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Mum about to start chemo then Yervoy…

Forums General Melanoma Community Mum about to start chemo then Yervoy…

  • Post
    Ashykay
    Participant

      Just thought I'd provide an update on Mum…and ask for some feedback in the Yervoy area of things.

      A couple of weeks ago, my Mum got the ok to start on chemo and then Yervoy with respect to her tumour/s. The doctor said though that she couldn't start until start of October as their lab was closed for renovations, so they couldn't formulate the vaccine for her. This has been an incredibly frustrating and almost ridiculous process. I think it's bull that we have had to wait 4 weeks to get this done just because they are renovating their lab.

      Just thought I'd provide an update on Mum…and ask for some feedback in the Yervoy area of things.

      A couple of weeks ago, my Mum got the ok to start on chemo and then Yervoy with respect to her tumour/s. The doctor said though that she couldn't start until start of October as their lab was closed for renovations, so they couldn't formulate the vaccine for her. This has been an incredibly frustrating and almost ridiculous process. I think it's bull that we have had to wait 4 weeks to get this done just because they are renovating their lab.

      Mum has had her pain coming back…last night she was really bad. She will probably be back on morphine soon too (she was on it when intiially diagnosed, but then when she had radiation, although it didn't shwo any progress with shrinking the tumour, her pain signifciantly reduced). I'm really worried that because of these doctors who play with people's lives, this whole Yervoy thing might have come too late. She hasn't had any scans in about a month or two either…so we don't know whether it's growing or what.

      I just wanted some feedback as to whether anyone has been in this pain before they start Yervoy and have found that Yervoy has improved it??

      Sorry for my angry comments, but right now I am a really worried and scared daughter…and unfrotunately I don't think I could forgive the medical profession for their "renovations" if this has come too late. Need some reassurance…. 🙁

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    • Replies
        FormerCaregiver
        Participant

          Ashley, thanks for the update on your mum. I think that it is irresponsible for the doctor to delay treatment until October.

          I certainly agree with your concerns about this situation, and think that it would be wise to find an oncologist who can treat her promptly. I assume that you are still in Brisbane. However, your mum might need to go to Sydney or Melbourne to obtain appropriate treatment. Have you considered how far she is willing to travel?

          Yervoy can certainly shrink tumours and may improve symptoms, but it is almost impossible to predict how well any individual will respond to it. As I might have mentioned before, surgery (if possible) is the preferred option when dealing with a tumour that is causing pain or other problems. Therefore, it is preferred that a surgical oncologist be consulted in addition to a medical oncologist.

          Hope this helps.

          Frank from Australia

          FormerCaregiver
          Participant

            Ashley, thanks for the update on your mum. I think that it is irresponsible for the doctor to delay treatment until October.

            I certainly agree with your concerns about this situation, and think that it would be wise to find an oncologist who can treat her promptly. I assume that you are still in Brisbane. However, your mum might need to go to Sydney or Melbourne to obtain appropriate treatment. Have you considered how far she is willing to travel?

            Yervoy can certainly shrink tumours and may improve symptoms, but it is almost impossible to predict how well any individual will respond to it. As I might have mentioned before, surgery (if possible) is the preferred option when dealing with a tumour that is causing pain or other problems. Therefore, it is preferred that a surgical oncologist be consulted in addition to a medical oncologist.

            Hope this helps.

            Frank from Australia

            Hereiam
            Participant

              Hi,

              I am very sorry to hear that your mother is not receiving the best possible treatment! I agree, that you should probably seek for other options concerning the doctors. Hopefully there are enough oncologists available close to you (or rather close) which would take your mother`s disease more seriously!

              Wishing all the success in finding a proper place and people who would do the best they can!

              Hereiam
              Participant

                Hi,

                I am very sorry to hear that your mother is not receiving the best possible treatment! I agree, that you should probably seek for other options concerning the doctors. Hopefully there are enough oncologists available close to you (or rather close) which would take your mother`s disease more seriously!

                Wishing all the success in finding a proper place and people who would do the best they can!

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