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mucosal melanoma recently met to liver, yervoy?
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mucosal melanoma recently met to liver, yervoy?

› Forums › Mucosal Melanoma Community › mucosal melanoma recently met to liver, yervoy?

  • Post
    • September 23, 2012 at 3:57 pm
    madeclaire
    Participant

      Im facing the difficult decision to begin treatment as a stage !V with mets to the liver.  My results for molecular testing will not be in for a week and I've already waited 6 weeks due to a problem with the first tissue sample sent to the lab.  I'm about to begin on yervoy since everything I've read indicates this could reinforce other drugs I may be eligible for should I have a mutation.  Anyone out there that can tell me realistically what I can expect everyday life to be on Yervoy?  I'll be receiving 4 doses over the next 12 weeks.

      Im facing the difficult decision to begin treatment as a stage !V with mets to the liver.  My results for molecular testing will not be in for a week and I've already waited 6 weeks due to a problem with the first tissue sample sent to the lab.  I'm about to begin on yervoy since everything I've read indicates this could reinforce other drugs I may be eligible for should I have a mutation.  Anyone out there that can tell me realistically what I can expect everyday life to be on Yervoy?  I'll be receiving 4 doses over the next 12 weeks.

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    • Replies
        • September 25, 2012 at 2:57 pm
        Lucassi
        Participant

          My husband Mike was treated with Yervoy earlier this year.  He received all four treatments and had no side effects other than being tired.  The treatment did not interfere with his daily routine.  I know there are many others on this board that were not so lucky and some even had to stop treatment after one or two doses.  I believe there is no way to predict your individual response.  I just wanted to let you know that it is possible you will tolerate the treatment well and you wont have any side effects.

          Good luck!

          Sigrid

            • September 25, 2012 at 6:39 pm
            madeclaire
            Participant

              Thank you for your encouragement,Singrid.  I'm still on the fence and trying to find an anti pd1 trial for which I would qualify since this I believe may be less toxic.  I hope you and your husband are doing well.

               

              Madeline

              • September 25, 2012 at 6:39 pm
              madeclaire
              Participant

                Thank you for your encouragement,Singrid.  I'm still on the fence and trying to find an anti pd1 trial for which I would qualify since this I believe may be less toxic.  I hope you and your husband are doing well.

                 

                Madeline

                • September 25, 2012 at 6:39 pm
                madeclaire
                Participant

                  Thank you for your encouragement,Singrid.  I'm still on the fence and trying to find an anti pd1 trial for which I would qualify since this I believe may be less toxic.  I hope you and your husband are doing well.

                   

                  Madeline

                • September 25, 2012 at 2:57 pm
                Lucassi
                Participant

                  My husband Mike was treated with Yervoy earlier this year.  He received all four treatments and had no side effects other than being tired.  The treatment did not interfere with his daily routine.  I know there are many others on this board that were not so lucky and some even had to stop treatment after one or two doses.  I believe there is no way to predict your individual response.  I just wanted to let you know that it is possible you will tolerate the treatment well and you wont have any side effects.

                  Good luck!

                  Sigrid

                  • September 25, 2012 at 2:57 pm
                  Lucassi
                  Participant

                    My husband Mike was treated with Yervoy earlier this year.  He received all four treatments and had no side effects other than being tired.  The treatment did not interfere with his daily routine.  I know there are many others on this board that were not so lucky and some even had to stop treatment after one or two doses.  I believe there is no way to predict your individual response.  I just wanted to let you know that it is possible you will tolerate the treatment well and you wont have any side effects.

                    Good luck!

                    Sigrid

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