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Large melanoma on duodenum and on Yervoy for 2nd time

Forums General Melanoma Community Large melanoma on duodenum and on Yervoy for 2nd time

  • Post
    Theresa123
    Participant

      Hi, I am new to the forum.  I have Stage 4 melanoma, and I am on my second go round with Yervoy.  I am getting more tumors, but the one causing the most trouble is in my stomach/intestine.  It is next to my aorta and vena cava, and the surgeon says it is risky to take out, but if he doesn't I could have complete blockage.  Has anyone else had this problem?

      Hi, I am new to the forum.  I have Stage 4 melanoma, and I am on my second go round with Yervoy.  I am getting more tumors, but the one causing the most trouble is in my stomach/intestine.  It is next to my aorta and vena cava, and the surgeon says it is risky to take out, but if he doesn't I could have complete blockage.  Has anyone else had this problem?

      I am scared and angry.  I have had melanoma for 2 years, and have had so many problems.  I am getting tired of fighting.  The thought of peritonitis from a exploding bowel is not the way I want to go, however.

      Thanks!!!

    Viewing 11 reply threads
    • Replies
        Charlie S
        Participant

          No doubt you are scared and angry. What do YOU want to do is the question.

          As a point of consideration, I've had melanoma for damn near a quarter of a century and have had MANY problems;

          Buck up. 

          This is no easy road and it a road paved with lies and misconceptions,

          Tired of fighting?  Then just quit, give up and stop.  and don't expect an apology from me.

          Do what you want.

          Read that again………………..do what you want.

          Quit or fight.state your case, , but don't whine.

          Charlie S

            kennedy
            Participant

              It's will be not ease tomorrow when i'll look for a doctor to examine my son. Will be not ease. He has only 12 years old and turning into a man, I can see in your tits inflating. Why my god ? why ? But what drives me to despair is to see some devastating depositions here. Sorry, i'm not prepared to this yet. I hope you find some confort to yourself.

              Theresa123
              Participant

                I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                Theresa123
                Participant

                  I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                  Theresa123
                  Participant

                    I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                    Theresa123
                    Participant

                      I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                      Theresa123
                      Participant

                        I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                        Theresa123
                        Participant

                          I am so sorry for your son.  My prayers are with you.  I should not be whining.  I hope your son gets better very soon.

                          Charlie S
                          Participant

                            The downside of life is death.

                            Not MY rules and it sure does suck.  I do beleive  there is a choice of length and quality/quantity though, ever how slight.

                            And I surely do think life is what you make it.

                            Charlie S

                            Charlie S
                            Participant

                              The downside of life is death.

                              Not MY rules and it sure does suck.  I do beleive  there is a choice of length and quality/quantity though, ever how slight.

                              And I surely do think life is what you make it.

                              Charlie S

                              Charlie S
                              Participant

                                The downside of life is death.

                                Not MY rules and it sure does suck.  I do beleive  there is a choice of length and quality/quantity though, ever how slight.

                                And I surely do think life is what you make it.

                                Charlie S

                                kennedy
                                Participant

                                  It's will be not ease tomorrow when i'll look for a doctor to examine my son. Will be not ease. He has only 12 years old and turning into a man, I can see in your tits inflating. Why my god ? why ? But what drives me to despair is to see some devastating depositions here. Sorry, i'm not prepared to this yet. I hope you find some confort to yourself.

                                  kennedy
                                  Participant

                                    It's will be not ease tomorrow when i'll look for a doctor to examine my son. Will be not ease. He has only 12 years old and turning into a man, I can see in your tits inflating. Why my god ? why ? But what drives me to despair is to see some devastating depositions here. Sorry, i'm not prepared to this yet. I hope you find some confort to yourself.

                                    Theresa123
                                    Participant

                                      Thanks for the kick in the pants, Charlie!!

                                      Theresa123
                                      Participant

                                        Thanks for the kick in the pants, Charlie!!

                                        Theresa123
                                        Participant

                                          Thanks for the kick in the pants, Charlie!!

                                          Theresa123
                                          Participant

                                            Thanks for the kick in the pants, Charlie!!

                                            Theresa123
                                            Participant

                                              Thanks for the kick in the pants, Charlie!!

                                              Theresa123
                                              Participant

                                                Thanks for the kick in the pants, Charlie!!

                                              Charlie S
                                              Participant

                                                No doubt you are scared and angry. What do YOU want to do is the question.

                                                As a point of consideration, I've had melanoma for damn near a quarter of a century and have had MANY problems;

                                                Buck up. 

                                                This is no easy road and it a road paved with lies and misconceptions,

                                                Tired of fighting?  Then just quit, give up and stop.  and don't expect an apology from me.

                                                Do what you want.

                                                Read that again………………..do what you want.

                                                Quit or fight.state your case, , but don't whine.

                                                Charlie S

                                                Charlie S
                                                Participant

                                                  No doubt you are scared and angry. What do YOU want to do is the question.

                                                  As a point of consideration, I've had melanoma for damn near a quarter of a century and have had MANY problems;

                                                  Buck up. 

