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NED on Zelboraf
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NED on Zelboraf

› Forums › General Melanoma Community › NED on Zelboraf

  • Post
    • August 11, 2012 at 11:34 pm
    Tina D
    Participant

      I have actually struggled quite a bit over writing this, with so many suffering so much. My hope is to bring encouragement to weary ones.

      I have actually struggled quite a bit over writing this, with so many suffering so much. My hope is to bring encouragement to weary ones.

      I started on Zelboraf in May, then had to be taken off for nearly 3 weeks due to severe reaction ( hideous spreading rash). I went back on at a reduced dosage ( 720 twice a day). Tumors were in more than one area of my pancreas, in the messentery infront of pancreas, one near my aorta, one in my back muscle. I had my first PET/CT on Monday the 6th and on Tuesday the Oncologist reported that scans show NO evidence of Disease. None. Everything is gone. He was so thrilled to share this news with us, and we are praising God for this wonderful answer to prayer.

      The current plan is for me to continue on Z at current dosage, re-scan in abt 3 months, then possibly lower the dosage to minimize side effects if scan is still clear. I am having the full range of side effects, it seems… though after this news, I dont mind them as much!

      Again, I hope others can and will find encouragement from this.

      With a grateful heart

      Tina

    Viewing 17 reply threads
    • Replies
        • August 12, 2012 at 12:08 am
        lhaley
        Participant

          Such fantastic news!    Aways post good news, we need it it!!    I'm getting ready to start the zelbaraf in about 2 weeks for brain mets.   

          • August 12, 2012 at 12:08 am
          lhaley
          Participant

            Such fantastic news!    Aways post good news, we need it it!!    I'm getting ready to start the zelbaraf in about 2 weeks for brain mets.   

            • August 12, 2012 at 12:08 am
            lhaley
            Participant

              Such fantastic news!    Aways post good news, we need it it!!    I'm getting ready to start the zelbaraf in about 2 weeks for brain mets.   

              • August 12, 2012 at 2:07 am
              awillett1991
              Participant
                Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                • August 12, 2012 at 2:07 am
                awillett1991
                Participant
                  Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                  • August 12, 2012 at 2:07 am
                  awillett1991
                  Participant
                    Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                    • August 12, 2012 at 2:07 am
                    awillett1991
                    Participant
                      Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                      • August 12, 2012 at 2:07 am
                      awillett1991
                      Participant
                        Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                        • August 12, 2012 at 2:07 am
                        awillett1991
                        Participant
                          Great news Tina, thanks for sharing! I started in April and have finally seen the nausea gone, over a month now. Joint pain left me for a month too, but returned, and my hair is almost gone. I got a wig. Great results do make it all worthwhile. It is working for me too, I have a tumor in my right ventricle. Serious real estate, the heart. Linda- have hope -I can tell you I KNOW Zel can work in the brain, and very quickly!
                          • August 12, 2012 at 4:38 am
                          Nell
                          Participant

                            Just terrific!!!!  I surely do believe in answered prayers.  Keep us posted  and many blessings.

                            • August 12, 2012 at 4:38 am
                            Nell
                            Participant

                              Just terrific!!!!  I surely do believe in answered prayers.  Keep us posted  and many blessings.

                              • August 12, 2012 at 4:38 am
                              Nell
                              Participant

                                Just terrific!!!!  I surely do believe in answered prayers.  Keep us posted  and many blessings.

                                • August 12, 2012 at 11:48 am
                                triciad
                                Participant

                                  Tina,

                                  Great news like this should always be shared…it's inspiring!  Here's to a lifetime of NED!!!!  Congratulations and go out and celebrate!

                                  Tricia

                                  • August 12, 2012 at 11:48 am
                                  triciad
                                  Participant

                                    Tina,

                                    Great news like this should always be shared…it's inspiring!  Here's to a lifetime of NED!!!!  Congratulations and go out and celebrate!

                                    Tricia

                                    • August 12, 2012 at 11:48 am
                                    triciad
                                    Participant

                                      Tina,

                                      Great news like this should always be shared…it's inspiring!  Here's to a lifetime of NED!!!!  Congratulations and go out and celebrate!

                                      Tricia

                                      • August 12, 2012 at 1:57 pm
                                      Richard_K
                                      Participant

                                        Tina

                                        Great news and thanks for sharing.  Zelboraf can work wonders.

                                        Dick

                                        • August 12, 2012 at 1:57 pm
                                        Richard_K
                                        Participant

                                          Tina

                                          Great news and thanks for sharing.  Zelboraf can work wonders.

                                          Dick

                                          • August 12, 2012 at 1:57 pm
                                          Richard_K
                                          Participant

                                            Tina

                                            Great news and thanks for sharing.  Zelboraf can work wonders.

                                            Dick

                                              • August 12, 2012 at 6:02 pm
                                              Snickers60
                                              Participant

                                                WAY TO GO, TINA !!!!!!!    DONTCHA JUST LOVE THAT NAME, "NED" ???   I pray you will enjoy many, many, many years with that NEW NAME !     Hubby Wayne was NED in 7 weeks on ZEL  (mets to liver, lungs, sternum, spine, leg bone) – we scan again next week !

                                                WHOOO HOOO for you – please keep us posted !   I too felt a little guilty posting such good results so quickly, but this is what those who are struggling NEED to hear !   Thanks for sharing !

                                                 

                                                Nancy (devoted wife of 3 X Warrior Wayne)

                                                • August 12, 2012 at 6:02 pm
                                                Snickers60
                                                Participant

                                                  WAY TO GO, TINA !!!!!!!    DONTCHA JUST LOVE THAT NAME, "NED" ???   I pray you will enjoy many, many, many years with that NEW NAME !     Hubby Wayne was NED in 7 weeks on ZEL  (mets to liver, lungs, sternum, spine, leg bone) – we scan again next week !

                                                  WHOOO HOOO for you – please keep us posted !   I too felt a little guilty posting such good results so quickly, but this is what those who are struggling NEED to hear !   Thanks for sharing !

                                                   

                                                  Nancy (devoted wife of 3 X Warrior Wayne)

                                                  • December 5, 2012 at 12:31 am
                                                  mhensley1
                                                  Participant

                                                    Thanks for sharing on the Zelboraf…..the bio-chemo is so rough on my husband who has stage IV melanoma mets to the hip bone. We are considering using this. 

                                                    • December 5, 2012 at 12:31 am
                                                    mhensley1
                                                    Participant

                                                      Thanks for sharing on the Zelboraf…..the bio-chemo is so rough on my husband who has stage IV melanoma mets to the hip bone. We are considering using this. 

                                                      • December 5, 2012 at 12:31 am
                                                      mhensley1
                                                      Participant

                                                        Thanks for sharing on the Zelboraf…..the bio-chemo is so rough on my husband who has stage IV melanoma mets to the hip bone. We are considering using this. 

                                                        • August 12, 2012 at 6:02 pm
                                                        Snickers60
                                                        Participant

                                                          WAY TO GO, TINA !!!!!!!    DONTCHA JUST LOVE THAT NAME, "NED" ???   I pray you will enjoy many, many, many years with that NEW NAME !     Hubby Wayne was NED in 7 weeks on ZEL  (mets to liver, lungs, sternum, spine, leg bone) – we scan again next week !

                                                          WHOOO HOOO for you – please keep us posted !   I too felt a little guilty posting such good results so quickly, but this is what those who are struggling NEED to hear !   Thanks for sharing !

                                                           

                                                          Nancy (devoted wife of 3 X Warrior Wayne)

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