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My oncologists don’t want to see me any more *Happy Dance*

Forums General Melanoma Community My oncologists don’t want to see me any more *Happy Dance*

  • Post
    Kim K
    Participant

      In one month I will be 6 years stage IV – NED post surgery and IL-2.  Both my oncologists fired me as a client because I was soooooo boring, they had nothing to do.  Basically said, you know where you can find us should any issues arise but we really don't have to see you any more.

      This is one of my best graduations yet!  I get to die from heart disease, stroke, or being stupid, or getting killed by "blue ice", or a pack of flying monkyes instead.

      I am haning my hat on the long term survivorship of complete responders from IL-2.  We are still setting the survival curve.  Charlie, you better damn well join me you curmudgen…  I miss our hot tub parties with Barth, StanN, Don W, Carole K and the gang.

    Viewing 32 reply threads
    • Replies
        JoshF
        Participant

          This is what it's about. Can't be happier for you!!! I certainly hope to join one day….thought I was on my way many times only to stumble. Enjoy Kim but make sure you check in….I know you will!!!!

          JoshF
          Participant

            This is what it's about. Can't be happier for you!!! I certainly hope to join one day….thought I was on my way many times only to stumble. Enjoy Kim but make sure you check in….I know you will!!!!

            JoshF
            Participant

              This is what it's about. Can't be happier for you!!! I certainly hope to join one day….thought I was on my way many times only to stumble. Enjoy Kim but make sure you check in….I know you will!!!!

              Bubbles
              Participant

                We still like to see your happy dance! Congrats! Celeste

                  Kim K
                  Participant

                    Yeah, I thought you were close so many times before.  I think there is plenty of room on the NED forever podium even if I have to drag people up here kicking and screaming.  Hang tough, mel picked the wrong person when it messed with you.

                    Kim K
                    Participant

                      Yeah, I thought you were close so many times before.  I think there is plenty of room on the NED forever podium even if I have to drag people up here kicking and screaming.  Hang tough, mel picked the wrong person when it messed with you.

                      Kim K
                      Participant

                        Yeah, I thought you were close so many times before.  I think there is plenty of room on the NED forever podium even if I have to drag people up here kicking and screaming.  Hang tough, mel picked the wrong person when it messed with you.

                      Bubbles
                      Participant

                        We still like to see your happy dance! Congrats! Celeste

                        Bubbles
                        Participant

                          We still like to see your happy dance! Congrats! Celeste

                          kylez
                          Participant

                            Yee-Haw! I bet the animals you take care of / doctor are pretty psyched too ๐Ÿ™‚

                            kylez
                            Participant

                              Yee-Haw! I bet the animals you take care of / doctor are pretty psyched too ๐Ÿ™‚

                              kylez
                              Participant

                                Yee-Haw! I bet the animals you take care of / doctor are pretty psyched too ๐Ÿ™‚

                                Linny
                                Participant

                                  What wonderful news!!!! Congratulations!!!! And, thanks for the gift of hope for the rest of us. 

                                  Linny
                                  Participant

                                    What wonderful news!!!! Congratulations!!!! And, thanks for the gift of hope for the rest of us. 

                                    Linny
                                    Participant

                                      What wonderful news!!!! Congratulations!!!! And, thanks for the gift of hope for the rest of us. 

                                      Polymath
                                      Participant

                                        Hey Kim,

                                        What an awesome milestone, to get fired from your doctors.  As a fellow warrior from Hawaii, we know the special hardships that must be endured to simply see a specialist.  It requires a 5-hour plane ride, and thousands of dollars spent just to visit the doctor, and get a shot at living.  And living is what you are doing!  Congratulations and we hope you continue to be an inspiration on this board, giving everyone hope that the one treatment they need will finally be found, and we can beat back the beast.

