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Length of immuntherapy side effects
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Length of immuntherapy side effects

› Forums › General Melanoma Community › Length of immuntherapy side effects

  • Post
    • March 27, 2019 at 10:46 pm
    mandyjill
    Participant

      I finished a clinical trial of opdivo and yervoy last August for stage 3b melanoma.  Not sure if I was getting just Opdivo or the combo.  But here I am 7 months out and still experiencing extreme fatique and muscle/joint pain.  Does anyone know if this is normal?  Can I expect these side effects to subside of will they be something I will always have to deal with?  I can't seem to find any definitive answers anywhere online.

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        • March 28, 2019 at 1:06 pm
        Hukill
        Participant

          My last treatment was in August also, 5 yervoy and 52 opdivo and none of my side effects have gone away. The fatigue has been my worse side effect and it is still horrible. I keep telling myself it is better than the stage IV melanoma I had.

            • March 28, 2019 at 1:27 pm
            mandyjill
            Participant

              Thank you for the reply.  That helps me not feel like the Lone Ranger. Just didn't know if there is something else going on or if it was still related to the immunotherapy drugs.

            • March 29, 2019 at 12:36 am
            lindanat
            Participant

              Unfortunately, the side effects do seem to linger.  I have joint pain and fatigue, although the fatigue has lessened some except at the end of the work week.  I use CBD/THC for joint pain (find a salve or cream).  I am Stage 4 and did yervoy/opdivo for four and then opdivo alone for one year.  NED now so willing to put up with the side effects – an easy trade off.  Best wishes!

              • April 16, 2019 at 1:43 pm
              Rncab218
              Participant

                I had to stop nivo treatment after four treatments due to severe diarrhea, muscle and joint pain and itching. I was tapered on prednisone for three weeks.  Last treatment was December. I am still having side effects especially joint pain in my hands mostly and living in Motrin.  I am told the medication works in your body for six months.  I hope these side effects stop soon and are not permanent   I am sorry you all are having side effects too but felt a little better I am not the only one. Thank you

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