Merck PD1 #13 and 36 week scans
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Merck PD1 #13 and 36 week scans

› Forums › General Melanoma Community › Merck PD1 #13 and 36 week scans

  • Post
    • October 8, 2013 at 3:13 pm
    Erinmay22
    Participant

    I know I've been slow on updating. Where did the summer go?  I started Merck's anti-pd1 in Jan of this year.  I started to get some shrinkage prior to starting (late responder to ipi?).  I've been on Merck's low dose now for 36+ weeks.  My scans continue to show small tumors getting smaller and nothing new.  (a year ago I had a large tumor removed from my small intestine but they couldn't remove the tumors in the lymph nodes surrounding it).  

    This seems to be a great drug so far with minimal side effects.  Fatigue sits in sometime (ok, maybe it's self inflicted?) but so far so good!  

    Just wanted to share and provide some hope!  

    Erin

Viewing 20 reply threads
  • Replies
      • October 8, 2013 at 6:13 pm
      BrianP
      Participant

      Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

      Brian

      • October 8, 2013 at 6:13 pm
      BrianP
      Participant

      Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

      Brian

      • October 8, 2013 at 6:13 pm
      BrianP
      Participant

      Great news Erin!  Thanks for the update.  As I write this post I am getting my 5th infusion of nivolumab.  First scans coming up in a couple weeks then I start IPI.  Very encouraging to hear reports like yours.

      Brian

      • October 8, 2013 at 9:45 pm
      JoshF
      Participant

      Erin-

       

      This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

       

      Josh

      • October 8, 2013 at 9:45 pm
      JoshF
      Participant

      Erin-

       

      This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

       

      Josh

      • October 8, 2013 at 9:45 pm
      JoshF
      Participant

      Erin-

       

      This great news and I happy to hear you're doing well. Hopefully next scans show nothing!!! Wishing you all the best!!!

       

      Josh

      • October 8, 2013 at 9:59 pm
      aldakota22
      Participant

      Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

       

      '

      • October 8, 2013 at 9:59 pm
      aldakota22
      Participant

      Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

       

      '

      • October 8, 2013 at 9:59 pm
      aldakota22
      Participant

      Nice to read your post this afternoon.Was worried when haven't seen a post in a while.All in all you seem to be on working course of treatment.Glad your side effects are minimal.Rest when needed ,otherwise don't slow down.Praying for continued success.Beat the Beast.   Al

       

      '

      • October 8, 2013 at 10:16 pm
      Hstevens0072
      Participant
      Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
      Holly
      • October 8, 2013 at 10:16 pm
      Hstevens0072
      Participant
      Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
      Holly
        • October 9, 2013 at 1:28 am
        Erinmay22
        Participant

        Thanks Everyone!  

        • October 9, 2013 at 1:28 am
        Erinmay22
        Participant

        Thanks Everyone!  

        • October 9, 2013 at 1:28 am
        Erinmay22
        Participant

        Thanks Everyone!  

      • October 8, 2013 at 10:16 pm
      Hstevens0072
      Participant
      Wonderful news! I just had my first set of scans and had great results too. I wish us continued success!
      Holly
      • October 10, 2013 at 12:07 am
      Tina D
      Participant

      YAY! Very good news to see 🙂        

      Tina

      • October 10, 2013 at 12:07 am
      Tina D
      Participant

      YAY! Very good news to see 🙂        

      Tina

      • October 10, 2013 at 12:07 am
      Tina D
      Participant

      YAY! Very good news to see 🙂        

      Tina

      • October 11, 2013 at 2:34 am
      Jwfd808
      Participant
      Great news glad to hear it’s working so well
        • October 11, 2013 at 6:08 pm
        Erinmay22
        Participant

        Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

        • October 13, 2013 at 4:15 am
        JerryfromFauq
        Participant

        Love it Gal!

        • October 13, 2013 at 4:15 am
        JerryfromFauq
        Participant

        Love it Gal!

        • October 13, 2013 at 4:15 am
        JerryfromFauq
        Participant

        Love it Gal!

        • October 11, 2013 at 6:08 pm
        Erinmay22
        Participant

        Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

        • October 11, 2013 at 6:08 pm
        Erinmay22
        Participant

        Thanks Everyone!  Yes, so far so good…  Amazing the advancements that have been made over the last few years.  

      • October 11, 2013 at 2:34 am
      Jwfd808
      Participant
      Great news glad to hear it’s working so well
      • October 11, 2013 at 2:34 am
      Jwfd808
      Participant
      Great news glad to hear it’s working so well
      • October 13, 2013 at 9:43 pm
      lbc
      Participant

      I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

      LB

        • October 15, 2013 at 2:37 pm
        Erinmay22
        Participant

        LB – 

        I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

        I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

        Erin

        • October 15, 2013 at 2:37 pm
        Erinmay22
        Participant

        LB – 

        I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

        I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

        Erin

        • October 15, 2013 at 2:37 pm
        Erinmay22
        Participant

        LB – 

        I can't say that I experienced any new tumors or current ones increasing.  Although I did Ipi prior to starting this and started to see results.  So hard to say if the results I'm seeing are from ipi or the pd1 or the combination of the 2.  

        I guess it's good you feel great and levels seem to be headed in the right direction.  Maybe these were tumors that were there before but are now just imflamed and then go away?  Did your doctor offer any thoughts? 

        Erin

      • October 13, 2013 at 9:43 pm
      lbc
      Participant

      I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

      LB

      • October 13, 2013 at 9:43 pm
      lbc
      Participant

      I have been on MK3475 for 14 weeks receiving 7 treatments.  I feel wonderful, my liver enzymes have decresed (LDH by 25%) but my tumors have multiplied and increased.   I believe that the scans are not truly  demonstrating what's going on inside of me.  I was wondering if anyone else has had this experience?

      LB

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