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Need help finding a doctor

Forums General Melanoma Community Need help finding a doctor

  • Post
    CancerSucks
    Participant
    I need helping finding a doctor for a family member diagnosed with stage iv melanoma with metastasis pretty much everywhere (brain, lungs, liver, lymph nodes, etc.). I feel like due to the diagnosis and poor prognosis, I don’t want to mess around – I’d like to get, at the very least, an opinion from a top doctor in the field of melanoma research. But, I’m having a hard time figuring out who that would be… Any advice? how to research? good experiences from specific doctors? I have a bazillion airlines miles so we can pretty much pack up and go anywhere.

    This is scary stuff! Any help would be very much appreciated!!

    Thanks!

Viewing 26 reply threads
  • Replies
      buffcody
      Participant

      Moffit Tampa, M.D. Anderson, Sloan Kettering are three good ones.  But I would look close to home first.  You may have a good one in your backyard, and I don't know where that is.  Who are you seeing now?  That info would help us, your potential advisers.

      buffcody
      Participant

      Moffit Tampa, M.D. Anderson, Sloan Kettering are three good ones.  But I would look close to home first.  You may have a good one in your backyard, and I don't know where that is.  Who are you seeing now?  That info would help us, your potential advisers.

      buffcody
      Participant

      Moffit Tampa, M.D. Anderson, Sloan Kettering are three good ones.  But I would look close to home first.  You may have a good one in your backyard, and I don't know where that is.  Who are you seeing now?  That info would help us, your potential advisers.

      Tim–MRF
      Guest

      The key is to find a place that sees a lot of melanomas.  They will likely be abreast of current treatments and be involved in clinical trials–both are important.

      I recommend you get two opinions, and get a sense of which treatment approach and treatment team is the best match.

      The MRF has pulled together a clinical trials consortium, comprised of some of the best melanoma programs.  That list is not a bad place to start, though many other good programs are out there.  The consoritum is made of (in no particular order):

      Penn

      Pitt

      Moffitt

      UCLA

      UCSF

      NYU

      Sloan Kettering

      Yale

      University of Washington

      Yale

      Vanderbilt

      MD Anderson

       

      Tim–MRF

        kylez
        Participant

        Yay! (UCSF)

        kylez
        Participant

        Yay! (UCSF)

        kylez
        Participant

        Yay! (UCSF)

      Tim–MRF
      Guest

      The key is to find a place that sees a lot of melanomas.  They will likely be abreast of current treatments and be involved in clinical trials–both are important.

      I recommend you get two opinions, and get a sense of which treatment approach and treatment team is the best match.

      The MRF has pulled together a clinical trials consortium, comprised of some of the best melanoma programs.  That list is not a bad place to start, though many other good programs are out there.  The consoritum is made of (in no particular order):

      Penn

      Pitt

      Moffitt

      UCLA

      UCSF

      NYU

      Sloan Kettering

      Yale

      University of Washington

      Yale

      Vanderbilt

      MD Anderson

       

      Tim–MRF

      Tim–MRF
      Guest

      The key is to find a place that sees a lot of melanomas.  They will likely be abreast of current treatments and be involved in clinical trials–both are important.

      I recommend you get two opinions, and get a sense of which treatment approach and treatment team is the best match.

      The MRF has pulled together a clinical trials consortium, comprised of some of the best melanoma programs.  That list is not a bad place to start, though many other good programs are out there.  The consoritum is made of (in no particular order):

      Penn

      Pitt

      Moffitt

      UCLA

      UCSF

      NYU

      Sloan Kettering

      Yale

      University of Washington

      Yale

      Vanderbilt

      MD Anderson

       

      Tim–MRF

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      CancerSucks
      Participant

      Thank you so much for the list!  I should have mentioned where we live!  We're in Tennassee…  We have family in the NY area, in NC, and in the north west.  So, there's a lot of options for travel.

       

      Thanks again! 

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      melissa ann
      Participant
      Hi, we live in Boone, NC. Our melanoma specialist is Dr. Asim Amin at Levine Cancer Institute in Charlotte, NC. However , my husband is currently being treated at MD Anderson. We have also been to Moffitt for treatment. So, I guess what I am saying is that Dr. Amin is a great place to start and stick with knowing that he has sent us to other centers to get the treatment he thought was best for us. We value his opinion and respect him very much. He also works very closely with Dr. Rich White who is a surgical oncologist also specializing in melanoma. I hope this is helpful.

      Melissa

      LibbyinVA
      Participant

      I highly recommend Dr Anna Pavlick at NYU Clinical Cancer Center's Melanoma Research. I participated in one of her clinical trials in 2006 and she is still my oncologist. She is brilliant, collaborates with other noted physicians in the melanoma medical community and is beyond compassionate. She also has a wonderful sense of humor. Dr Pavlick was the only doctor who gave me hope when I was first diagnosed.

