› Forums › General Melanoma Community › Never Ever Give UP HOPE
- This topic has 39 replies, 4 voices, and was last updated 9 years, 6 months ago by
Squash.
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- October 8, 2014 at 8:41 am
Hi Everyone
I was once a regular on this board and I cannot tell you the amount of support I got here. I was here for about 8 years religiously and then when I became a Grandma I was and still am very busy… now four grandchildren and number 5 on the way…. all 6 and under. They are the love of my life
I apologize ot all of you I haven't been here. I know how hard I held on to the positive stories from other patients. My story is not any different from any of you. In fact I have probably had an easeir journey in many ways than most. The uniqueness is I am 13 yeas 9 months NED after lung and brain mets…NEVER EVER EVER GIVE UP HOPE.
I was dx n 1995 StageII from an ulcerated mole on my back.. Misdiagnosed originally— the derm told me I had an INFECTION…. I went back weeks later — mole was still blleeding.. He kept vascilating back and forth whould I or shodn't I do a SHAVE biopsy. MY comment was , if in doubt don't do it… Then again I was very naive at the time.. NOT ANY MORE… I got a call the following Monday.. saying You have Malignant Melanoma and it has spread. Here is the surgeons name. I wasnt it removed no later than Fri. and you will start chemo the follwiing week.. good nighr have a good evening. Sure youo _ _ =_ _ _ _ ! After compossig myself I decidd to go to Sloane Kettering,. Long story short.. Stage II. My oncologist, thankfullly took the wait and see approach, seeing him more frequently. the only treatment at the time was INF.. He was not conviced he liked the treatment esp. because of the side effects, No treatment just follow ups Sadly my oncologist went into the private sector shortly after I was dx iwith Lung Mets almost five years later. I flew to JWCI where lungs mets were confirmed . Both Sloane Kettering and JWCI wanted to remove my rt. lung. ( I had lessions in both lungs) OK if I do that what ifffffffffff the other lung developed more lessions. ?
I am not sure why but I decided against the surgery. I stared seeing Dr Raymond Chang, an alternative dr. trained at sloane Kettering.. I saw him for about six months and during tht time took herbs he had given me.
At his recommendation I started seeing Dr Abraham Chachoua at NYU Langone Medical Center whos is still my oncologis… He ordered complete body scans and when the results came back— still with the lung issue, he decided to do a brain scan. I tried to reassue him there was matter up there. Scan came back positive.. MRI confirmed BRAIN MET. I knew I was in trouble. I opeted for gamma Knife– the tumor Burst and Bled… GK no longer an option I had the tumor surgicaly removed the next morning
TREATMENT DECISON TIME GRRRR. I had alrady been so involved in the Melanoma community and knew my options. There was nothing other than IL 2 that would give me the best chance..
All of that beig said —Not sure it was FEAR or FAITH… I had accepted the inevitable and had my talk with God the night before surgery. I said God it its your will for me to come home, please make it quick. ( I had just been through a horrible divorce for four years, which the stress is wht i believe bought on my original dx and two recurrences ) I then said If it isyour will for me to remain on this planet, I will do all I can to help others on their journey. Not sure if I am still hee for that reason or God decided I would cause too much havoc so he decided to leave me here.. One thing I have never done my entiere life is asky why somehting happened to me. . i believe things happen as they are supposed to. All I have done in the difficult times is ask God to give me the strength to get through it.. He has NEVER LET ME DOWN.. I may not have gotten wht I wanted ut I alwasy got what I needed.
Before I go any further I want everyone to know.. I AM NOT ANTI CONVENTIONAL MEDICINE at all. I jsut decided to do alternative medicinee because I wanted QUALITY OF LIFE, NOT QUANTITY…..
I went on a pretty strict macrobiotic diet, ( my naturopath– also had me on a vitamin regiment. I also decided to do Iscador, more commonly known as Mistetoe therapy combined with two other herbs. I did thias for almst two years..Within a few monts thee weent' any mrre lung lessions and I have remained NED since then. In all these years I have never met anyone else who did Iscador until a few months ago. A young woman in Maryland combined hers with her INF tratments. She also is NED but suffers side effects from the INF. Just as a point of information.. ISCADOR was prescribed by an MD who practices anthroposphy and other alternative medicines combined with conventional.
