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My husband is having symptoms and we are both really scared
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My husband is having symptoms and we are both really scared

› Forums › General Melanoma Community › My husband is having symptoms and we are both really scared

  • Post
    • November 21, 2010 at 9:13 pm
    Rebecca and Bob
    Participant

      We have had a good 16 month break from anything going on. The scans in mid October were clear but Bob has been having a burning sensation and stomach pains cramps again. When I called the doctor last week they said they would have seen something on the CTSCAN causing symptoms, but I've heard to many times that people with Intestinal mets that they go undetected..  Anyone who has had intestinal mets please feel free to add your thoughts.  I'm just praying it's anything else. I never thought I would pray so hard for the flu or a stomach virus.

      We have had a good 16 month break from anything going on. The scans in mid October were clear but Bob has been having a burning sensation and stomach pains cramps again. When I called the doctor last week they said they would have seen something on the CTSCAN causing symptoms, but I've heard to many times that people with Intestinal mets that they go undetected..  Anyone who has had intestinal mets please feel free to add your thoughts.  I'm just praying it's anything else. I never thought I would pray so hard for the flu or a stomach virus. Anyway, he is trying to get a scope scheduled or a PET. I know he's worried when he is actually calling the doctor himself.

      Looking for positive thoughts and prayers. I have been  thinking and praying that we were done with our turn with this disease. I thought maybe it was done after the IL-2 and surgery.

       

       

      Thanks for listening.

      Rebecca

       

    Viewing 11 reply threads
    • Replies
        • November 21, 2010 at 10:47 pm
        Fen
        Participant

           

          Rebecca – it absolutely could be something else. I don't have any experience with intestinal mets, but I know the fear of thinking "it's" back.  I hope you get an answer soon and keeping you both in my prayers.

          Fen

            • November 22, 2010 at 12:28 am
            Rebecca and Bob
            Participant

              Thanks Fen, I'm actually hoping it's an ulcer. I don't know other than mets what it could be.

              Rebecca

              • November 22, 2010 at 12:28 am
              Rebecca and Bob
              Participant

                Thanks Fen, I'm actually hoping it's an ulcer. I don't know other than mets what it could be.

                Rebecca

              • November 21, 2010 at 10:47 pm
              Fen
              Participant

                 

                Rebecca – it absolutely could be something else. I don't have any experience with intestinal mets, but I know the fear of thinking "it's" back.  I hope you get an answer soon and keeping you both in my prayers.

                Fen

                • November 21, 2010 at 11:02 pm
                A
                Participant

                  Could it be just heartburn? What exacty are the symptoms? It is pain or  "sensation", constant or intermittent? Where is pain located? Does he have dark stool, nausea or something else?

                    • November 22, 2010 at 12:26 am
                    Rebecca and Bob
                    Participant

                      He has a burning sensation and cramping in his stomach, a little nausea. No bleeding,no blood in stool and it's been going on since a week after our good scan results. At first he thought it was just a virus but it's not gone away after now 3 weeks. He's very upset and he believes it's back and that's what worries me the most.

                      Rebecca

                      • November 22, 2010 at 12:26 am
                      Rebecca and Bob
                      Participant

                        He has a burning sensation and cramping in his stomach, a little nausea. No bleeding,no blood in stool and it's been going on since a week after our good scan results. At first he thought it was just a virus but it's not gone away after now 3 weeks. He's very upset and he believes it's back and that's what worries me the most.

                        Rebecca

                      • November 21, 2010 at 11:02 pm
                      A
                      Participant

                        Could it be just heartburn? What exacty are the symptoms? It is pain or  "sensation", constant or intermittent? Where is pain located? Does he have dark stool, nausea or something else?

                        • November 22, 2010 at 3:03 am
                        King
                        Participant

                          Rebecca,

                           

                          I have no experience with intestinal mets.  I am sorry that you are going through the worry.  I think Bob has had intestinal mets before and if these symptoms are similar to what he experienced before then I understand his concern.  Burning and cramping are such broad symptoms that it could be just about anything.  He could have adhesions  (internal scar tissue) from his previous surgery that is causing the discomfort.

                          However, I support you both in doing the right thing by finding out the cause.  Intestinal mets can be difficult to detect on scans.

                           

                          Keep us posted.  Meanwhile positive thoughts and prayers are going your way.

                           

                          Stay Strong

                          King

                          Stage IV 7/05 Liver mets

                          • November 22, 2010 at 3:03 am
                          King
                          Participant

                            Rebecca,

                             

                            I have no experience with intestinal mets.  I am sorry that you are going through the worry.  I think Bob has had intestinal mets before and if these symptoms are similar to what he experienced before then I understand his concern.  Burning and cramping are such broad symptoms that it could be just about anything.  He could have adhesions  (internal scar tissue) from his previous surgery that is causing the discomfort.

                            However, I support you both in doing the right thing by finding out the cause.  Intestinal mets can be difficult to detect on scans.

                             

                            Keep us posted.  Meanwhile positive thoughts and prayers are going your way.

