MRF-Logo2019-Horizontal-RGB
Merck PD1 #13 and 36 week scans
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Merck PD1 #13 and 36 week scans

› Forums › General Melanoma Community › Merck PD1 #13 and 36 week scans

  • Post
    • October 8, 2013 at 3:13 pm
    Erinmay22
    Participant

      I know I've been slow on updating. Where did the summer go?  I started Merck's anti-pd1 in Jan of this year.  I started to get some shrinkage prior to starting (late responder to ipi?).  I've been on Merck's low dose now for 36+ weeks.  My scans continue to show small tumors getting smaller and nothing new.  (a year ago I had a large tumor removed from my small intestine but they couldn't remove the tumors in the lymph nodes surrounding it).  

      This seems to be a great drug so far with minimal side effects.  Fatigue sits in sometime (ok, maybe it's self inflicted?) but so far so good!  

      Just wanted to share and provide some hope!  

      Erin

    Viewing 20 reply threads
    • Replies
        • October 8, 2013 at 6:13 pm
        BrianP
        Participant

          Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

          Brian

          • October 8, 2013 at 6:13 pm
          BrianP
          Participant

            Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

            Brian

            • October 8, 2013 at 6:13 pm
            BrianP
            Participant

              Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

              Brian

              • October 8, 2013 at 9:45 pm
              JoshF
              Participant

                Erin-

                 

                This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

                 

                Josh

                • October 8, 2013 at 9:45 pm
                JoshF
                Participant

                  Erin-

                   

                  This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

                   

                  Josh

                  • October 8, 2013 at 9:45 pm
                  JoshF
                  Participant

                    Erin-

                     

                    This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

                     

                    Josh

                    • October 8, 2013 at 9:59 pm
                    aldakota22
                    Participant

                      Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

                       

                      '

                      • October 8, 2013 at 9:59 pm
                      aldakota22
                      Participant

                        Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

                         

                        '

                        • October 8, 2013 at 9:59 pm
                        aldakota22
                        Participant

                          Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

                           

                          '

                          • October 8, 2013 at 10:16 pm
                          Hstevens0072
                          Participant
                            Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
                            Holly
                            • October 8, 2013 at 10:16 pm
                            Hstevens0072
                            Participant
                              Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
                              Holly
                                • October 9, 2013 at 1:28 am
                                Erinmay22
                                Participant

                                  Thanks Everyone!  

                                  • October 9, 2013 at 1:28 am
                                  Erinmay22
                                  Participant

                                    Thanks Everyone!  

                                    • October 9, 2013 at 1:28 am
                                    Erinmay22
                                    Participant

                                      Thanks Everyone!  

                                    • October 8, 2013 at 10:16 pm
                                    Hstevens0072
                                    Participant
                                      Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
                                      Holly
                                      • October 10, 2013 at 12:07 am
                                      Tina D
                                      Participant

                                        YAY! Very good news to see 🙂        

                                        Tina

                                        • October 10, 2013 at 12:07 am
                                        Tina D
                                        Participant

                                          YAY! Very good news to see 🙂        

                                          Tina

                                          • October 10, 2013 at 12:07 am
                                          Tina D
                                          Participant

                                            YAY! Very good news to see 🙂        

                                            Tina

                                            • October 11, 2013 at 2:34 am
                                            Jwfd808
                                            Participant
                                              Great news glad to hear it’s working so well
                                              • October 11, 2013 at 2:34 am
                                              Jwfd808
                                              Participant
                                                Great news glad to hear it’s working so well
                                                  • October 11, 2013 at 6:08 pm
                                                  Erinmay22
                                                  Participant

                                                    Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

                                                    • October 11, 2013 at 6:08 pm
                                                    Erinmay22
                                                    Participant

                                                      Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

                                                      • October 13, 2013 at 4:15 am
                                                      JerryfromFauq
                                                      Participant

                                                        Love it Gal!

                                                        • October 13, 2013 at 4:15 am
                                                        JerryfromFauq
                                                        Participant

                                                          Love it Gal!

                                                          • October 13, 2013 at 4:15 am
                                                          JerryfromFauq
                                                          Participant

                                                            Love it Gal!

                                                            • October 11, 2013 at 6:08 pm
                                                            Erinmay22
                                                            Participant

                                                              Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

                                                            • October 11, 2013 at 2:34 am
                                                            Jwfd808
                                                            Participant
                                                              Great news glad to hear it’s working so well
                                                              • October 13, 2013 at 9:43 pm
                                                              lbc
                                                              Participant

                                                                I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

                                                                LB

                                                                • October 13, 2013 at 9:43 pm
                                                                lbc
                                                                Participant

                                                                  I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

                                                                  LB

                                                                    • October 15, 2013 at 2:37 pm
                                                                    Erinmay22
                                                                    Participant

                                                                      LB – 

                                                                      I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

                                                                      I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

                                                                      Erin

                                                                      • October 15, 2013 at 2:37 pm
                                                                      Erinmay22
                                                                      Participant

                                                                        LB – 

                                                                        I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

                                                                        I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

                                                                        Erin

                                                                        • October 15, 2013 at 2:37 pm
                                                                        Erinmay22
                                                                        Participant

                                                                          LB – 

                                                                          I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

                                                                          I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

                                                                          Erin

                                                                        • October 13, 2013 at 9:43 pm
                                                                        lbc
                                                                        Participant

                                                                          I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

                                                                          LB

                                                                      Viewing 20 reply threads
                                                                      • You must be logged in to reply to this topic.
                                                                      About the MRF Patient Forum

                                                                      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                      Popular Topics