The one thing I want to lave you with is this
TRUST !!!! YOU !!! will make the DECISION THATA IS RIGHT FOR YOU.. Never ever look back, alwasy look forward with HOPE AND OPTMISM, BELIEVE IN YOUR HIGHER POWER and TRUST. NEVER EVER EVER GIVE UP HOPE.
My thoughts and prayaers are with all of you.
Love and Light
Carole
- Replies
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- October 8, 2014 at 8:07 pm
Carole –
I am so glad to see you posting again and happy to see you are doing well. You were one of the many generous people that responded to my first panicked inquiries on this discussion board. Your responses along with a few others helped give me the courage to do what I WANTED to do which was focus on my quality of life and overall health FIRST before starting treatment. I am being monitored by a wonderful oncologist who gives me scans every 3-4 months and referred me to a Naturopathic Medical Doctor to help me in my goals of optimal health. So far, in the 9 months since the 5 spots in my lungs were discovered, there have been no new spots and only two spots have shown any growth (minimal). My next scans are in January. I plan to make some changes and see where I land in January. At any time, my oncologist stands at the ready with either Ipi, BRAF or PD-1 (whichever is available at the time – hopefully I can start with PD-1). As my oncologist explained his process to me: He would start with one treatment and stay with it as long as it appeared to be working, if it wasn't working or stopped working, he would move on to the next one, then the next one, etc. I asked him if I could try optimizing my health as my first treatment option. Given my low tumor burden, he thought a 3 month delay would not be problematic as most of his patients are far more advanced when he first sees them. Carole – even if my head explodes between now and January, I will not regret my choice. I have had the best Summer of my life. And it is quality that matters to me so much more than quantity. I somehow doubt that one second after dying a person thinks "gee, I wish I'd avoided this longer". I suspect the response might be more like "what the heck was I putting this off for?". Don't get me wrong, I want very much to live. I just don't think death is necessarily the worst thing ever (it better not be considering it is inevitable). At a very minimum, I won't have to do taxes anymore.
It is so important that we all make our own health decisions for ourselves and hold no one else accountable for the results. We live and die by our own choices. There is no one person that can tell us exactly what to do. We can learn so much from everyone's experiences and expertise. Which is why I value you and everyone on this community as well as my health professionals, both conventional and alternative. But the decision is mine. None of you are responsible for my decisions. Thank you so much for sharing your story.
Be well,
Maggie
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- October 9, 2014 at 6:13 pm
HI Maggie
I am glad I wasa able to help you do what YOU WANTED TO DO and I am thrilled your oncologist was on board with you That is exceptional. I am hearing more and more again from others who have taken the alternative route. What I have found for all these years is those who do alternative has jus tas good results as those on chemo and at times even better Yes, there are those who do not do as welll.I knew a few peple here who did alternative and did not do well and I felt it was because they did it on their own You either have to have a background in a field related or you beter is to see a Naturopath.
My particular treatments were prescrbed by an MD. I also had a macro biotic counselo who was right on track with me.
I have had many blessings from Melanoma and one of the biggest was this site, It has a world of knowledge, peopke who can help and who care about you as aperson Sending you bigmhugs,
Love and Light
Carole K——–IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY.
SEEE YOU IN CHAT MAGGIE
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- October 9, 2014 at 6:13 pm
HI Maggie
I am glad I wasa able to help you do what YOU WANTED TO DO and I am thrilled your oncologist was on board with you That is exceptional. I am hearing more and more again from others who have taken the alternative route. What I have found for all these years is those who do alternative has jus tas good results as those on chemo and at times even better Yes, there are those who do not do as welll.I knew a few peple here who did alternative and did not do well and I felt it was because they did it on their own You either have to have a background in a field related or you beter is to see a Naturopath.
My particular treatments were prescrbed by an MD. I also had a macro biotic counselo who was right on track with me.
I have had many blessings from Melanoma and one of the biggest was this site, It has a world of knowledge, peopke who can help and who care about you as aperson Sending you bigmhugs,
Love and Light
Carole K——–IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY.
