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Looking for dr or treament in Michigan or IN, OH, IL

Forums General Melanoma Community Looking for dr or treament in Michigan or IN, OH, IL

  • Post
    naty
    Participant

    We are in West Michigan we I am looking for a recommended physician or treatment center in the region.  It is for my father who states he is wanting to travel if that is what it takes.  He wants to fight the best possible fight.  He had an oncologist at Spectrum Health and we did go to U-M and they offered only radiation to the head for 2 weeks and then temedor.   Where's a good place to start trials?  Karmanos in Detroit?  We are open to suggestions as my dad has just started his fight with stage IV.  Please share your thoughts.  Thank you!

    We are in West Michigan we I am looking for a recommended physician or treatment center in the region.  It is for my father who states he is wanting to travel if that is what it takes.  He wants to fight the best possible fight.  He had an oncologist at Spectrum Health and we did go to U-M and they offered only radiation to the head for 2 weeks and then temedor.   Where's a good place to start trials?  Karmanos in Detroit?  We are open to suggestions as my dad has just started his fight with stage IV.  Please share your thoughts.  Thank you!

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  • Replies
      Fen
      Participant

      I know you asked for specific states, but please check out MD Anderson in Texas.  So many people on the board have been there and been treated by melanoma specialists.  I'm not certain, but I think they may be able to coordinate treatment with a local oncologist or hospital.   

      The board is slow on weekends so you may have to repost on Monday.  I'll be keeping you and your family in my prayers.

      Fen

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      Fen
      Participant

      I know you asked for specific states, but please check out MD Anderson in Texas.  So many people on the board have been there and been treated by melanoma specialists.  I'm not certain, but I think they may be able to coordinate treatment with a local oncologist or hospital.   

      The board is slow on weekends so you may have to repost on Monday.  I'll be keeping you and your family in my prayers.

      Fen

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      EricNJill
      Participant

      We live around Dayton, OH and have been traveling to Pittsburgh, PA.  Dr. Kirkwood is an excellent specialist at University of Pittsburgh Medical Center.  Eric has done all the treatments available there so now we are headed to Nashville, TN but I highly recommend Dr. Kirkwood.  Eric's care there was the best.

      On my blog, I have resources listed for flying to treatments.  http://www.melanomasucks.blogspot.com.  We currently us Angel Flight East for Eric's treatments.  They are wonderful.

       

      Good luck to you.  Jill N Eric In OH

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      EricNJill
      Participant

      We live around Dayton, OH and have been traveling to Pittsburgh, PA.  Dr. Kirkwood is an excellent specialist at University of Pittsburgh Medical Center.  Eric has done all the treatments available there so now we are headed to Nashville, TN but I highly recommend Dr. Kirkwood.  Eric's care there was the best.

      On my blog, I have resources listed for flying to treatments.  http://www.melanomasucks.blogspot.com.  We currently us Angel Flight East for Eric's treatments.  They are wonderful.

       

      Good luck to you.  Jill N Eric In OH

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      mrsmarilyn
      Participant

      I'm also in Michigan-but I would go to Dr. Kirkwood, or Sara Cannon Nashville, TN or MD Anderson – Karmanos-will not have the access to clinicals like these leading – centers listed –and you will waste time.  I know because we wasted years at Emory, GA – and should have been somewhere else. Nothing against Emory, it is just not their specialty – and my brother has made more progress at Sara Cannon in 9 months, than he did in six years at Emory.  Worth the trip.  Best of luck!

      MrsMarilyn

      Sister of Gary Stage IV

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      mrsmarilyn
      Participant

      I'm also in Michigan-but I would go to Dr. Kirkwood, or Sara Cannon Nashville, TN or MD Anderson – Karmanos-will not have the access to clinicals like these leading – centers listed –and you will waste time.  I know because we wasted years at Emory, GA – and should have been somewhere else. Nothing against Emory, it is just not their specialty – and my brother has made more progress at Sara Cannon in 9 months, than he did in six years at Emory.  Worth the trip.  Best of luck!

      MrsMarilyn

      Sister of Gary Stage IV

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      Lori C
      Participant

      In Illinois I would consider the University of Chicago – Dr. Thomas Gajewski – or Dr. Howard Kaufman at Rush.

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      Lori C
      Participant

      In Illinois I would consider the University of Chicago – Dr. Thomas Gajewski – or Dr. Howard Kaufman at Rush.

