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melanoma return while on yervoy
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melanoma return while on yervoy

› Forums › General Melanoma Community › melanoma return while on yervoy

  • Post
    • January 9, 2016 at 3:58 pm
    stevecathy
    Participant
      My husband is stage 3A with original melanoma on 4th right toe that was amputated July 2105. He had a lymph node disection in the groin with 4 positive nodes. He has now had 4 infusion of yervoy ending Dec 3rd of 2015. Last week went to dermatologist for 3 month check , he had approx 5 to 6 spots by the surgery site that looked like blood blisters but came back melanoma. Wondering if anyone has experienced anything like this with yervoy? Thank you
    Viewing 8 reply threads
    • Replies
        • January 9, 2016 at 11:55 pm
        mrsaxde
        Participant

          Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

          -Bill

          • January 9, 2016 at 11:55 pm
          mrsaxde
          Participant

            Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

            -Bill

              • January 10, 2016 at 9:19 pm
              stevecathy
              Participant
                Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
                • January 10, 2016 at 9:19 pm
                stevecathy
                Participant
                  Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
                  • January 10, 2016 at 9:19 pm
                  stevecathy
                  Participant
                    Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
                  • January 9, 2016 at 11:55 pm
                  mrsaxde
                  Participant

                    Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

                    -Bill

                    • January 11, 2016 at 1:33 am
                    94z28joe
                    Participant

                      I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

                        • January 12, 2016 at 2:54 am
                        stevecathy
                        Participant
                          Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
                          • January 12, 2016 at 2:54 am
                          stevecathy
                          Participant
                            Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
                            • January 12, 2016 at 2:54 am
                            stevecathy
                            Participant
                              Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
                            • January 11, 2016 at 1:33 am
                            94z28joe
                            Participant

                              I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

                              • January 11, 2016 at 1:33 am
                              94z28joe
                              Participant

                                I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

                                • January 11, 2016 at 7:25 pm
                                Julie in SoCal
                                Participant

                                  Hi Cathy,

                                  Yes.

                                  I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

                                  Blessings,

                                  Julie

                                    • January 12, 2016 at 2:47 am
                                    stevecathy
                                    Participant
                                      Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
                                      • January 12, 2016 at 2:47 am
                                      stevecathy
                                      Participant
                                        Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
                                        • January 12, 2016 at 2:47 am
                                        stevecathy
                                        Participant
                                          Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
                                          • January 13, 2016 at 6:07 am
                                          Marianne quinn
                                          Participant

                                            I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

                                            • January 13, 2016 at 6:07 am
                                            Marianne quinn
                                            Participant

                                              I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

                                              • January 16, 2016 at 4:11 am
                                              stevecathy
                                              Participant
                                                Thank you , I will
                                                • January 16, 2016 at 4:11 am
                                                stevecathy
                                                Participant
                                                  Thank you , I will
                                                  • January 16, 2016 at 4:11 am
                                                  stevecathy
                                                  Participant
                                                    Thank you , I will
                                                    • January 13, 2016 at 6:07 am
                                                    Marianne quinn
                                                    Participant

                                                      I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

                                                    • January 11, 2016 at 7:25 pm
                                                    Julie in SoCal
                                                    Participant

                                                      Hi Cathy,

                                                      Yes.

                                                      I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

                                                      Blessings,

                                                      Julie

                                                      • January 11, 2016 at 7:25 pm
                                                      Julie in SoCal
                                                      Participant

                                                        Hi Cathy,

                                                        Yes.

                                                        I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

                                                        Blessings,

                                                        Julie

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