SEEE YOU IN CHAT MAGGIE
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- October 9, 2014 at 6:13 pm
HI Maggie
I am glad I wasa able to help you do what YOU WANTED TO DO and I am thrilled your oncologist was on board with you That is exceptional. I am hearing more and more again from others who have taken the alternative route. What I have found for all these years is those who do alternative has jus tas good results as those on chemo and at times even better Yes, there are those who do not do as welll.I knew a few peple here who did alternative and did not do well and I felt it was because they did it on their own You either have to have a background in a field related or you beter is to see a Naturopath.
My particular treatments were prescrbed by an MD. I also had a macro biotic counselo who was right on track with me.
I have had many blessings from Melanoma and one of the biggest was this site, It has a world of knowledge, peopke who can help and who care about you as aperson Sending you bigmhugs,
Love and Light
Carole K——–IT'S A BEAUTIFUL DAY, I OPENED MY EYES TODAY.
SEEE YOU IN CHAT MAGGIE
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- October 8, 2014 at 8:07 pm
Carole –
I am so glad to see you posting again and happy to see you are doing well. You were one of the many generous people that responded to my first panicked inquiries on this discussion board. Your responses along with a few others helped give me the courage to do what I WANTED to do which was focus on my quality of life and overall health FIRST before starting treatment. I am being monitored by a wonderful oncologist who gives me scans every 3-4 months and referred me to a Naturopathic Medical Doctor to help me in my goals of optimal health. So far, in the 9 months since the 5 spots in my lungs were discovered, there have been no new spots and only two spots have shown any growth (minimal). My next scans are in January. I plan to make some changes and see where I land in January. At any time, my oncologist stands at the ready with either Ipi, BRAF or PD-1 (whichever is available at the time – hopefully I can start with PD-1). As my oncologist explained his process to me: He would start with one treatment and stay with it as long as it appeared to be working, if it wasn't working or stopped working, he would move on to the next one, then the next one, etc. I asked him if I could try optimizing my health as my first treatment option. Given my low tumor burden, he thought a 3 month delay would not be problematic as most of his patients are far more advanced when he first sees them. Carole – even if my head explodes between now and January, I will not regret my choice. I have had the best Summer of my life. And it is quality that matters to me so much more than quantity. I somehow doubt that one second after dying a person thinks "gee, I wish I'd avoided this longer". I suspect the response might be more like "what the heck was I putting this off for?". Don't get me wrong, I want very much to live. I just don't think death is necessarily the worst thing ever (it better not be considering it is inevitable). At a very minimum, I won't have to do taxes anymore.
It is so important that we all make our own health decisions for ourselves and hold no one else accountable for the results. We live and die by our own choices. There is no one person that can tell us exactly what to do. We can learn so much from everyone's experiences and expertise. Which is why I value you and everyone on this community as well as my health professionals, both conventional and alternative. But the decision is mine. None of you are responsible for my decisions. Thank you so much for sharing your story.
Be well,
Maggie
-
- October 8, 2014 at 8:07 pm
Carole –
I am so glad to see you posting again and happy to see you are doing well. You were one of the many generous people that responded to my first panicked inquiries on this discussion board. Your responses along with a few others helped give me the courage to do what I WANTED to do which was focus on my quality of life and overall health FIRST before starting treatment. I am being monitored by a wonderful oncologist who gives me scans every 3-4 months and referred me to a Naturopathic Medical Doctor to help me in my goals of optimal health. So far, in the 9 months since the 5 spots in my lungs were discovered, there have been no new spots and only two spots have shown any growth (minimal). My next scans are in January. I plan to make some changes and see where I land in January. At any time, my oncologist stands at the ready with either Ipi, BRAF or PD-1 (whichever is available at the time – hopefully I can start with PD-1). As my oncologist explained his process to me: He would start with one treatment and stay with it as long as it appeared to be working, if it wasn't working or stopped working, he would move on to the next one, then the next one, etc. I asked him if I could try optimizing my health as my first treatment option. Given my low tumor burden, he thought a 3 month delay would not be problematic as most of his patients are far more advanced when he first sees them. Carole – even if my head explodes between now and January, I will not regret my choice. I have had the best Summer of my life. And it is quality that matters to me so much more than quantity. I somehow doubt that one second after dying a person thinks "gee, I wish I'd avoided this longer". I suspect the response might be more like "what the heck was I putting this off for?". Don't get me wrong, I want very much to live. I just don't think death is necessarily the worst thing ever (it better not be considering it is inevitable). At a very minimum, I won't have to do taxes anymore.
