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Next visit to NIH coming up
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Next visit to NIH coming up

› Forums › General Melanoma Community › Next visit to NIH coming up

  • Post
    • October 28, 2011 at 11:40 pm
    ValinMtl
    Participant

      I go back to NIH next Tuesday for another visit after the TIL treatment with TBI which was done in mid-August.  My first visit held wonderful results for me at the end of September but I am dreading this one.  The first time around I had a tremendous amount of improvement…total volume (length x wides for each lesion tallied together = 62% .

      I go back to NIH next Tuesday for another visit after the TIL treatment with TBI which was done in mid-August.  My first visit held wonderful results for me at the end of September but I am dreading this one.  The first time around I had a tremendous amount of improvement…total volume (length x wides for each lesion tallied together = 62% .

      I still have the weight loss from TBI which is not surprising…currrently lost 30% and still not able to hold much down but that is not the worry.  I see an significant increase in visual growth…many many under the skin and grey plus several 'black' spots.  I'm very very worried.  Has anybody heard of increase like this …if anybody has thoughts on this I would be gratefully appreciative.  I have tried ipi (partial) now TIL…doesn't look like there is too much else out there.  Val

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    • Replies
        • October 29, 2011 at 2:15 pm
        King
        Participant

          Val,

          Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

          Keep us posted when you can.

          Stay Strong

          King

          Stage IV 7/05  Liver mets

            • October 29, 2011 at 11:51 pm
            NYKaren
            Participant

              Val, you're in my thoughts as well.

              Karen

              • October 29, 2011 at 11:51 pm
              NYKaren
              Participant

                Val, you're in my thoughts as well.

                Karen

                • October 29, 2011 at 11:51 pm
                NYKaren
                Participant

                  Val, you're in my thoughts as well.

                  Karen

                • October 29, 2011 at 2:15 pm
                King
                Participant

                  Val,

                  Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

                  Keep us posted when you can.

                  Stay Strong

                  King

                  Stage IV 7/05  Liver mets

                  • October 29, 2011 at 2:15 pm
                  King
                  Participant

                    Val,

                    Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

                    Keep us posted when you can.

                    Stay Strong

                    King

                    Stage IV 7/05  Liver mets

                    • October 30, 2011 at 2:31 am
                    momof2kids
                    Participant

                      Val, I hope everything goes good for you at your checkup.

                      • October 30, 2011 at 2:31 am
                      momof2kids
                      Participant

                        Val, I hope everything goes good for you at your checkup.

                        • October 30, 2011 at 2:31 am
                        momof2kids
                        Participant

                          Val, I hope everything goes good for you at your checkup.

                          • October 31, 2011 at 10:26 am
                          MariaH
                          Participant

                            Hope everything goes well for you on Tuesday.  We'll be thinking of you!

                            Maria

                            • October 31, 2011 at 10:26 am
                            MariaH
                            Participant

                              Hope everything goes well for you on Tuesday.  We'll be thinking of you!

                              Maria

                              • October 31, 2011 at 10:26 am
                              MariaH
                              Participant

                                Hope everything goes well for you on Tuesday.  We'll be thinking of you!

                                Maria

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