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MDA Patients AND SKYSAR from Hotlantr-
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MDA Patients AND SKYSAR from Hotlantr-

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    • September 6, 2010 at 8:37 pm
    glewis923
    Participant

      Dear All:  

      First i'll ask Sue (skysar) since she seemed to have hit my nail on the head…..also any other of ya'll that have had lung mets and went to MDAnderson.  

      1–  After 1 yr. Interferon i finished in mid July.

      2– Had my 3 mth. CT scan at Mayo, JAX,  which showed increased # of lung nodules AND increase in size of 5 or more "micro-nodules" that have been present since my Feb. and/or May CT scan.  Largest noted is still under 1cm –  around 7 mm –  rest are around 5mm.

      Dear All:  

      First i'll ask Sue (skysar) since she seemed to have hit my nail on the head…..also any other of ya'll that have had lung mets and went to MDAnderson.  

      1–  After 1 yr. Interferon i finished in mid July.

      2– Had my 3 mth. CT scan at Mayo, JAX,  which showed increased # of lung nodules AND increase in size of 5 or more "micro-nodules" that have been present since my Feb. and/or May CT scan.  Largest noted is still under 1cm –  around 7 mm –  rest are around 5mm.

      3– I'm ready to go to MDA for the best?? advise/treatment.

       

      Questions:  

      1– Sue/others- are/were your circumstances simular?

      2– What treatment was recommended?  (besides IPI)

      3– How long after contact does it take to get appt.?? 

      4– I am considering IPI, but wonder if something more "proven" to at least hopefully suppress increased tumor growth- like IL-2 with Tremador thrown in- would perhaps be better for me …..and at least buy time 'till IPI  "easier" to get: ie.- FDA approved we hope around 1st of 2011.

      5– I'm fixn' to be 48 yrs. old and in pretty good health other than probable stage 4 mm now.

       

      Any input would be greatly appreciated- especially from those who know more than me-  …..from anyone, and especially people that are/were in same circumstances.  MDA experts like AmyB and others may could give me some good advise!

       

      Mayo in JAX said 80-90% sure at this pt. the mutiple spots on lungs are mm.  

       

      I think of ALL of you often; feel guilty that i only get on here for questions, but so far my only "big experience" has been I-feron.

       

      Love and God Bless EVERYONE! –    Grady.  aka  "ShadyGrady Low Swamps of GA."

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