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Joint Pain
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Joint Pain

› Forums › General Melanoma Community › Joint Pain

  • Post
    • January 6, 2012 at 1:55 am
    CLPrice31
    Participant

      I have been participating in the ipi/placebo trial at Memorial Sloan Kettering since May. Although I have no idea if I am receiving the drug or not, I have had quite a few of the symptoms.Currently, I am battling joint pain in my hands. My body has felt super sluggish since my second dose of the trial drug and I usually feel like I have a constant hangover; however, this is new. I am only 24 so it seems a bit young for arthritis…. I was wondering if anyone else has had a similiar problem?

      I have been participating in the ipi/placebo trial at Memorial Sloan Kettering since May. Although I have no idea if I am receiving the drug or not, I have had quite a few of the symptoms.Currently, I am battling joint pain in my hands. My body has felt super sluggish since my second dose of the trial drug and I usually feel like I have a constant hangover; however, this is new. I am only 24 so it seems a bit young for arthritis…. I was wondering if anyone else has had a similiar problem? I have quite a bit of nerve damage in my shoulders/arms due to the surgeries, but only after my 5th dose (the first of the once-every-3-month-sessions) have I been having pains in my fingers. There is swelling and pain in two of my fingers on opposite hands. When I first started the trial, I had pain in my left foot. That has, thankfully, gone away. I guess I have something new to talk to The Wizard–as I kindly call my oncologist–on the 20th. I have had really bad headaches throughout this trial and thanks to my upcoming scans, I am starting to freak myself out……

      Thank you in advance for any advice you can share.

    Viewing 8 reply threads
    • Replies
        • January 6, 2012 at 10:55 am
        FormerCaregiver
        Participant

          It sounds like you could be having side effects that are related to an immune response.
          This might be due to ipi (Yervoy), if you are actually receiving it in the clinical
          trial. For more info see: http://www.yervoy.com/patient/side-effects.aspx

          I feel that it would be wise to tell your oncologist about your concerns soon.

          Hope this helps

          Frank from Australia

          • January 6, 2012 at 10:55 am
          FormerCaregiver
          Participant

            It sounds like you could be having side effects that are related to an immune response.
            This might be due to ipi (Yervoy), if you are actually receiving it in the clinical
            trial. For more info see: http://www.yervoy.com/patient/side-effects.aspx

            I feel that it would be wise to tell your oncologist about your concerns soon.

            Hope this helps

            Frank from Australia

            • January 6, 2012 at 10:55 am
            FormerCaregiver
            Participant

              It sounds like you could be having side effects that are related to an immune response.
              This might be due to ipi (Yervoy), if you are actually receiving it in the clinical
              trial. For more info see: http://www.yervoy.com/patient/side-effects.aspx

              I feel that it would be wise to tell your oncologist about your concerns soon.

              Hope this helps

              Frank from Australia

              • January 6, 2012 at 2:28 pm
              Gene_S
              Participant

                Hello,

                Joint pain is one of the side effects of Ipi so you might want to call your oncologist if it is to uncomfortable.  He might want to prescribe something to help.

                My husband had knee joint pain with his Ipi.

                Judy (loving wife and caregiver of Gene Stage IV)

                • January 6, 2012 at 2:28 pm
                Gene_S
                Participant

                  Hello,

                  Joint pain is one of the side effects of Ipi so you might want to call your oncologist if it is to uncomfortable.  He might want to prescribe something to help.

                  My husband had knee joint pain with his Ipi.

                  Judy (loving wife and caregiver of Gene Stage IV)

                  • January 6, 2012 at 2:28 pm
                  Gene_S
                  Participant

                    Hello,

                    Joint pain is one of the side effects of Ipi so you might want to call your oncologist if it is to uncomfortable.  He might want to prescribe something to help.

                    My husband had knee joint pain with his Ipi.

                    Judy (loving wife and caregiver of Gene Stage IV)

                    • January 6, 2012 at 11:02 pm
                    CLPrice31
                    Participant

                      Thank you both for your responses. I called to speak to my oncologist today, but I was unable to reach him directly A nurse–not the research nurse–called me back this evening and seemed clueless as to who I am, etc. He made it sound like there is a need for a CT scan which I explained I am already scheduled to have on the 18th of this month. The achey pain has been progressing all day. I hope to hear from the oncologist Monday.

                      • January 6, 2012 at 11:02 pm
                      CLPrice31
                      Participant

                        Thank you both for your responses. I called to speak to my oncologist today, but I was unable to reach him directly A nurse–not the research nurse–called me back this evening and seemed clueless as to who I am, etc. He made it sound like there is a need for a CT scan which I explained I am already scheduled to have on the 18th of this month. The achey pain has been progressing all day. I hope to hear from the oncologist Monday.

                        • January 6, 2012 at 11:02 pm
                        CLPrice31
                        Participant

                          Thank you both for your responses. I called to speak to my oncologist today, but I was unable to reach him directly A nurse–not the research nurse–called me back this evening and seemed clueless as to who I am, etc. He made it sound like there is a need for a CT scan which I explained I am already scheduled to have on the 18th of this month. The achey pain has been progressing all day. I hope to hear from the oncologist Monday.

                      Viewing 8 reply threads
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