Looking For Some Inspiration
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Looking For Some Inspiration

› Forums › General Melanoma Community › Looking For Some Inspiration

  • Post
    • April 20, 2015 at 1:49 pm
    newmanmark
    Participant

    Hello,

    I started Mekinist and Tafinlar today and I'm looking for some positive stories from people who are having success with this treatment.  I am 35 years old and stage 4.

    Thanks

    Mark

Viewing 8 reply threads
  • Replies
      • April 20, 2015 at 2:06 pm
      MattF
      Participant

      i had a good 8 month run and shrunk everything while it worked!

      then jumped to Ipi

      M

        • April 20, 2015 at 2:59 pm
        newmanmark
        Participant

        Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

        Mark

        • April 20, 2015 at 2:59 pm
        newmanmark
        Participant

        Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

        Mark

        • April 20, 2015 at 2:59 pm
        newmanmark
        Participant

        Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

        Mark

      • April 20, 2015 at 2:06 pm
      MattF
      Participant

      i had a good 8 month run and shrunk everything while it worked!

      then jumped to Ipi

      M

      • April 20, 2015 at 2:06 pm
      MattF
      Participant

      i had a good 8 month run and shrunk everything while it worked!

      then jumped to Ipi

      M

      • April 20, 2015 at 4:55 pm
      Mat
      Participant

      I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

      • April 20, 2015 at 4:55 pm
      Mat
      Participant

      I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

      • April 20, 2015 at 4:55 pm
      Mat
      Participant

      I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

      • April 22, 2015 at 1:51 am
      bonusfries
      Participant

      Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

      So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

      The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

      Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

      • April 22, 2015 at 1:51 am
      bonusfries
      Participant

      Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

      So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

      The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

      Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

      • April 22, 2015 at 1:51 am
      bonusfries
      Participant

      Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

      So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

      The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

      Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

        • April 22, 2015 at 3:55 pm
        newmanmark
        Participant

        Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

        Mark

        • April 22, 2015 at 3:55 pm
        newmanmark
        Participant

        Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

        Mark

        • April 22, 2015 at 3:55 pm
        newmanmark
        Participant

        Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

        Mark

Viewing 8 reply threads
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