Next visit to NIH coming up
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Next visit to NIH coming up

› Forums › General Melanoma Community › Next visit to NIH coming up

  • Post
    • October 28, 2011 at 11:40 pm
    ValinMtl
    Participant

    I go back to NIH next Tuesday for another visit after the TIL treatment with TBI which was done in mid-August.  My first visit held wonderful results for me at the end of September but I am dreading this one.  The first time around I had a tremendous amount of improvement…total volume (length x wides for each lesion tallied together = 62% .

    I go back to NIH next Tuesday for another visit after the TIL treatment with TBI which was done in mid-August.  My first visit held wonderful results for me at the end of September but I am dreading this one.  The first time around I had a tremendous amount of improvement…total volume (length x wides for each lesion tallied together = 62% .

    I still have the weight loss from TBI which is not surprising…currrently lost 30% and still not able to hold much down but that is not the worry.  I see an significant increase in visual growth…many many under the skin and grey plus several 'black' spots.  I'm very very worried.  Has anybody heard of increase like this …if anybody has thoughts on this I would be gratefully appreciative.  I have tried ipi (partial) now TIL…doesn't look like there is too much else out there.  Val

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  • Replies
      • October 29, 2011 at 2:15 pm
      King
      Participant

      Val,

      Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

      Keep us posted when you can.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

      • October 29, 2011 at 2:15 pm
      King
      Participant

      Val,

      Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

      Keep us posted when you can.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

      • October 29, 2011 at 2:15 pm
      King
      Participant

      Val,

      Hang onto hope.  You should get some answers on Tuesday.  I certainly understand your worry though.  You are in my thoughts and prayers.

      Keep us posted when you can.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

        • October 29, 2011 at 11:51 pm
        NYKaren
        Participant

        Val, you're in my thoughts as well.

        Karen

        • October 29, 2011 at 11:51 pm
        NYKaren
        Participant

        Val, you're in my thoughts as well.

        Karen

        • October 29, 2011 at 11:51 pm
        NYKaren
        Participant

        Val, you're in my thoughts as well.

        Karen

      • October 30, 2011 at 2:31 am
      momof2kids
      Participant

      Val, I hope everything goes good for you at your checkup.

      • October 30, 2011 at 2:31 am
      momof2kids
      Participant

      Val, I hope everything goes good for you at your checkup.

      • October 30, 2011 at 2:31 am
      momof2kids
      Participant

      Val, I hope everything goes good for you at your checkup.

      • October 31, 2011 at 10:26 am
      MariaH
      Participant

      Hope everything goes well for you on Tuesday.  We'll be thinking of you!

      Maria

      • October 31, 2011 at 10:26 am
      MariaH
      Participant

      Hope everything goes well for you on Tuesday.  We'll be thinking of you!

      Maria

      • October 31, 2011 at 10:26 am
      MariaH
      Participant

      Hope everything goes well for you on Tuesday.  We'll be thinking of you!

      Maria

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