It is so important that we all make our own health decisions for ourselves and hold no one else accountable for the results. We live and die by our own choices. There is no one person that can tell us exactly what to do. We can learn so much from everyone's experiences and expertise. Which is why I value you and everyone on this community as well as my health professionals, both conventional and alternative. But the decision is mine. None of you are responsible for my decisions. Thank you so much for sharing your story.
Be well,
Maggie
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- October 9, 2014 at 3:31 pm
Iscador or Mistletoe is quite commonly used in europe but not elsewhere.
I do my own injections.
It is good for regulating immune function and can rectify CD4 CD8 ratios that are out of whack which is quite common in melanoma and for that matter many other cancers.
I take so many supplements that i dont know which one is working or doing anything or not.
I am stage 111 but refused chemo, interferon and a couple of trials that were offerred.
I am not interested in any therapies that make me feel worse unless they are backed up by some really good stats via research.
Nice story and thanks for sharing your experiences. It is always good to hear about people who overcome difficult diagnosis.
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- October 9, 2014 at 6:21 pm
HI SQUASH
Thanks for posting. It's nice to see someone else doing iscdor I also met a young woman on FB who does Mistletoe. She was the first and I met her a few months ago. I was jus tin KY to see my alternative doctor who is an MD and I also gave myself the injections three times a week twice a day. It was combined with Astragalus and Formica for innume system and overall well being. I DID A HUGE AMOUNT OF SUPPLEMENTS AS WELL
Everyone is entitled to do what they feel is best for them. I just have a tough time with chemo—–and INF is a big NOOOOOOOOO FOR ME
WHERE ARE YOU BEING TREATED?
HANG TOUGH AND don't ever give up hopeL KNow I am here for you,
Love and Light
Carole K IT'S A BEAUTIFUL DAY I OPENED MY EYES TODAY..!!!!
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- October 9, 2014 at 6:21 pm
HI SQUASH
Thanks for posting. It's nice to see someone else doing iscdor I also met a young woman on FB who does Mistletoe. She was the first and I met her a few months ago. I was jus tin KY to see my alternative doctor who is an MD and I also gave myself the injections three times a week twice a day. It was combined with Astragalus and Formica for innume system and overall well being. I DID A HUGE AMOUNT OF SUPPLEMENTS AS WELL
Everyone is entitled to do what they feel is best for them. I just have a tough time with chemo—–and INF is a big NOOOOOOOOO FOR ME
WHERE ARE YOU BEING TREATED?
HANG TOUGH AND don't ever give up hopeL KNow I am here for you,
Love and Light
Carole K IT'S A BEAUTIFUL DAY I OPENED MY EYES TODAY..!!!!
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- October 10, 2014 at 2:12 am
I go to a clinic in Germany Bio Med in Bad Berzenberg and I use a naturopath in Australia.
I havent been sick at all. In fact i feel great but I did have a couple of lymph nodes taken out of the groin last month that had melanoma in them.
I am going back to Germany to do some hyperthermia treatment next week to try and mop up any rogue melanoma cells in the other lymph nodes.
Macobiotic diet sounds interesting. There are lots of theories about diet for cancer. I think the most promising one is the ketogenic diet which is high fat low protein and low carbs as this has some real research behind it. The most common diet prescribed by alternative practitoners is the vegan diet but I just find that is hard to get all your requirements on such a diet and easy to become anemic.
i do the mistletoe twice a week along with all the other stuff. Hopefully i wll never need to use any other treatments and i will be able to heal myself.
.
-
- October 10, 2014 at 2:12 am
I go to a clinic in Germany Bio Med in Bad Berzenberg and I use a naturopath in Australia.
I havent been sick at all. In fact i feel great but I did have a couple of lymph nodes taken out of the groin last month that had melanoma in them.
I am going back to Germany to do some hyperthermia treatment next week to try and mop up any rogue melanoma cells in the other lymph nodes.