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      Jim in Denver
      Participant

      Hi Naty,

      As a Stage IV patient, I decided it would not be too much to hop on an airplane to travel to a place that has a specialty in melanoma.  My goal was to get a treatment (or more than one, if necessary) that offered a decent chance of being effective.  I am one of those who chose to go to MD Anderson in Houston, and I have not regretted that decision for a minute.  It is possible to lose valuable time dealing with people who do not specialize in melanoma, or who specialize but who don't have access to the most current treatments available.  Bless you for helping your father through this difficult time and with difficult decisions.

      Best Wishes,

      Jim

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      Jim in Denver
      Participant

      Hi Naty,

      As a Stage IV patient, I decided it would not be too much to hop on an airplane to travel to a place that has a specialty in melanoma.  My goal was to get a treatment (or more than one, if necessary) that offered a decent chance of being effective.  I am one of those who chose to go to MD Anderson in Houston, and I have not regretted that decision for a minute.  It is possible to lose valuable time dealing with people who do not specialize in melanoma, or who specialize but who don't have access to the most current treatments available.  Bless you for helping your father through this difficult time and with difficult decisions.

      Best Wishes,

      Jim

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        naty
        Participant

        Thanks for all the info.  I called MD Anderson today and we are in the process of getting together all his scans and path reports and faxing it to them so they will review it and get back to us regarding an appointment.   This site has really given him some hope that somehow he can beat this.   I'm hoping this process will go fast.  My father finishes his radiation 2 weeks from today.  So it will get tricky as to starting temedor here or waiting for MD Anderson.  Hopefully everything will fall into place!  Maybe Thanksgiving will be in Houston with warm weather.

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        naty
        Participant

        Thanks for all the info.  I called MD Anderson today and we are in the process of getting together all his scans and path reports and faxing it to them so they will review it and get back to us regarding an appointment.   This site has really given him some hope that somehow he can beat this.   I'm hoping this process will go fast.  My father finishes his radiation 2 weeks from today.  So it will get tricky as to starting temedor here or waiting for MD Anderson.  Hopefully everything will fall into place!  Maybe Thanksgiving will be in Houston with warm weather.

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        mrsmarilyn
        Participant

        Best of luck!  Dont give up – there are alot of excellent improvements out there and MD Anderson is agreat place to find them.  You are an excellent daughter!

        MrsMarilyn

        Sister of Gary (stage IV)

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        mrsmarilyn
        Participant

        Best of luck!  Dont give up – there are alot of excellent improvements out there and MD Anderson is agreat place to find them.  You are an excellent daughter!

        MrsMarilyn

        Sister of Gary (stage IV)

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        naty
        Participant

        ahhh, thank you!  it's so hard being that sandwich generation.  I have a special needs daughter (spina bifida and some other problems with her spine) who is 19mo's so between the two of them and my oldest dtr, time is limited.  I got everything faxed to MD Anderson this morning!!  I think they have all his CT's (head, neck, chest, and abd/pelvis) and his Brain MRI and last labs, as well as both path reports from his liver biopsies.  I feel like a rock has been lifted.  

        Melissa

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        naty
        Participant

        ahhh, thank you!  it's so hard being that sandwich generation.  I have a special needs daughter (spina bifida and some other problems with her spine) who is 19mo's so between the two of them and my oldest dtr, time is limited.  I got everything faxed to MD Anderson this morning!!  I think they have all his CT's (head, neck, chest, and abd/pelvis) and his Brain MRI and last labs, as well as both path reports from his liver biopsies.  I feel like a rock has been lifted.  

        Melissa

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        Jim in Denver
        Participant

        Hi Melissa,

        Thank you very much for the updates.  I think you are making a good move to have your Dad go to MDA, and I am very glad that you feel the burden lifting from your shoulders.  They will take the lead on treatment at MDA and then you can assume more of an assistant role.  I think you are finding that they run an excellent operation down there, and that your Dad will get the best care available.  The travel and logistics will still present issues for you, but they have been well worth it, in my experience.  Please let us know how he is doing and best wishes to you, your Dad, and your entire family.

        Best,

        Jim

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        Jim in Denver
        Participant

        Hi Melissa,

        Thank you very much for the updates.  I think you are making a good move to have your Dad go to MDA, and I am very glad that you feel the burden lifting from your shoulders.  They will take the lead on treatment at MDA and then you can assume more of an assistant role.  I think you are finding that they run an excellent operation down there, and that your Dad will get the best care available.  The travel and logistics will still present issues for you, but they have been well worth it, in my experience.  Please let us know how he is doing and best wishes to you, your Dad, and your entire family.

        Best,

        Jim

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