                                                  This is no easy road and it a road paved with lies and misconceptions,

                                                  Tired of fighting?  Then just quit, give up and stop.  and don't expect an apology from me.

                                                  Do what you want.

                                                  Read that again………………..do what you want.

                                                  Quit or fight.state your case, , but don't whine.

                                                  Charlie S

                                                  LynnLuc
                                                  Participant

                                                    Mine was not in my intestines, but was pressing against my superior vena cave and cutting of the blood supply to the top half of my body. I had no option then but Myo surgeon did a thoracotomy. I am also stage 4 but NED now. Hoping you the best and the growth may slow now and begin to shrink since you are on Yervoy! Lynn

                                                    LynnLuc
                                                    Participant

                                                      Mine was not in my intestines, but was pressing against my superior vena cave and cutting of the blood supply to the top half of my body. I had no option then but Myo surgeon did a thoracotomy. I am also stage 4 but NED now. Hoping you the best and the growth may slow now and begin to shrink since you are on Yervoy! Lynn

                                                      LynnLuc
                                                      Participant

                                                        Mine was not in my intestines, but was pressing against my superior vena cave and cutting of the blood supply to the top half of my body. I had no option then but Myo surgeon did a thoracotomy. I am also stage 4 but NED now. Hoping you the best and the growth may slow now and begin to shrink since you are on Yervoy! Lynn

                                                        Cynthia C
                                                        Participant

                                                          Howdy from Colorado!

                                                          I'm just sending you a hug (to kind of offset Charlie's kick-in-the-pants). I'll keep you in my thoughts and prayers (I really do pray) to give you strength in whatever you decide to do.

                                                          Cynthia C

                                                            Theresa123
                                                            Participant

                                                              Thank you, Cynthia!!  prayers help so much.  Much love…..

                                                              Theresa123
                                                              Participant

                                                                Thank you, Cynthia!!  prayers help so much.  Much love…..

                                                                Theresa123
                                                                Participant

                                                                  Thank you, Cynthia!!  prayers help so much.  Much love…..

                                                                Cynthia C
                                                                Participant

                                                                  Howdy from Colorado!

                                                                  I'm just sending you a hug (to kind of offset Charlie's kick-in-the-pants). I'll keep you in my thoughts and prayers (I really do pray) to give you strength in whatever you decide to do.

                                                                  Cynthia C

                                                                  Cynthia C
                                                                  Participant

                                                                    Howdy from Colorado!

                                                                    I'm just sending you a hug (to kind of offset Charlie's kick-in-the-pants). I'll keep you in my thoughts and prayers (I really do pray) to give you strength in whatever you decide to do.

                                                                    Cynthia C

                                                                    Rebecca and Bob
                                                                    Participant

                                                                      Sorry you are having a rough time. Intestinal mets can really cause problems. My husband had 3 and one was causing a intussusception (blockage). He got really crampy and bloated. They showed up on a PETscan. They did surgery in two resections of his bowel. They got it all and he has been disease free for over 2 years.

                                                                      Trust me, it was also exploratory so we were worried about what else might be lurking. I know easier said than done, but you should get another opinion, see if you can find a doctor that will do the surgery. The surgery is miserable but better than dealing with the alternative.

                                                                      It is scary and you have every right to be scared and angry.

                                                                       

                                                                      Rebecca

                                                                        Theresa123
                                                                        Participant

                                                                          Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                          Theresa123
                                                                          Participant

                                                                            Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                            Theresa123
                                                                            Participant

                                                                              Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                              Theresa123
                                                                              Participant

                                                                                Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                                Theresa123
                                                                                Participant

                                                                                  Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                                  Theresa123
                                                                                  Participant

                                                                                    Thanks Rebecca!!  I am scared, angry, tired and nauseated.  I hope this Yervoy helps.  I am so happy for you and your husband!!!

                                                                                  Rebecca and Bob
                                                                                  Participant

                                                                                    Sorry you are having a rough time. Intestinal mets can really cause problems. My husband had 3 and one was causing a intussusception (blockage). He got really crampy and bloated. They showed up on a PETscan. They did surgery in two resections of his bowel. They got it all and he has been disease free for over 2 years.

                                                                                    Trust me, it was also exploratory so we were worried about what else might be lurking. I know easier said than done, but you should get another opinion, see if you can find a doctor that will do the surgery. The surgery is miserable but better than dealing with the alternative.

                                                                                    It is scary and you have every right to be scared and angry.

                                                                                     

                                                                                    Rebecca

                                                                                    Rebecca and Bob
                                                                                    Participant

                                                                                      Sorry you are having a rough time. Intestinal mets can really cause problems. My husband had 3 and one was causing a intussusception (blockage). He got really crampy and bloated. They showed up on a PETscan. They did surgery in two resections of his bowel. They got it all and he has been disease free for over 2 years.

                                                                                      Trust me, it was also exploratory so we were worried about what else might be lurking. I know easier said than done, but you should get another opinion, see if you can find a doctor that will do the surgery. The surgery is miserable but better than dealing with the alternative.

                                                                                      It is scary and you have every right to be scared and angry.

                                                                                       

                                                                                      Rebecca

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