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Jake?
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Jake?

› Forums › General Melanoma Community › Jake?

  • Post
    • October 28, 2017 at 10:02 pm
    KMick
    Participant

      Anyone heard news regarding Jake?  I think of him often and hope and pray for the best.

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    • Replies
        • November 9, 2017 at 7:48 am
        Momofjake
        Participant

          Hi there:) Jake is okay. The BRAF wore off and he has had SRS twice now for brain mets. We started to see several sub q tumors on his body as well. But just a few internally–liver and pelvic bones etc. The brain mets stopped him from a trial he wanted so they said all they really have for him is to try and go back on the Mek/Taf and see if round two will work. It's been like a month and the visible tumors have shrunk. Scans 11/28 so we will see. 

          Min the meantime he is kind of going to college and has an apartment w some friends which he LOVES!! He comes home a lot and I like to see how he looks a few times a week. But it's been 3 years now and he wants to be his own guy:) He never tells anyone he has cancer. Him and his brother tell people he was in a motorcycle wreck–the scars!! Ha!! It must seem way cooler! Man, he is a fun kid! Not sure where it goes from here. But it sure feels like 3 yrs and 3 mo has been kind of a miracle!! Praying he has lots more❤️

          Thanks for asking about him!!

          kerri–momofjake

            • November 10, 2017 at 3:53 am
            BrianP
            Participant

              Thanks for the update Kerri.  I think of you guys often as well.  Sorry Jake didn't get a longer run.  Hopefully more good results are just around the corner.  I love the motorcycle wreck story.

              So I have a little white lie also.  I have young kids (very young when all this started) and right or wrong we have elected to shield them from the melanoma world.  The only thing I haven't been able to shield them from is my port.  So when they got a little older and started asking what the lump was I told them it was my "power port" which is true because that's what it is called.  When they asked what it does I told them it is what makes daddy so strong.  I guess I'll have to come clean one day but hopefully my melanoma will be a distant memory by then.

              • November 12, 2017 at 3:39 pm
              Momofjake
              Participant

                Jake would support your cool choice of words with your kids!! I have seen Jake cry VERY rarely these last 3 yrs. Not once out of physical pain(biochemo, 7 surgeries etc). But after about 6 mo he had a breakdown sitting on his bed. He had thrown up all night, lost 30 lbs and looked like true death, then he said crying…."mom, I miss the way people used to treat me. I miss just being with my friends, even you treat me different". He says it's the hardest part for him. Maybe you guys are on to something! I think it's part of why Jake is moving to Hawaii for a few months:) He has done family time!! He wants some normal❤️❤️  I hope you are well!!! I hope you can do normal:)

                Thoughts and prayers,

                Kerri

                • November 12, 2017 at 3:39 pm
                Momofjake
                Participant

                  Jake would support your cool choice of words with your kids!! I have seen Jake cry VERY rarely these last 3 yrs. Not once out of physical pain(biochemo, 7 surgeries etc). But after about 6 mo he had a breakdown sitting on his bed. He had thrown up all night, lost 30 lbs and looked like true death, then he said crying…."mom, I miss the way people used to treat me. I miss just being with my friends, even you treat me different". He says it's the hardest part for him. Maybe you guys are on to something! I think it's part of why Jake is moving to Hawaii for a few months:) He has done family time!! He wants some normal❤️❤️  I hope you are well!!! I hope you can do normal:)

                  Thoughts and prayers,

                  Kerri

                • November 15, 2017 at 3:50 am
                KMick
                Participant

                  Thank you for the update Kerri.  Like I said I think of Jake often and hope and pray for the best.  

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