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  • Post
    • November 9, 2016 at 9:22 pm
    cf91
    Participant

      Does anyone have any info on maxillectomy?  Diagnosed stage 4 melanoma back in 2014.  Mel spread to sinus cavity and upper maxillary.  Done the interefron, IL-2, Yervoy & Nivo.  Currently in a genetic clinical study.  Showing some improvement but not at the point we had hoped to be by now.  Dr. says to keep moving forward with trail as he feels we're moving in the right direction.  The hope here is for tumor in upper maxillary to get small enough to have surgery and a maxillary obturator to be done.  From what I'm ready about this procedure scares me to say the least.  I'm having issues with the maxillary area and in constant discomfort.  My feeling has always been to get the cancer out, but again, this is such a horrifying thought!  Please, any insight is much appreciated. 

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    • Replies
        • November 9, 2016 at 9:54 pm
        debwray
        Participant

          Hi,

          Think this is a fairly unusual presentation but you might be able to get more information from a patient perspective by searching for maxillectomy or maxilliary cancer and obturator or jaw cancer or oral cancer plus support forum as key words.

          This link is fairly old but has some info-and if they can shrink your tumour hopefully the surgery will not need to be so extensive.

           https://www.cancercompass.com/message-board/message/all,42644,0.htm

          Best wishes

          Deb

           

           

          • November 9, 2016 at 9:54 pm
          debwray
          Participant

            Hi,

            Think this is a fairly unusual presentation but you might be able to get more information from a patient perspective by searching for maxillectomy or maxilliary cancer and obturator or jaw cancer or oral cancer plus support forum as key words.

            This link is fairly old but has some info-and if they can shrink your tumour hopefully the surgery will not need to be so extensive.

             https://www.cancercompass.com/message-board/message/all,42644,0.htm

            Best wishes

            Deb

             

             

            • November 9, 2016 at 9:54 pm
            debwray
            Participant

              Hi,

              Think this is a fairly unusual presentation but you might be able to get more information from a patient perspective by searching for maxillectomy or maxilliary cancer and obturator or jaw cancer or oral cancer plus support forum as key words.

              This link is fairly old but has some info-and if they can shrink your tumour hopefully the surgery will not need to be so extensive.

               https://www.cancercompass.com/message-board/message/all,42644,0.htm

              Best wishes

              Deb

               

               

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