                                        Aloha, Gary

                                        Polymath
                                        Participant

                                          Hey Kim,

                                          What an awesome milestone, to get fired from your doctors.  As a fellow warrior from Hawaii, we know the special hardships that must be endured to simply see a specialist.  It requires a 5-hour plane ride, and thousands of dollars spent just to visit the doctor, and get a shot at living.  And living is what you are doing!  Congratulations and we hope you continue to be an inspiration on this board, giving everyone hope that the one treatment they need will finally be found, and we can beat back the beast.

                                          Aloha, Gary

                                          Polymath
                                          Participant

                                            Hey Kim,

                                            What an awesome milestone, to get fired from your doctors.  As a fellow warrior from Hawaii, we know the special hardships that must be endured to simply see a specialist.  It requires a 5-hour plane ride, and thousands of dollars spent just to visit the doctor, and get a shot at living.  And living is what you are doing!  Congratulations and we hope you continue to be an inspiration on this board, giving everyone hope that the one treatment they need will finally be found, and we can beat back the beast.

                                            Aloha, Gary

                                            Julie in SoCal
                                            Participant

                                              Doing the happy dance with you!!  Can't be happier for you!

                                              Julie

                                              Julie in SoCal
                                              Participant

                                                Doing the happy dance with you!!  Can't be happier for you!

                                                Julie

                                                Julie in SoCal
                                                Participant

                                                  Doing the happy dance with you!!  Can't be happier for you!

                                                  Julie

                                                  Charlie S
                                                  Participant

                                                    Jeeze, Kim , I didn't think you would disclose all of the hot tub details.

                                                    Aren't you bound by some kind of HIPPa rules, or because you only treat animals, that does not apply to humans?  Smirk.

                                                    It is great that you are where you are; I know it has been a hard fought battle for you.

                                                    But if you would, just consider this:   fire us all they want, but we are the future because of what worked or did not work in the past , firing you is the shortcoming of cancer research , because it implies ,in my opinion ,you and (we) no longer matter..

                                                    This idea that IL2 people no longer matter in the eyes of an oncologist,  and to be dismissive of those who did it are no lomger  "worthy" of additional followup is a bunch of crap.

                                                    NOBODY keeps track of us and I think they should,

                                                    And I do agree, wr are drawing the curve,

                                                     

                                                    Cheerts,

                                                    Charlie S

                                                     

                                                     

                                                     

                                                    Charlie S
                                                    Participant

                                                      Jeeze, Kim , I didn't think you would disclose all of the hot tub details.

                                                      Aren't you bound by some kind of HIPPa rules, or because you only treat animals, that does not apply to humans?  Smirk.

                                                      It is great that you are where you are; I know it has been a hard fought battle for you.

                                                      But if you would, just consider this:   fire us all they want, but we are the future because of what worked or did not work in the past , firing you is the shortcoming of cancer research , because it implies ,in my opinion ,you and (we) no longer matter..

                                                      This idea that IL2 people no longer matter in the eyes of an oncologist,  and to be dismissive of those who did it are no lomger  "worthy" of additional followup is a bunch of crap.

                                                      NOBODY keeps track of us and I think they should,

                                                      And I do agree, wr are drawing the curve,

                                                       

                                                      Cheerts,

                                                      Charlie S

                                                       

                                                       

                                                       

                                                      Charlie S
                                                      Participant

                                                        Jeeze, Kim , I didn't think you would disclose all of the hot tub details.

                                                        Aren't you bound by some kind of HIPPa rules, or because you only treat animals, that does not apply to humans?  Smirk.

                                                        It is great that you are where you are; I know it has been a hard fought battle for you.

                                                        But if you would, just consider this:   fire us all they want, but we are the future because of what worked or did not work in the past , firing you is the shortcoming of cancer research , because it implies ,in my opinion ,you and (we) no longer matter..

                                                        This idea that IL2 people no longer matter in the eyes of an oncologist,  and to be dismissive of those who did it are no lomger  "worthy" of additional followup is a bunch of crap.