      If you decide to go with her, feel free to contact me and I will provide you with all her contact information,  including her appointment contact person.

      Although I live in Virginia, it has been well worth the trip to see her. She made a difference in my life and continues to do just that.

      All the best with this decision. Keep us posted if that is ok with you. This is the best place to come for whatever you need. The people here really care.

      Take care!

      Libby

      LibbyinVA
      Participant

      I highly recommend Dr Anna Pavlick at NYU Clinical Cancer Center's Melanoma Research. I participated in one of her clinical trials in 2006 and she is still my oncologist. She is brilliant, collaborates with other noted physicians in the melanoma medical community and is beyond compassionate. She also has a wonderful sense of humor. Dr Pavlick was the only doctor who gave me hope when I was first diagnosed.

      If you decide to go with her, feel free to contact me and I will provide you with all her contact information,  including her appointment contact person.

      Although I live in Virginia, it has been well worth the trip to see her. She made a difference in my life and continues to do just that.

      All the best with this decision. Keep us posted if that is ok with you. This is the best place to come for whatever you need. The people here really care.

      Take care!

      Libby

      LibbyinVA
      Participant

      I highly recommend Dr Anna Pavlick at NYU Clinical Cancer Center's Melanoma Research. I participated in one of her clinical trials in 2006 and she is still my oncologist. She is brilliant, collaborates with other noted physicians in the melanoma medical community and is beyond compassionate. She also has a wonderful sense of humor. Dr Pavlick was the only doctor who gave me hope when I was first diagnosed.

      If you decide to go with her, feel free to contact me and I will provide you with all her contact information,  including her appointment contact person.

      Although I live in Virginia, it has been well worth the trip to see her. She made a difference in my life and continues to do just that.

      All the best with this decision. Keep us posted if that is ok with you. This is the best place to come for whatever you need. The people here really care.

      Take care!

      Libby

      aldakota22
      Participant

      Like the previous poster I am also under Anna Pavaliclks care.Been to Sloan Memorial for a possible trial partiscipation almost 2 years ago and was not impressed. .With communication with my local oncologist I went to Sloan Kettering to patiscipate in new trial.Actually they never had a trial with both Yervoy & Zelboraf .To them it  was no big deal even though it  delayed my use of "Z" as soon as it came out in August of 2011 by approx 6 weeks.Thank God the drug worked and is still working .No matter where you go select a major center that is easiest and less stressful to get to.Prayers sent your way .Beat the Beast.   Al

      aldakota22
      Participant

      Like the previous poster I am also under Anna Pavaliclks care.Been to Sloan Memorial for a possible trial partiscipation almost 2 years ago and was not impressed. .With communication with my local oncologist I went to Sloan Kettering to patiscipate in new trial.Actually they never had a trial with both Yervoy & Zelboraf .To them it  was no big deal even though it  delayed my use of "Z" as soon as it came out in August of 2011 by approx 6 weeks.Thank God the drug worked and is still working .No matter where you go select a major center that is easiest and less stressful to get to.Prayers sent your way .Beat the Beast.   Al

      aldakota22
      Participant

      Like the previous poster I am also under Anna Pavaliclks care.Been to Sloan Memorial for a possible trial partiscipation almost 2 years ago and was not impressed. .With communication with my local oncologist I went to Sloan Kettering to patiscipate in new trial.Actually they never had a trial with both Yervoy & Zelboraf .To them it  was no big deal even though it  delayed my use of "Z" as soon as it came out in August of 2011 by approx 6 weeks.Thank God the drug worked and is still working .No matter where you go select a major center that is easiest and less stressful to get to.Prayers sent your way .Beat the Beast.   Al

      awillett1991
      Participant
      I’ve been a patient of Dr Sosman’s at Vanderbilt almost 2 years. He is wonderful. Vandy has lots of clinical trials open right now, I just started Merck’s anti-PD1 trial. I’ve also been to MD Anderson. They certainly see a lot more Mel and have a bigger staff but it can definitely be less personal. Good luck whatever you decide!
      awillett1991
      Participant
      I’ve been a patient of Dr Sosman’s at Vanderbilt almost 2 years. He is wonderful. Vandy has lots of clinical trials open right now, I just started Merck’s anti-PD1 trial. I’ve also been to MD Anderson. They certainly see a lot more Mel and have a bigger staff but it can definitely be less personal. Good luck whatever you decide!
      awillett1991
      Participant
      I’ve been a patient of Dr Sosman’s at Vanderbilt almost 2 years. He is wonderful. Vandy has lots of clinical trials open right now, I just started Merck’s anti-PD1 trial. I’ve also been to MD Anderson. They certainly see a lot more Mel and have a bigger staff but it can definitely be less personal. Good luck whatever you decide!
Viewing 26 reply threads
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