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Need help convincing ONC to do Yervoy
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Need help convincing ONC to do Yervoy

› Forums › General Melanoma Community › Need help convincing ONC to do Yervoy

  • Post
    • December 31, 2011 at 12:16 am
    Rona
    Participant

      I have been going back and forth with my local ONC to get a treatment that will stop my mets coming back so frequently.

      I have had 11 surgeries since March 2011 to remove spots. I have been on DTIC and it is not doing the job. But…. my ONC is so scared of the side effects of Yervoy he won't even consider it. So, I harassed him into refering me to the learning university in AR. I need to convince this doc (if he will see me) that Yervoy is the next step. 

      I have been going back and forth with my local ONC to get a treatment that will stop my mets coming back so frequently.

      I have had 11 surgeries since March 2011 to remove spots. I have been on DTIC and it is not doing the job. But…. my ONC is so scared of the side effects of Yervoy he won't even consider it. So, I harassed him into refering me to the learning university in AR. I need to convince this doc (if he will see me) that Yervoy is the next step. 

      I don't want to be on DTIC for the rest of my life and still have surgeries. Geez, is that to much to ask….

       

      I need your advise on what I should say. 

       

      Rona

    Viewing 5 reply threads
    • Replies
        • December 31, 2011 at 3:22 am
        JerryfromFauq
        Participant

          Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

            • December 31, 2011 at 3:54 am
            Rona
            Participant
              Jerry-
              Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
              Rona
              • December 31, 2011 at 5:47 am
              kylez
              Participant

                Rona,

                Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

                Arkansas Oncology Association

                1000 N University Ave.

                Little Rock, AR  72207

                501-661-0060

                http://arkansascancercenters.com

                Thomas B. Sneed, MD

                 

                Arkansas Oncology Association

                3401 Springhill Dr., Ste 490

                North Little Rock, AR  72117

                501-686-8250

                http://arkansascancercenters.com

                Syed Mazher, MD

                Omer Khalil, MD

                 

                Arkansas Oncology Association

                180 Medical Park Pl.

                Hot Springs, AR  71901

                501-625-3334

                http://arkansascancercenters.com

                Neerha Bharany, MD

                 

                Winthrop Paul Rockefeller Cancer Institute

                University of Arkansas

                4301 West Markham St.

                Little Rock, AR 72205

                501-686-7000

                http://cancer.uams.edu

                Laura Fulper Hutchins, MD

                Paulette Mehta, MD

                • December 31, 2011 at 5:47 am
                kylez
                Participant

                  Rona,

                  Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

                  Arkansas Oncology Association

                  1000 N University Ave.

                  Little Rock, AR  72207

                  501-661-0060

                  http://arkansascancercenters.com

                  Thomas B. Sneed, MD

                   

                  Arkansas Oncology Association

                  3401 Springhill Dr., Ste 490

                  North Little Rock, AR  72117

                  501-686-8250

                  http://arkansascancercenters.com

                  Syed Mazher, MD

                  Omer Khalil, MD

                   

                  Arkansas Oncology Association

                  180 Medical Park Pl.

                  Hot Springs, AR  71901

                  501-625-3334

                  http://arkansascancercenters.com

                  Neerha Bharany, MD

                   

                  Winthrop Paul Rockefeller Cancer Institute

                  University of Arkansas

                  4301 West Markham St.

                  Little Rock, AR 72205

                  501-686-7000

                  http://cancer.uams.edu

                  Laura Fulper Hutchins, MD

                  Paulette Mehta, MD

                  • December 31, 2011 at 5:47 am
                  kylez
                  Participant

                    Rona,

                    Good for you for beinb persistent. If you can get to see a melanoma-specialing oncs in my experience that is a major, major boost. Here's a list from http://www.aimatmelanoma.org/aim-for-answers/path-to-getting-a-diagnosis/finding-the-right-doctor.html of melanoma specialists in AR: 

                    Arkansas Oncology Association

                    1000 N University Ave.

                    Little Rock, AR  72207

                    501-661-0060

                    http://arkansascancercenters.com

                    Thomas B. Sneed, MD

                     

                    Arkansas Oncology Association

                    3401 Springhill Dr., Ste 490

                    North Little Rock, AR  72117

                    501-686-8250

                    http://arkansascancercenters.com

                    Syed Mazher, MD

                    Omer Khalil, MD

                     

                    Arkansas Oncology Association

                    180 Medical Park Pl.

                    Hot Springs, AR  71901

                    501-625-3334

                    http://arkansascancercenters.com

                    Neerha Bharany, MD

                     

                    Winthrop Paul Rockefeller Cancer Institute

                    University of Arkansas

                    4301 West Markham St.

                    Little Rock, AR 72205

                    501-686-7000

                    http://cancer.uams.edu

                    Laura Fulper Hutchins, MD

                    Paulette Mehta, MD

                    • December 31, 2011 at 3:54 am
                    Rona
                    Participant
                      Jerry-
                      Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
                      Rona
                      • December 31, 2011 at 3:54 am
                      Rona
                      Participant
                        Jerry-
                        Yes, I have contacted the only place in my state that has done a trial for Yervoy. I have finally talked my local Onc to refer me to the hospital for a consultation. If this new onc agrees to see me I don’t want to blow it. I have been trying to convince my local Onc for about 4 months just for the referral. It’s very frustrating, I’m sure everyone on this site understands.
                        Rona
                      • December 31, 2011 at 3:22 am
                      JerryfromFauq
                      Participant

                        Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

                        • December 31, 2011 at 3:22 am
                        JerryfromFauq
                        Participant

                          Have you contacted one of the sites that were involved in the clinical trial testing?  One of those sites would be experienced in watching for the side effects, catching and responding to negative side effects earlier.

                          • December 31, 2011 at 5:16 pm
                          Gene_S
                          Participant

                            Rona,

                            I believe that treatments are based on what "stage" your melanoma is.

                            Your profile states that it is unknown. A suggestion for you is to ask your

                            oncologist for this number and maybe you would get some better advise

                            from the good folks here.

                            Best wishes,

                            Gene (stage IV)

                            • December 31, 2011 at 5:16 pm
                            Gene_S
                            Participant

                              Rona,

                              I believe that treatments are based on what "stage" your melanoma is.

                              Your profile states that it is unknown. A suggestion for you is to ask your

                              oncologist for this number and maybe you would get some better advise

                              from the good folks here.

                              Best wishes,

                              Gene (stage IV)

                              • December 31, 2011 at 5:16 pm
                              Gene_S
                              Participant

                                Rona,

                                I believe that treatments are based on what "stage" your melanoma is.

                                Your profile states that it is unknown. A suggestion for you is to ask your

                                oncologist for this number and maybe you would get some better advise

                                from the good folks here.

                                Best wishes,

                                Gene (stage IV)

                            Viewing 5 reply threads
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