                             

                            Stay Strong

                            King

                            Stage IV 7/05 Liver mets

                            • November 22, 2010 at 4:04 am
                            Pekoe
                            Participant

                              Rebecca, I haven't had intestinal mets, but I have had problems with burning and severe stomach aches for the past 7 or 8 months, plus a fair amount of nausea.  My oncologist ordered an endoscopy for me after my hemoglobin dropped (I went from mildly anemic to just above moderate anemic).  The endoscopy showed that I had gastritis (the beginning of an ulcer), but also a 2 cm nodule.  I had just had a clean PET/CT scan, but they sent me on for an endoscopic ultrasound to be safe.  I am now waiting for the results of the biopsy, but right after the procedure the doc told me it looked like a build-up of scar tissue from severe gastritis, and didn't think it was anything to worry about. 

                              Can Bob get an ultrasound?  The equipment is apparently very expensive – there are only 4 places in the Phoenix, AZ, area that have them.  But all the doctors I spoke with were emphatic that I should not rely on the PET/CT scan and go ahead with the ultrasound. 

                              By the way, they put me on Nexxium right after the first endoscopy and my symptoms have definitely calmed down.  Anyway, healing energy is definitely heading your way.

                               

                              Vera

                               

                               

                              • November 22, 2010 at 4:04 am
                              Pekoe
                              Participant

                                Rebecca, I haven't had intestinal mets, but I have had problems with burning and severe stomach aches for the past 7 or 8 months, plus a fair amount of nausea.  My oncologist ordered an endoscopy for me after my hemoglobin dropped (I went from mildly anemic to just above moderate anemic).  The endoscopy showed that I had gastritis (the beginning of an ulcer), but also a 2 cm nodule.  I had just had a clean PET/CT scan, but they sent me on for an endoscopic ultrasound to be safe.  I am now waiting for the results of the biopsy, but right after the procedure the doc told me it looked like a build-up of scar tissue from severe gastritis, and didn't think it was anything to worry about. 

                                Can Bob get an ultrasound?  The equipment is apparently very expensive – there are only 4 places in the Phoenix, AZ, area that have them.  But all the doctors I spoke with were emphatic that I should not rely on the PET/CT scan and go ahead with the ultrasound. 

                                By the way, they put me on Nexxium right after the first endoscopy and my symptoms have definitely calmed down.  Anyway, healing energy is definitely heading your way.

                                 

                                Vera

                                 

                                 

                                • November 22, 2010 at 12:50 pm
                                Sherron
                                Participant

                                  Rebecca – please run to the doctor….this is what Jim had…He just thought stomach issues, flu, virus….well, they just cut out one section, he was within 36 hours of death….the bad news has at least 13 more….this beast is awful.  The did an x-ray saw the hole, and decided there was not even time for the scan…so did the emergency surgery.

                                  Take Care,

                                  Sherron

                                  • November 22, 2010 at 12:50 pm
                                  Sherron
                                  Participant

                                    Rebecca – please run to the doctor….this is what Jim had…He just thought stomach issues, flu, virus….well, they just cut out one section, he was within 36 hours of death….the bad news has at least 13 more….this beast is awful.  The did an x-ray saw the hole, and decided there was not even time for the scan…so did the emergency surgery.

                                    Take Care,

                                    Sherron

                                    • November 22, 2010 at 3:28 pm
                                    Rebecca and Bob
                                    Participant

                                      Update – NIH doesn't seemed concerned and says they will fit in a PET SCAN in January. I think they are great in many ways, but this is upsetting.  We called our local GP and he got Bob in with a GI specialist for a scope consult today. So that is good news.  We are really hoping to get the scope in before the holiday, especially with Bob's history – I know that's asking for a lot but I do not want to end up rushing my husband to our local hospital, that would be scary and I don't want to drive on an emergency basis all the way to Bethesda. If something is going on we want to deal with it now.

                                       I'm praying for an ulcer or gastritis. The one symptom that is different from before which my husband mentioned is reflux. All other symptoms unfornuately are the same as when he found out about the intestinal mets or obtruction from mets before.

                                      Thanks everyone for your support!.  and as always your support  and  a a

                                      Rebecca

                                       

                                       

                                      • November 22, 2010 at 3:28 pm
                                      Rebecca and Bob
                                      Participant

                                        Update – NIH doesn't seemed concerned and says they will fit in a PET SCAN in January. I think they are great in many ways, but this is upsetting.  We called our local GP and he got Bob in with a GI specialist for a scope consult today. So that is good news.  We are really hoping to get the scope in before the holiday, especially with Bob's history – I know that's asking for a lot but I do not want to end up rushing my husband to our local hospital, that would be scary and I don't want to drive on an emergency basis all the way to Bethesda. If something is going on we want to deal with it now.

                                         I'm praying for an ulcer or gastritis. The one symptom that is different from before which my husband mentioned is reflux. All other symptoms unfornuately are the same as when he found out about the intestinal mets or obtruction from mets before.

                                        Thanks everyone for your support!.  and as always your support  and  a a

                                        Rebecca

                                         

                                         

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