                                                        NOBODY keeps track of us and I think they should,

                                                        And I do agree, wr are drawing the curve,

                                                         

                                                        Cheerts,

                                                        Charlie S

                                                         

                                                         

                                                         

                                                          Kim K
                                                          Participant

                                                            Actually I think we give the docs hope.  How many times have they fought the good fight with their patients only for them to be the case that never responds to anything.  I think we keep them going because every once and a while, we actually LIVE!

                                                            In the meantime I made some good $$$ doing all those surveys.  If I can make some damned cash outta the deal, WTF, I'll take it LOL!  

                                                            Those surveys need to know people like us exist.  I'm just glad I don't have to take any more meds unlike some of the other NED successes.  I can't imagine how people pay to stay alive.  The greatest crime I think is when there is a cure that you just can't afford, even with the drug companies assistance.  Every time I do one of those surveys I make sure to point that out.

                                                            What good is a miracle drug if it is priced way out of reach and will only bankrupt you and your family.

                                                            BTW – how's your peel coming along?  I had the softest baby bottom skin for the longest time after my treatment.

                                                            There is and always will be a place for IL-2.  It just scared the #&^%$! outta me to put myself through it.

                                                            At least for my docs, it was hard to get them to wean me off of follow ups.  I think it basically boiled down to the fact my insurance won't cover any more scans since I am NED.  I am glowing by now and by continuing, can increase my risk for radiation induced cancer.  I know my surgical onc. would probably be happy seeing me for life.  Same for the medical one.  It is just hard this far out to justify visiting them when there is nothing to see.

                                                            That being said, I know the monster is capable of sneaking out of it's prison at any time.  I respect my enemy and will sleep with one eye open.

                                                            Keep on kicking mel's A$$ Charlie.

                                                            Kim K
                                                            Participant

                                                              Actually I think we give the docs hope.  How many times have they fought the good fight with their patients only for them to be the case that never responds to anything.  I think we keep them going because every once and a while, we actually LIVE!

                                                              In the meantime I made some good $$$ doing all those surveys.  If I can make some damned cash outta the deal, WTF, I'll take it LOL!  

                                                              Those surveys need to know people like us exist.  I'm just glad I don't have to take any more meds unlike some of the other NED successes.  I can't imagine how people pay to stay alive.  The greatest crime I think is when there is a cure that you just can't afford, even with the drug companies assistance.  Every time I do one of those surveys I make sure to point that out.

                                                              What good is a miracle drug if it is priced way out of reach and will only bankrupt you and your family.

                                                              BTW – how's your peel coming along?  I had the softest baby bottom skin for the longest time after my treatment.

                                                              There is and always will be a place for IL-2.  It just scared the #&^%$! outta me to put myself through it.

                                                              At least for my docs, it was hard to get them to wean me off of follow ups.  I think it basically boiled down to the fact my insurance won't cover any more scans since I am NED.  I am glowing by now and by continuing, can increase my risk for radiation induced cancer.  I know my surgical onc. would probably be happy seeing me for life.  Same for the medical one.  It is just hard this far out to justify visiting them when there is nothing to see.

                                                              That being said, I know the monster is capable of sneaking out of it's prison at any time.  I respect my enemy and will sleep with one eye open.

                                                              Keep on kicking mel's A$$ Charlie.

                                                              Kim K
                                                              Participant

                                                                Actually I think we give the docs hope.  How many times have they fought the good fight with their patients only for them to be the case that never responds to anything.  I think we keep them going because every once and a while, we actually LIVE!

                                                                In the meantime I made some good $$$ doing all those surveys.  If I can make some damned cash outta the deal, WTF, I'll take it LOL!  

                                                                Those surveys need to know people like us exist.  I'm just glad I don't have to take any more meds unlike some of the other NED successes.  I can't imagine how people pay to stay alive.  The greatest crime I think is when there is a cure that you just can't afford, even with the drug companies assistance.  Every time I do one of those surveys I make sure to point that out.

                                                                What good is a miracle drug if it is priced way out of reach and will only bankrupt you and your family.

                                                                BTW – how's your peel coming along?  I had the softest baby bottom skin for the longest time after my treatment.

