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MM Tonsil!

Forums General Melanoma Community MM Tonsil!

  • Post
    cheryl brodersen
    Participant

    I was on this bb in the spring when my husband, Steve's scan showed a lit up right tonsil. Even though there are only about 30 cases of MM going to the tonsil, his was indeed metastatic. Just so everyone knows, it can happen so don't assume it's an infection (as we first did) just because it is so rare. And a tonsillectomy after 50 is NOT FUN. Good luck to all!

    I was on this bb in the spring when my husband, Steve's scan showed a lit up right tonsil. Even though there are only about 30 cases of MM going to the tonsil, his was indeed metastatic. Just so everyone knows, it can happen so don't assume it's an infection (as we first did) just because it is so rare. And a tonsillectomy after 50 is NOT FUN. Good luck to all!

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  • Replies
      LynnLuc
      Participant

      You know it really itsn't surprising that it was found in the tonsil given that it is a lymph node.

      Hope all isgoing well!! Had a tonsillectomy when I was in my mid 20's and it wasn't easy then either!!

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      LynnLuc
      Participant

      You know it really itsn't surprising that it was found in the tonsil given that it is a lymph node.

      Hope all isgoing well!! Had a tonsillectomy when I was in my mid 20's and it wasn't easy then either!!

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        LynnLuc
        Participant

        PS here is an interesting article on tonsils and malignant Tumors   http://emedicine.medscape.com/article/848034-overview

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        LynnLuc
        Participant

        PS here is an interesting article on tonsils and malignant Tumors   http://emedicine.medscape.com/article/848034-overview

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        cheryl brodersen
        Participant

        Thank you both for your reply. Both of Steve's doctor's went batty when it was found to be metastatic–and these guys are heavy hitters. Dr. Hersh of the AZCC said in his 40 years as a melanoma doc, he has seen fewer than five cases of tonsilar MM. But, you're right, it is a lymph node!

        Thanks again. Best of luck to you both.

        Cheryl

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        cheryl brodersen
        Participant

        Thank you both for your reply. Both of Steve's doctor's went batty when it was found to be metastatic–and these guys are heavy hitters. Dr. Hersh of the AZCC said in his 40 years as a melanoma doc, he has seen fewer than five cases of tonsilar MM. But, you're right, it is a lymph node!

        Thanks again. Best of luck to you both.

        Cheryl

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        Becky
        Participant

        I have learned that there is no rhyme or reason when it comes to melanoma. My 21 yr old sons primary was on the tip of his tongue…none of the doctors expected it to come back as anything, much less melanoma!  Oh and tongue surgery no piece of cake either, although the surgeon did a great job and besides some speech problems (subtle but I'm a speech therapist so I hear it) you would never know.

        Cheryl I was reading a bit of your blog…raising 5 kids, Phd classes and being there for your hubby…wow!

        keep fighting

        Becky

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        cheryl brodersen
        Participant

        Becky,

        Wow, tip of the tongue? That takes the cake, I'm afraid. How is he doing now? I cannot even imagine one of my children being sick. Honestly.

        And you are an SLP? I now have a minor in speech and hearing and almost went that route; it's fascinating work and study.

        Thanks for checking out my blog. I started it as a way to record my life through all of this–and not just the cancer, because life has a way of going on despite cancer, but as a permanent record that someday maybe his kids would want to read parts of. It's so huge now, probably close to 200K words. Crazy, but it keeps me sane!

        Thanks for the reply. Stay in touch!

        Cheryl

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        Becky
        Participant

        Cheryl

        Yes I'm an SLP, working in an elementary school.

        Ben is doing well for now. He finished a year of interferon in August, graduated from college in December…I of course am in a constant state of worry about him.

        I bookmarked your blog so I can read more!

        Becky

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        Becky
        Participant

        Cheryl

        Yes I'm an SLP, working in an elementary school.

        Ben is doing well for now. He finished a year of interferon in August, graduated from college in December…I of course am in a constant state of worry about him.

        I bookmarked your blog so I can read more!

        Becky

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        cheryl brodersen
        Participant

        Becky,

        Wow, tip of the tongue? That takes the cake, I'm afraid. How is he doing now? I cannot even imagine one of my children being sick. Honestly.

        And you are an SLP? I now have a minor in speech and hearing and almost went that route; it's fascinating work and study.

        Thanks for checking out my blog. I started it as a way to record my life through all of this–and not just the cancer, because life has a way of going on despite cancer, but as a permanent record that someday maybe his kids would want to read parts of. It's so huge now, probably close to 200K words. Crazy, but it keeps me sane!

        Thanks for the reply. Stay in touch!

        Cheryl

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        Becky
        Participant

        I have learned that there is no rhyme or reason when it comes to melanoma. My 21 yr old sons primary was on the tip of his tongue…none of the doctors expected it to come back as anything, much less melanoma!  Oh and tongue surgery no piece of cake either, although the surgeon did a great job and besides some speech problems (subtle but I'm a speech therapist so I hear it) you would never know.

        Cheryl I was reading a bit of your blog…raising 5 kids, Phd classes and being there for your hubby…wow!

        keep fighting

        Becky

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      JerryfromFauq
      Participant

      Get tumor tissue tested for c-kit.  Any local lab can run the initial c-kit oncoprotein stain test.  If it is positive for the overexpression of this protein then tumor tissue will need to be provided a specialized lab to determine which c-kit DNA mutation may be in the tumor.  There are several targeted drugs that may be successful if ones tumors fall into this catagory.  Univeersity in Oregon developed the procedure for this test.

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      JerryfromFauq
      Participant

      Get tumor tissue tested for c-kit.  Any local lab can run the initial c-kit oncoprotein stain test.  If it is positive for the overexpression of this protein then tumor tissue will need to be provided a specialized lab to determine which c-kit DNA mutation may be in the tumor.  There are several targeted drugs that may be successful if ones tumors fall into this catagory.  Univeersity in Oregon developed the procedure for this test.

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