› Forums › General Melanoma Community › Lost my dad yesterday
- This topic has 33 replies, 8 voices, and was last updated 8 years, 6 months ago by Momofjake.
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- October 23, 2015 at 11:01 am
On August 15th my dad found out he had stage IV melanoma that started on his scalp as a small lesion that grew to about half the size of a gold ball. He also had major liver involvement, hip, thigh, rib and skull bone activity, he also had lymphnode involvement behind the small intestines and small nodules in both lungs. Fast forward to this past week where he endured several scans and a surgery to repair a ruptured ulcer we found out he also had several brain mets that were bleeding that had not been there on the MRI 3 months earlier.The only treatment my dad was able to receive during his short battle was 2 rounds of Opdivo which caused server liver toxicity so his oncologist had to end treatment. The next option was the BRAF combo but he had tested positive for V600R gene and caremark initially denied the meds but with the help of Dr Sosman and his regular oncologist they finally agreed last Friday to approve them for him but unfortunately it was too late. His body was just too weak for anymore treatment, he hadn’t eaten or drank much at all in ten days and the brain mets had bled causing him to lose his speech for a day until the meds were able to shrink the swelling of his brain. His speech returned which we were so grateful for so we could communicate in his last days but it was clear the end was near.
We started palliative care yesterday around 9am and my dear dad passed at 1:48 pm Oct, 22 2015. He fought hard but just couldn’t win this battle. I now know more about melanoma than I care to and wanted to thank everyone on this form for all the hope, inspiration and info you’ve provided over the past several months. My hopes prayers are with each of you fighting this nasty disease.
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- October 23, 2015 at 11:56 am
I am so sorry to hear. My prayers are with you and your family
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- November 3, 2015 at 4:38 am
Just read your husbands story. It's just unreal how this cancer robs us of our people. I am really sorry. I know how dark and heavy it can feel. My 18yr old son is still fighting. I am just going to enjoy each day….I think God has a plan. We all have a unique journey. When melanoma becomes a part of your journey it really sucks!
i hope you are okay.
Love to you,
Kerri–mom of Jake
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- October 24, 2015 at 1:25 pm
Jaso2r,
I’m sorry. Its so hard to know what to say when I read these posts. This disease sucks. I read of someone that referred to their cancer not winning even if they die the cancer will also die with them. So in the end your dad wins. I’m so sorry you had to go through this with him. -
- October 24, 2015 at 1:25 pm
Jaso2r,
I’m sorry. Its so hard to know what to say when I read these posts. This disease sucks. I read of someone that referred to their cancer not winning even if they die the cancer will also die with them. So in the end your dad wins. I’m so sorry you had to go through this with him. -
- October 24, 2015 at 1:25 pm
Jaso2r,
I’m sorry. Its so hard to know what to say when I read these posts. This disease sucks. I read of someone that referred to their cancer not winning even if they die the cancer will also die with them. So in the end your dad wins. I’m so sorry you had to go through this with him. -
- October 24, 2015 at 2:53 pm
So sorry for your loss. Stupid awful disease. I hate it so much.
Artie
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- October 24, 2015 at 2:53 pm
So sorry for your loss. Stupid awful disease. I hate it so much.
Artie
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- October 24, 2015 at 2:53 pm
So sorry for your loss. Stupid awful disease. I hate it so much.
Artie
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- October 26, 2015 at 12:36 pm
I am very sorry for your loss. My dad starts palliative care at home tomorrow. Melanoma really sucks.
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- October 26, 2015 at 12:36 pm
I am very sorry for your loss. My dad starts palliative care at home tomorrow. Melanoma really sucks.
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- October 26, 2015 at 12:36 pm
I am very sorry for your loss. My dad starts palliative care at home tomorrow. Melanoma really sucks.
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- November 3, 2015 at 4:31 am
I just read your sad news. I am so sorry. This sickness is a respecter of no one. It's a thief. I will pray for your family. The people here know suffering and heartache. We don't talk about that part much, we share hope and strengthen each other…but when we read about a loss, we KNOW.
Love to you. Thank you for sharing.
Kerri–mom of Jake
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- November 3, 2015 at 4:31 am
I just read your sad news. I am so sorry. This sickness is a respecter of no one. It's a thief. I will pray for your family. The people here know suffering and heartache. We don't talk about that part much, we share hope and strengthen each other…but when we read about a loss, we KNOW.
Love to you. Thank you for sharing.
Kerri–mom of Jake
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- November 3, 2015 at 4:31 am
I just read your sad news. I am so sorry. This sickness is a respecter of no one. It's a thief. I will pray for your family. The people here know suffering and heartache. We don't talk about that part much, we share hope and strengthen each other…but when we read about a loss, we KNOW.
Love to you. Thank you for sharing.
Kerri–mom of Jake
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