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Keeping my fingers crossed
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Keeping my fingers crossed

› Forums › General Melanoma Community › Keeping my fingers crossed

  • Post
    • May 12, 2011 at 5:17 pm
    Lisa13
    Participant

      Met with my oncologist yesterday after being kicked off the ipi trial for suspicious activity in lungs. He said my CT scan showed 20 spots, but told me yesterday he feels there's only 2 that look suspicioius and may be melanoma.  That being said, we'll re-scan in 3 weeks to see if any of these spots have changed.  I can only hope that they have either disappeared or havn't changed in anyway.  Since I just had surgery and lymph node dissection 2.5 months ago, I really don't want to progress to Stage 4 so quickly cause that would say alot about my melanoma.

      Met with my oncologist yesterday after being kicked off the ipi trial for suspicious activity in lungs. He said my CT scan showed 20 spots, but told me yesterday he feels there's only 2 that look suspicioius and may be melanoma.  That being said, we'll re-scan in 3 weeks to see if any of these spots have changed.  I can only hope that they have either disappeared or havn't changed in anyway.  Since I just had surgery and lymph node dissection 2.5 months ago, I really don't want to progress to Stage 4 so quickly cause that would say alot about my melanoma.

      Anyway, if there is change, we're going with decarbazine. I've been pumping my body full of so many holistic supplements for the past 3 months, so I really hope my own immune system will remove whatever is in my lungs.  I hope like many of you, these spots won't change and I can go on feeling a bitt better about things until the next round of scans. 

      Keeping the faith.

      Lisa

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        • May 12, 2011 at 7:15 pm
        ShariC
        Participant

          Hi Lisa – Just wanted to wish you good thoughts as you head into this next set of scans/tests/treatment option decisions.  We're on similar paths….I started earlier than you (July 2010), but had similar experiences with doctors who said "its nothing, lets burn it off right now"…and then a call the NEXT DAY with "its bad…its MM".  You can read my profile, I think its pretty up to date.  I chose radiation and then biochemotherapy.  Finished that in Feb of this year but they found that a small MM tumor I had reacted very positively to the treatment (nearly went away). 

          So, I get to classify myself as NED…but, until it is sustained for a year or so, I won't feel very comfortable!  My next scan is June 28th.  Here's to living while being on this crazy roller coaster!  I took my son (he's almost 9) to Costa Rica last month and I have so many trips planned for this year its crazy..not sure how to fit work in !!  Shari

          • May 12, 2011 at 7:15 pm
          ShariC
          Participant

            Hi Lisa – Just wanted to wish you good thoughts as you head into this next set of scans/tests/treatment option decisions.  We're on similar paths….I started earlier than you (July 2010), but had similar experiences with doctors who said "its nothing, lets burn it off right now"…and then a call the NEXT DAY with "its bad…its MM".  You can read my profile, I think its pretty up to date.  I chose radiation and then biochemotherapy.  Finished that in Feb of this year but they found that a small MM tumor I had reacted very positively to the treatment (nearly went away). 

            So, I get to classify myself as NED…but, until it is sustained for a year or so, I won't feel very comfortable!  My next scan is June 28th.  Here's to living while being on this crazy roller coaster!  I took my son (he's almost 9) to Costa Rica last month and I have so many trips planned for this year its crazy..not sure how to fit work in !!  Shari

            • May 12, 2011 at 10:00 pm
            Carol Taylor
            Participant

              Keeping the faith with you, Lisa.

              Lord, in Your mercy, thank you 20 are down to maybe 2. Keeping Lisa in prayer. Amen.

              • May 12, 2011 at 10:00 pm
              Carol Taylor
              Participant

                Keeping the faith with you, Lisa.

                Lord, in Your mercy, thank you 20 are down to maybe 2. Keeping Lisa in prayer. Amen.

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