Liver and Adrenal Mets Finally Shrinking!
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Liver and Adrenal Mets Finally Shrinking!

› Forums › General Melanoma Community › Liver and Adrenal Mets Finally Shrinking!

  • Post
    • January 9, 2019 at 1:35 am
    NEDnotDead
    Participant

    My Oncologist just called me to share this amazing news! After the 4 combos of Ipi/Nivo and 8 months of  Nivo maintenance, my stubborn liver and large adrenal mets are finally shrinking. I had an extremely heavy burden of organ and bone mets when diagnosed 1 year ago this month. I had no clue anything was wrong until the mets on my hips pinched nerves and caused partial paralysis from the waist down.  I walked into the ER on January 20th 2018 in extreme pain and collapsed before I made it through Triage. Had 5 rounds of radiation to my hips and pelvis and stared the combo within a month from diagnosis. Bone mets and smaller organ mets responded quickly to treatment, but large liver tumor and adrenal tumors seem to be more stubborn.

    Happy to be making this post after such a challenging year. Wishing you all similar successes in 2019!

Viewing 7 reply threads
  • Replies
      • January 9, 2019 at 2:21 am
      gopher38
      Participant

      That is fantastic.  Very happy for you.

      • January 9, 2019 at 3:00 am
      Bubbles
      Participant

      AWESOME!!!!  Celeste

        • January 9, 2019 at 3:44 pm
        NEDnotDead
        Participant

        Thanks Celeste, after weeks of worry over increased back pain, this is much better news then I was expecting.

      • January 9, 2019 at 4:46 am
      MelMel
      Participant

      What a terrific way to start 2019 and just keep rocking!!! Wish you the best!

      Melanie

        • January 9, 2019 at 3:41 pm
        NEDnotDead
        Participant

        Thanks MelMel, here's hoping we both achieve NED in 2019!

      • January 9, 2019 at 4:46 am
      MelMel
      Participant

      What a terrific way to start 2019 and just keep rocking!!! Wish you the best!

      Melanie

      • January 9, 2019 at 3:09 pm
      mandyjill
      Participant

      Great news!  So happy for you!

      • January 9, 2019 at 8:51 pm
      sister of patient
      Participant

      That's excellent!! My sister's experience was similar – multi-mets in multiple organs and bones. One by one, nivo got them all. It's happening for you – so pleased!!!! Best wishes to you.

      Barb

        • January 10, 2019 at 9:14 pm
        NEDnotDead
        Participant

        Thanks Barb, May I ask how long it took her to achieve NED?

        • January 11, 2019 at 5:28 am
        sister of patient
        Participant

        With the immunotherapy, it was about a year. She started ipi/nivo combos in Apr. 2016, only had 2 before brain mets were found in May. Immuno was interrupted for radiation and then resumed end of July but it was nivo only. In July 2017, she reached NED, though it wasn't official until the 2nd clear scan in Oct. She just finished treatment last summer, July 2018, marking a year NED and 2 years of nivo. This was a complete response without surgery – immunotherapy did it all! Hope this helps. Take care and keep on kicking ass!! 🙂

        Barb

      • January 12, 2019 at 2:41 am
      lkb
      Participant

      Shrinking mets = Hoo-Yah!! Congratulations!

      • January 15, 2019 at 3:56 pm
      Happygal
      Participant

      SO happy for you, I am just beginning again for recurrance, Brain MRI this week, starting up Ipi/Nivo next week.  {Praying I get as good results as you.

      Take care and thank you for the uplifting positive news!!

       

      Tyais

        • January 15, 2019 at 4:35 pm
        NEDnotDead
        Participant

        Fingers and toes crossed for you Tyais!

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