

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