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Merck EAP PD1 pembro – is in Saint Louis now
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Merck EAP PD1 pembro – is in Saint Louis now

› Forums › General Melanoma Community › Merck EAP PD1 pembro – is in Saint Louis now

  • Post
    • August 3, 2014 at 4:06 pm
    arthurjedi007
    Participant

      Just thought I would mention Siteman in Saint Louis via Dr Linette has Merck's EAP PD1 pembroluminab if anyone needs it.

      We decided to keep going to Mayo for now though. Especially the next visit for the August 13th scan. This will be my first scan with it. So far they never have kept me on a medicine after it's first scan. I really hope they keep me on it. My Mayo doc says not to worry so I try not too. I do know 2 and maybe 3 Mayo docs will be looking at the scan and deciding. I leave it up to God and plan to have Dr. Rosenberg's number in my phone.

       

    Viewing 5 reply threads
    • Replies
        • August 3, 2014 at 5:50 pm
        Maureen038
        Participant

          Artie,

              I'm wishing you the very very best in scans. You are truly an inspiration for many people on this board! My husband was on the NIH ACT. We thought the trial was very beneficial even though he was not a complete responder. For your information, I would keep his email with him instead. He will personally email you back. We just wrote a brief synopsis of Bill's disease and asked if he could be in the trial. There are tests that need to be done to qualify.  Hope that you don't need to do that though.

          Maureen

          • August 3, 2014 at 5:50 pm
          Maureen038
          Participant

            Artie,

                I'm wishing you the very very best in scans. You are truly an inspiration for many people on this board! My husband was on the NIH ACT. We thought the trial was very beneficial even though he was not a complete responder. For your information, I would keep his email with him instead. He will personally email you back. We just wrote a brief synopsis of Bill's disease and asked if he could be in the trial. There are tests that need to be done to qualify.  Hope that you don't need to do that though.

            Maureen

            • August 3, 2014 at 5:50 pm
            Maureen038
            Participant

              Artie,

                  I'm wishing you the very very best in scans. You are truly an inspiration for many people on this board! My husband was on the NIH ACT. We thought the trial was very beneficial even though he was not a complete responder. For your information, I would keep his email with him instead. He will personally email you back. We just wrote a brief synopsis of Bill's disease and asked if he could be in the trial. There are tests that need to be done to qualify.  Hope that you don't need to do that though.

              Maureen

              • August 4, 2014 at 9:47 am
              tcell
              Participant

                Artie, will be thinking of you while getting my first dose of Ipi and looking forward to hearing good news!

                all the best,

                Chris

                  • August 4, 2014 at 2:20 pm
                  Maureen038
                  Participant

                    Chris,

                       I'm hoping and praying that ipi works for you too. I see that you are in Vienna. Contact Stephan Wagner at Medical University of Vienna on his work with CD20 and melanoma. If ipi doesn't work it might be possible to take it off- label. I don't know the cost of it. Dr Herlyn at Wistar Institute is highly respected in the melanoma field and was involved in this study. I'm wishing you the very best too.

                    Maureen

                     

                    http://www.nature.com/mt/journal/v20/n5/abs/mt201227a.html

                    • August 4, 2014 at 2:20 pm
                    Maureen038
                    Participant

                      Chris,

                         I'm hoping and praying that ipi works for you too. I see that you are in Vienna. Contact Stephan Wagner at Medical University of Vienna on his work with CD20 and melanoma. If ipi doesn't work it might be possible to take it off- label. I don't know the cost of it. Dr Herlyn at Wistar Institute is highly respected in the melanoma field and was involved in this study. I'm wishing you the very best too.

                      Maureen

                       

                      http://www.nature.com/mt/journal/v20/n5/abs/mt201227a.html

                      • August 4, 2014 at 2:20 pm
                      Maureen038
                      Participant

                        Chris,

                           I'm hoping and praying that ipi works for you too. I see that you are in Vienna. Contact Stephan Wagner at Medical University of Vienna on his work with CD20 and melanoma. If ipi doesn't work it might be possible to take it off- label. I don't know the cost of it. Dr Herlyn at Wistar Institute is highly respected in the melanoma field and was involved in this study. I'm wishing you the very best too.

                        Maureen

                         

                        http://www.nature.com/mt/journal/v20/n5/abs/mt201227a.html

                      • August 4, 2014 at 9:47 am
                      tcell
                      Participant

                        Artie, will be thinking of you while getting my first dose of Ipi and looking forward to hearing good news!

                        all the best,

                        Chris

                        • August 4, 2014 at 9:47 am
                        tcell
                        Participant

                          Artie, will be thinking of you while getting my first dose of Ipi and looking forward to hearing good news!

                          all the best,

                          Chris

                      Viewing 5 reply threads
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