Macobiotic diet sounds interesting. There are lots of theories about diet for cancer. I think the most promising one is the ketogenic diet which is high fat low protein and low carbs as this has some real research behind it. The most common diet prescribed by alternative practitoners is the vegan diet but I just find that is hard to get all your requirements on such a diet and easy to become anemic.
i do the mistletoe twice a week along with all the other stuff. Hopefully i wll never need to use any other treatments and i will be able to heal myself.
.
-
- October 10, 2014 at 6:56 pm
HI Squash,
Good for you for going with your GUT. Mistletoe therapy I believ was started in Berlin by Rudolph Steiner.. You are the third person I have met who is doing mistletoe the other one is being seen at John Hopkins in Baltimore.. I believe mistletoe is widely used in Europe. I felt fantastic while I was on it and I know the diet and the massages, reiki, meditatiing were alla great part of my healing. Stay posisitive and keep us informed Big Hugs..
Carole K.
I OPNED MY EYES TODAY. IT'S A BEAUTIFUL DAY..
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- October 10, 2014 at 6:56 pm
HI Squash,
Good for you for going with your GUT. Mistletoe therapy I believ was started in Berlin by Rudolph Steiner.. You are the third person I have met who is doing mistletoe the other one is being seen at John Hopkins in Baltimore.. I believe mistletoe is widely used in Europe. I felt fantastic while I was on it and I know the diet and the massages, reiki, meditatiing were alla great part of my healing. Stay posisitive and keep us informed Big Hugs..
Carole K.
I OPNED MY EYES TODAY. IT'S A BEAUTIFUL DAY..
-
- October 10, 2014 at 6:56 pm
HI Squash,
Good for you for going with your GUT. Mistletoe therapy I believ was started in Berlin by Rudolph Steiner.. You are the third person I have met who is doing mistletoe the other one is being seen at John Hopkins in Baltimore.. I believe mistletoe is widely used in Europe. I felt fantastic while I was on it and I know the diet and the massages, reiki, meditatiing were alla great part of my healing. Stay posisitive and keep us informed Big Hugs..
Carole K.
I OPNED MY EYES TODAY. IT'S A BEAUTIFUL DAY..
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- October 11, 2014 at 7:02 pm
HI Manfred,
Let me know if you live in Europe or the US. I got my injections her in the US. I can get you in touch with someone here.. Just leae me a post or email me aat [email protected]. Look forward to hearing from you.
Love and Light
Carole K
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- October 11, 2014 at 7:02 pm
HI Manfred,
Let me know if you live in Europe or the US. I got my injections her in the US. I can get you in touch with someone here.. Just leae me a post or email me aat [email protected]. Look forward to hearing from you.
Love and Light
Carole K
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- October 11, 2014 at 10:27 pm
Hi Carole,
2 days ago under contact I send you a lengthy message on this blog but it must not have reached you,and yes I would like to talk to you.I live in the Seattle area and pls. contact me per email [email protected] .Are using Skype? or we can talk by phone.
Thanks, Manfred
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- October 11, 2014 at 10:27 pm
Hi Carole,
2 days ago under contact I send you a lengthy message on this blog but it must not have reached you,and yes I would like to talk to you.I live in the Seattle area and pls. contact me per email [email protected] .Are using Skype? or we can talk by phone.
Thanks, Manfred
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- October 11, 2014 at 10:27 pm
Hi Carole,
2 days ago under contact I send you a lengthy message on this blog but it must not have reached you,and yes I would like to talk to you.I live in the Seattle area and pls. contact me per email [email protected] .Are using Skype? or we can talk by phone.
Thanks, Manfred
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- October 12, 2014 at 1:03 am
For some reason I cant copy and paste a link here but i bought my mistletoe onlline from a German pharmacy.
Try and google mistletoe pharmacy and you should find it.
149 euros including delivery to Australia for three months supply at twice a week injection.
Far infrared sauna is a good option a couple of times a week. Melanoma is very heat sensitive so I would do that. You only need 45 mins in the sauna then after the sauna take a big dose of lipsomal vitamin C something like 5grams you can buy this vitamin c or make it yourself.
