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Just Diagnosed

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  • Post
    • March 21, 2017 at 10:06 pm
    DocPain
    Participant

      I had melanoma 10 years ago and after surgery and 5 years of scans and MRIs I was clean with minimal likelihood of recurrence.  I was just diagnosed with melanoma again last week.  Nothing was visible because both spots are in my left lung.  Currently waiting advanced report to determine if there is any mutation.  Talking about immunotherpay. 

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        • March 22, 2017 at 8:17 am
        debwray
        Participant

          Sorry to hear about this set back. The good bit is that it has taken 10 years to get going again so hopefully is not the aggressive type. Immunotherapy sounds like a good direction to go.

          Commiserations that MM is back in your life.. But if we are loo!ing for silver linings then there are lots of newer treatments about now compared to 10years ago…

          Best of luck with your treatment.

          Deb

          • March 22, 2017 at 2:02 pm
          UBContributor
          Participant

            Yes, totally agree with deb above: since it took 10 years to recur, yours might be a slow one; any yes, there are so many new and very effective treatments available now. Pls keep us posted!  

            • March 24, 2017 at 6:52 pm
            dodgedh2
            Participant

              Sorry to hear that. I have ben NED for 9 years now, following sugery and Gamma radiation of the site during surgery. Can you please share how you came to be diagnosed again? Were you having other symtoms? Was there visible evidence (such as another mole)? I was diagnosed at Stage 4 (to the bone) and have always feeled recurrance. Especially since the scans ended and no other definitive checks.

                • March 26, 2017 at 9:03 pm
                DocPain
                Participant

                  Honest I was feeling fine, nothing to suggest anything was awry. I rushed teeing off from the first tee box back in November, hurt my lower back, and went to a chiropractor for treatment. He took an x-ray and there was a shadow in one lung. Two CT-scans, a bone scan, and a biopsy later, I have two masses in my left lung and nothing anywhere else. Nothing external. Five years since my last scan which was clean. No talk of surgery at this point, just immunotherapy. Currently waiting report on possible mutations. 

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