more mel

Boot,

I'm sorry this was there…but I'm glad they found it. Praying mel gets taken care of so you can spend some time with ned. So, I take it that your treatment is now on hold? That's how I'm reading you, so let me know if that's wrong.

Lord, in Your mercy, remember Boots here and open doors for her to kick melanoma's butt. Bless her at this time, hold her, and use her emotions in ways that will help her and help others who battle. Thank You. Amen.

Fight on 2B! You ARE 2B!

Grace and peace,

Carol

Boot,

I'm sorry this was there…but I'm glad they found it. Praying mel gets taken care of so you can spend some time with ned. So, I take it that your treatment is now on hold? That's how I'm reading you, so let me know if that's wrong.

Lord, in Your mercy, remember Boots here and open doors for her to kick melanoma's butt. Bless her at this time, hold her, and use her emotions in ways that will help her and help others who battle. Thank You. Amen.

Fight on 2B! You ARE 2B!

Grace and peace,

Carol

Please keep us posted on dates so we can send you positive thoughts and prayers! 

Robert

Please keep us posted on dates so we can send you positive thoughts and prayers! 

Robert

Sorry to read that they have found more mel. It is probably localised, as your last PET
scan was on 17 May. Surgery and radiation are good recommendations.

Best wishes

Frank from Australia

Sorry to read that they have found more mel. It is probably localised, as your last PET
scan was on 17 May. Surgery and radiation are good recommendations.

Best wishes

Frank from Australia

Not sure I understand why they want to do the surgery and local radiation and then the PET scan… wouldn't their game plan change if you were already systemic? Plus, don't they want to make sure they get all the cancer out? 

One of Don's problems, although his situation was different because we didn't know he had the cancer prior to the biopsy, was that there were infected lymph nodes further into his shoulder that were not removed at the time of surgery. 

I just don't like the idea of them going back in for more surgery and they don't know 100% they're getting all the infected nodes out. If your docs have used the word "aggressive" to describe your mel (and I thought I read somewhere that you had said that), I wouldn't wait to get the PET scan. 

Boots, feel free to use my husband as an example when presenting your case: he didn't get a PET scan prior to biopsy (insurance wouldn't pay, but whatever, they don't need to know that part) and infected nodes got missed. April 6th scan showed only infected nodes in shoulder. Our doc at that time wanted us to wait 3 weeks between scans (a decision we didn't approve of because she said Don had a high risk of having aggressive mel); we waited. His April 29th PET scan showed (quoted from report):

Shoulder: Intensely avid FDG right axillary and right subpectoral lymphadenopathy. Largest 3.3×3.2cm right subpectoral. (This was after his lymphectomy)

Lungs: .5cm subpleural nodule right upper lobe, .4cm nodule along right major fissure.

Liver: Numerous scattered foci of FDG uptake both lobes of liver. (This has later been shown to be innumerable small mets in his liver)

Bones: Multifocal FDG avid bone metastases, left humerus, left ilium, left femur, right and left posterior ischium, right acetabulum, sacrum, spinous process of L5, vertebral bodies of L2, L3, L4 and left 7th rib, manubrium and body of the sternum.

This is not to scare you, Boots, but rather to say to not necessarily just take the doctor's  word for everything. Question it, and if you don't like the answers you get, say so. They are your doctors, but you are in the driver's seat.

I don't want what is happening to Don now to happen to you, too. 

Michelle, wife of Don, Stage IV

Not sure I understand why they want to do the surgery and local radiation and then the PET scan… wouldn't their game plan change if you were already systemic? Plus, don't they want to make sure they get all the cancer out? 

One of Don's problems, although his situation was different because we didn't know he had the cancer prior to the biopsy, was that there were infected lymph nodes further into his shoulder that were not removed at the time of surgery. 

I just don't like the idea of them going back in for more surgery and they don't know 100% they're getting all the infected nodes out. If your docs have used the word "aggressive" to describe your mel (and I thought I read somewhere that you had said that), I wouldn't wait to get the PET scan. 

Boots, feel free to use my husband as an example when presenting your case: he didn't get a PET scan prior to biopsy (insurance wouldn't pay, but whatever, they don't need to know that part) and infected nodes got missed. April 6th scan showed only infected nodes in shoulder. Our doc at that time wanted us to wait 3 weeks between scans (a decision we didn't approve of because she said Don had a high risk of having aggressive mel); we waited. His April 29th PET scan showed (quoted from report):

Shoulder: Intensely avid FDG right axillary and right subpectoral lymphadenopathy. Largest 3.3×3.2cm right subpectoral. (This was after his lymphectomy)

Lungs: .5cm subpleural nodule right upper lobe, .4cm nodule along right major fissure.

Liver: Numerous scattered foci of FDG uptake both lobes of liver. (This has later been shown to be innumerable small mets in his liver)

Bones: Multifocal FDG avid bone metastases, left humerus, left ilium, left femur, right and left posterior ischium, right acetabulum, sacrum, spinous process of L5, vertebral bodies of L2, L3, L4 and left 7th rib, manubrium and body of the sternum.

This is not to scare you, Boots, but rather to say to not necessarily just take the doctor's  word for everything. Question it, and if you don't like the answers you get, say so. They are your doctors, but you are in the driver's seat.

I don't want what is happening to Don now to happen to you, too. 

Michelle, wife of Don, Stage IV