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MK Question
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MK Question

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  • Post
    • October 29, 2014 at 3:08 am
    Lisa – Aust
    Participant

      Hi Everyone,

      Just looking for some info/experiences/evidence!

      My husband Craig has been on MK-3475 for around a year now and has luckily had a complete response.

      His oncologist has raised the possibility of him coming off the drug, monitoring and re-introducing if he has a reoccurance.

      At this stage it is just an option he has offered (with permission from the drug company), giving us some anecdotal evidence of a few people coming off and continuing to be stable/remain clear (He mentioned mainly people who have come off due to side effects etc, so the discovery of the ongoing response has actually been incidental). Theoretically he is thinking that perhaps the drug has 'done its job' – but obviously it hasnt been around long enough to really make a statement like that.

      Does anyone know of any evidence out there/own experiences etc regarding this? 

      If we went ahead, I think my hubby will be the first person in our location (Perth, Australia) to go down this path. At this stage, I am not sure if we want him being the guinea pig!

      Thanks,

      Lisa

    Viewing 2 reply threads
    • Replies
        • October 29, 2014 at 1:37 pm
        Owl
        Participant

          Thanks, Lisa, for bringing up this issue. I assume there will be a lot of people facing this one day. I am curious what people will reply! Jenny

          • October 29, 2014 at 1:37 pm
          Owl
          Participant

            Thanks, Lisa, for bringing up this issue. I assume there will be a lot of people facing this one day. I am curious what people will reply! Jenny

            • October 29, 2014 at 1:37 pm
            Owl
            Participant

              Thanks, Lisa, for bringing up this issue. I assume there will be a lot of people facing this one day. I am curious what people will reply! Jenny

          Viewing 2 reply threads
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