-
- October 12, 2014 at 3:45 pm
Hi Squash,
thanks for your help and recomentations.Also I grew up in Germany and moved to the US in my 20's.So finding Iscador is not a problem.The problem I might have is the american costums and the legality to have it shipped to the US being not legal in the US.Also what I gather from the german pharmacy the product needs to be shipped cold.Also what strain of Iscador are you using and which is best for or better against mel. O,P,Q. I understand it is a immunsystem booster but still there might be some differances.
Thanks, Manfred
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- October 12, 2014 at 11:25 pm
Hi Manfred,
I don't know if Squash has seen this and I hope Squash will let us know. In the meantime, I found an obscure link on that website indicating that Helixor – P (Pine) appears to be the version used for Melanoma
http://www.helixor.com/integrative-cancer-therapy/mistletoe-therapy/products/
Cheers, Maggie (I'm reading up more on this too but have not found a local doctor willing to work with it yet).
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- October 13, 2014 at 11:09 am
Yes Helixor P is the one i am using.
And no it doesnt need to be shipped cold.
It is not approved in Australia either but it is not illegal and I think it is the same for the US. Customs took their time getting thru both of my shipments but still let them thru.
I just arrived in Germay today so i will take a few months worth back with me this time.
I will also get to see if my CD4 CD4 count ratio is better now I have been taking it for four months as I got a blood test this morning and can compare to the last blood test.
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- October 13, 2014 at 11:09 am
Yes Helixor P is the one i am using.
And no it doesnt need to be shipped cold.
It is not approved in Australia either but it is not illegal and I think it is the same for the US. Customs took their time getting thru both of my shipments but still let them thru.
I just arrived in Germay today so i will take a few months worth back with me this time.
I will also get to see if my CD4 CD4 count ratio is better now I have been taking it for four months as I got a blood test this morning and can compare to the last blood test.
-
- October 13, 2014 at 11:09 am
Yes Helixor P is the one i am using.
And no it doesnt need to be shipped cold.
It is not approved in Australia either but it is not illegal and I think it is the same for the US. Customs took their time getting thru both of my shipments but still let them thru.
I just arrived in Germay today so i will take a few months worth back with me this time.
I will also get to see if my CD4 CD4 count ratio is better now I have been taking it for four months as I got a blood test this morning and can compare to the last blood test.
-
- October 12, 2014 at 11:25 pm
Hi Manfred,
I don't know if Squash has seen this and I hope Squash will let us know. In the meantime, I found an obscure link on that website indicating that Helixor – P (Pine) appears to be the version used for Melanoma
http://www.helixor.com/integrative-cancer-therapy/mistletoe-therapy/products/
Cheers, Maggie (I'm reading up more on this too but have not found a local doctor willing to work with it yet).
-
- October 12, 2014 at 11:25 pm
Hi Manfred,
I don't know if Squash has seen this and I hope Squash will let us know. In the meantime, I found an obscure link on that website indicating that Helixor – P (Pine) appears to be the version used for Melanoma
http://www.helixor.com/integrative-cancer-therapy/mistletoe-therapy/products/
Cheers, Maggie (I'm reading up more on this too but have not found a local doctor willing to work with it yet).
-
- October 12, 2014 at 3:45 pm
Hi Squash,
thanks for your help and recomentations.Also I grew up in Germany and moved to the US in my 20's.So finding Iscador is not a problem.The problem I might have is the american costums and the legality to have it shipped to the US being not legal in the US.Also what I gather from the german pharmacy the product needs to be shipped cold.Also what strain of Iscador are you using and which is best for or better against mel. O,P,Q. I understand it is a immunsystem booster but still there might be some differances.
Thanks, Manfred
-
- October 12, 2014 at 3:45 pm
Hi Squash,
thanks for your help and recomentations.Also I grew up in Germany and moved to the US in my 20's.So finding Iscador is not a problem.The problem I might have is the american costums and the legality to have it shipped to the US being not legal in the US.Also what I gather from the german pharmacy the product needs to be shipped cold.Also what strain of Iscador are you using and which is best for or better against mel. O,P,Q. I understand it is a immunsystem booster but still there might be some differances.
