Hi everyone,
Brents scans this past last week, after 9 months, where mixed. Some measured a tiny bit larger than 2 months ago, but not as big as the baseline scan from February. His doctor did not take him off the trial, for which he was grateful, saying there is not significant growth. Yesterday he is telling me he has some strange (discomfort in the lung area near where the growth was measured to be the most). He will be scanned again in February.
Hi everyone,
Brents scans this past last week, after 9 months, where mixed. Some measured a tiny bit larger than 2 months ago, but not as big as the baseline scan from February. His doctor did not take him off the trial, for which he was grateful, saying there is not significant growth. Yesterday he is telling me he has some strange (discomfort in the lung area near where the growth was measured to be the most). He will be scanned again in February.
We are looking into the plan B for the next treatment. He was retested for a whole list of mutations and is negative. The NRAS and GNAQ results are still not available. He was Braf negative when he went on the trial. The arm of that trial he started in Feb. was for solid tumors and he did not have to be Braf positive to begin treatment.
He feels fantastic, great appetite, high energy, and no real pain to speak of. His breathing is good also.
We know that CT scans can show different things at different times and are not perfect. This could account for the difference from this scan to last.
We also know that most trials require that you not have previous treatment with inhibiitors. I am aware that it is not going to be easy to move onto the next treatment and want to have some options in mind aheard of the game.
Anyone out there who has failed a MEK inhibitor and has moved on to another trial? Your input and feedback would be greatly appreciated.
God Bless you all.
Sharon and Brent
.