                                                                There is and always will be a place for IL-2.  It just scared the #&^%$! outta me to put myself through it.

                                                                At least for my docs, it was hard to get them to wean me off of follow ups.  I think it basically boiled down to the fact my insurance won't cover any more scans since I am NED.  I am glowing by now and by continuing, can increase my risk for radiation induced cancer.  I know my surgical onc. would probably be happy seeing me for life.  Same for the medical one.  It is just hard this far out to justify visiting them when there is nothing to see.

                                                                That being said, I know the monster is capable of sneaking out of it's prison at any time.  I respect my enemy and will sleep with one eye open.

                                                                Keep on kicking mel's A$$ Charlie.

                                                              jenny22
                                                              Participant

                                                                Hi Kim-

                                                                Congratulations on "being fired"…..and more importantly for hitting such a major milestone….

                                                                We love to read these types of posts!

                                                                Great inspiration for so many others.

                                                                 

                                                                All the best,

                                                                Jenny

                                                                jenny22
                                                                Participant

                                                                  Hi Kim-

                                                                  Congratulations on "being fired"…..and more importantly for hitting such a major milestone….

                                                                  We love to read these types of posts!

                                                                  Great inspiration for so many others.

                                                                   

                                                                  All the best,

                                                                  Jenny

                                                                  jenny22
                                                                  Participant

                                                                    Hi Kim-

                                                                    Congratulations on "being fired"…..and more importantly for hitting such a major milestone….

                                                                    We love to read these types of posts!

                                                                    Great inspiration for so many others.

                                                                     

                                                                    All the best,

                                                                    Jenny

                                                                    dodgedh2
                                                                    Participant

                                                                      Congrats! I'm just about a month away from my 8 year Stage IV NED anniversery. I was fired from my oncologist at about 5-1/2 years NED. Enjoying the best and the most anxious years since. Still leary about not having any monitors, but at least recently, I had some CT scans for kidney stones. They showed all clear for cancer still, so…..What a relief!

                                                                      dodgedh2
                                                                      Participant

                                                                        Congrats! I'm just about a month away from my 8 year Stage IV NED anniversery. I was fired from my oncologist at about 5-1/2 years NED. Enjoying the best and the most anxious years since. Still leary about not having any monitors, but at least recently, I had some CT scans for kidney stones. They showed all clear for cancer still, so…..What a relief!

                                                                        dodgedh2
                                                                        Participant

                                                                          Congrats! I'm just about a month away from my 8 year Stage IV NED anniversery. I was fired from my oncologist at about 5-1/2 years NED. Enjoying the best and the most anxious years since. Still leary about not having any monitors, but at least recently, I had some CT scans for kidney stones. They showed all clear for cancer still, so…..What a relief!

                                                                          BrianP
                                                                          Participant

                                                                            Congrats Kim.  I love cancer happy dances and breaking up with doctors for good reasons.  Thanks for sharing.

                                                                            Brian

                                                                            BrianP
                                                                            Participant

                                                                              Congrats Kim.  I love cancer happy dances and breaking up with doctors for good reasons.  Thanks for sharing.

                                                                              Brian

                                                                              BrianP
                                                                              Participant

                                                                                Congrats Kim.  I love cancer happy dances and breaking up with doctors for good reasons.  Thanks for sharing.

                                                                                Brian

                                                                                DZnDef
                                                                                Participant

                                                                                  Woo Hoo Kim!!  I'm so happy for you!  Six years is freaking awesome!  Please do keep checking in and reminding us what is possible.  Congrats!

                                                                                  DZnDef
                                                                                  Participant

                                                                                    Woo Hoo Kim!!  I'm so happy for you!  Six years is freaking awesome!  Please do keep checking in and reminding us what is possible.  Congrats!

                                                                                    DZnDef
                                                                                    Participant

                                                                                      Woo Hoo Kim!!  I'm so happy for you!  Six years is freaking awesome!  Please do keep checking in and reminding us what is possible.  Congrats!

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