Thanks, Manfred
-
- October 12, 2014 at 1:03 am
For some reason I cant copy and paste a link here but i bought my mistletoe onlline from a German pharmacy.
Try and google mistletoe pharmacy and you should find it.
149 euros including delivery to Australia for three months supply at twice a week injection.
Far infrared sauna is a good option a couple of times a week. Melanoma is very heat sensitive so I would do that. You only need 45 mins in the sauna then after the sauna take a big dose of lipsomal vitamin C something like 5grams you can buy this vitamin c or make it yourself.
-
- October 12, 2014 at 1:03 am
For some reason I cant copy and paste a link here but i bought my mistletoe onlline from a German pharmacy.
Try and google mistletoe pharmacy and you should find it.
149 euros including delivery to Australia for three months supply at twice a week injection.
Far infrared sauna is a good option a couple of times a week. Melanoma is very heat sensitive so I would do that. You only need 45 mins in the sauna then after the sauna take a big dose of lipsomal vitamin C something like 5grams you can buy this vitamin c or make it yourself.
-
- October 11, 2014 at 7:02 pm
HI Manfred,
Let me know if you live in Europe or the US. I got my injections her in the US. I can get you in touch with someone here.. Just leae me a post or email me aat [email protected]. Look forward to hearing from you.
Love and Light
Carole K
-
- October 10, 2014 at 2:12 am
I go to a clinic in Germany Bio Med in Bad Berzenberg and I use a naturopath in Australia.
I havent been sick at all. In fact i feel great but I did have a couple of lymph nodes taken out of the groin last month that had melanoma in them.
I am going back to Germany to do some hyperthermia treatment next week to try and mop up any rogue melanoma cells in the other lymph nodes.
Macobiotic diet sounds interesting. There are lots of theories about diet for cancer. I think the most promising one is the ketogenic diet which is high fat low protein and low carbs as this has some real research behind it. The most common diet prescribed by alternative practitoners is the vegan diet but I just find that is hard to get all your requirements on such a diet and easy to become anemic.
i do the mistletoe twice a week along with all the other stuff. Hopefully i wll never need to use any other treatments and i will be able to heal myself.
.
-
- October 9, 2014 at 6:21 pm
HI SQUASH
Thanks for posting. It's nice to see someone else doing iscdor I also met a young woman on FB who does Mistletoe. She was the first and I met her a few months ago. I was jus tin KY to see my alternative doctor who is an MD and I also gave myself the injections three times a week twice a day. It was combined with Astragalus and Formica for innume system and overall well being. I DID A HUGE AMOUNT OF SUPPLEMENTS AS WELL
Everyone is entitled to do what they feel is best for them. I just have a tough time with chemo—–and INF is a big NOOOOOOOOO FOR ME
WHERE ARE YOU BEING TREATED?
HANG TOUGH AND don't ever give up hopeL KNow I am here for you,
Love and Light
Carole K IT'S A BEAUTIFUL DAY I OPENED MY EYES TODAY..!!!!
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- October 9, 2014 at 3:31 pm
Iscador or Mistletoe is quite commonly used in europe but not elsewhere.
I do my own injections.
It is good for regulating immune function and can rectify CD4 CD8 ratios that are out of whack which is quite common in melanoma and for that matter many other cancers.
I take so many supplements that i dont know which one is working or doing anything or not.
I am stage 111 but refused chemo, interferon and a couple of trials that were offerred.
I am not interested in any therapies that make me feel worse unless they are backed up by some really good stats via research.
Nice story and thanks for sharing your experiences. It is always good to hear about people who overcome difficult diagnosis.
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- October 9, 2014 at 3:31 pm
Iscador or Mistletoe is quite commonly used in europe but not elsewhere.
I do my own injections.
It is good for regulating immune function and can rectify CD4 CD8 ratios that are out of whack which is quite common in melanoma and for that matter many other cancers.
I take so many supplements that i dont know which one is working or doing anything or not.
I am stage 111 but refused chemo, interferon and a couple of trials that were offerred.
I am not interested in any therapies that make me feel worse unless they are backed up by some really good stats via research.
Nice story and thanks for sharing your experiences. It is always good to hear about people who overcome difficult diagnosis.
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Tagged: cutaneous melanoma
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