Jake

Kerri-

I'm so happy to hear Jake had improvement and sounds like 2 good months!! In the reply to KMick's post, you saw I said I just imagine they're doing great. I mean I pray for that for all of us but especially the ones who haven't posted. 

Jake is hardest on you I imagine because how close he is to you, how much he loves you and you're the one there supporting him. I can tell you initially I was hard on my wife. It took me awhile to learn how to cope, she bore the brunt and it's because I love her so much and Iit took me time to understand what this has done to her; not just me. Anyway you're a great mom. It does break my heart to hear a young man discuss "the end". I get it…quality of life. He is wise beyond his years. I will continue to pray for Jake, you and your family. I'm glad you checked in and updated. Love & Prayers!

Josh

 

Kerri-

I'm so happy to hear Jake had improvement and sounds like 2 good months!! In the reply to KMick's post, you saw I said I just imagine they're doing great. I mean I pray for that for all of us but especially the ones who haven't posted. 

Jake is hardest on you I imagine because how close he is to you, how much he loves you and you're the one there supporting him. I can tell you initially I was hard on my wife. It took me awhile to learn how to cope, she bore the brunt and it's because I love her so much and Iit took me time to understand what this has done to her; not just me. Anyway you're a great mom. It does break my heart to hear a young man discuss "the end". I get it…quality of life. He is wise beyond his years. I will continue to pray for Jake, you and your family. I'm glad you checked in and updated. Love & Prayers!

Josh

 

Kerri-

I'm so happy to hear Jake had improvement and sounds like 2 good months!! In the reply to KMick's post, you saw I said I just imagine they're doing great. I mean I pray for that for all of us but especially the ones who haven't posted. 

Jake is hardest on you I imagine because how close he is to you, how much he loves you and you're the one there supporting him. I can tell you initially I was hard on my wife. It took me awhile to learn how to cope, she bore the brunt and it's because I love her so much and Iit took me time to understand what this has done to her; not just me. Anyway you're a great mom. It does break my heart to hear a young man discuss "the end". I get it…quality of life. He is wise beyond his years. I will continue to pray for Jake, you and your family. I'm glad you checked in and updated. Love & Prayers!

Josh

 

Dear Kerri,

 

so glad you stopped by to say hi and bring good news, I was a little worried but hopefull you are MIA because you are enjoying your summer with your family…. Hope your vacation you mentioned in June was everything you expected it to be…

I can understand the dinamic between you and your Son, don´t be saddned by his harsh ways with you, we tend to do that to the person closest to us… My father is the same way with me and I have absolutely no hard feelings about it, cause i know he has to let out his stress sometimes and he knows i am probably the only one who will accept it and not get angry with him…. I just want him to be healthy, don´t really care if he "misbehaves" sometimes :-))))))))

I will continue to pray for Jake, he sounds like a wonderful young man and I am sure he will beat this thing!

Love,

 

Patrisa

 

Dear Kerri,

 

so glad you stopped by to say hi and bring good news, I was a little worried but hopefull you are MIA because you are enjoying your summer with your family…. Hope your vacation you mentioned in June was everything you expected it to be…

I can understand the dinamic between you and your Son, don´t be saddned by his harsh ways with you, we tend to do that to the person closest to us… My father is the same way with me and I have absolutely no hard feelings about it, cause i know he has to let out his stress sometimes and he knows i am probably the only one who will accept it and not get angry with him…. I just want him to be healthy, don´t really care if he "misbehaves" sometimes :-))))))))

I will continue to pray for Jake, he sounds like a wonderful young man and I am sure he will beat this thing!

Love,

 

Patrisa

 

Dear Kerri,

 

so glad you stopped by to say hi and bring good news, I was a little worried but hopefull you are MIA because you are enjoying your summer with your family…. Hope your vacation you mentioned in June was everything you expected it to be…

I can understand the dinamic between you and your Son, don´t be saddned by his harsh ways with you, we tend to do that to the person closest to us… My father is the same way with me and I have absolutely no hard feelings about it, cause i know he has to let out his stress sometimes and he knows i am probably the only one who will accept it and not get angry with him…. I just want him to be healthy, don´t really care if he "misbehaves" sometimes :-))))))))

I will continue to pray for Jake, he sounds like a wonderful young man and I am sure he will beat this thing!

Love,

 

Patrisa

 

Kerri – just wanted to let you and Jake know that my husband was on Tafinlar for 2 1/2 years after initial tumor reduction followed by stable tumor load.  He was also not able to tolerate the combo with Mekinist and was on varying doses of Tafinlar so it can last longer than you might imagine.  A lot can happen in the world of cancer research in that length of time – always need to have hope that the drug that works is just around the research corner.  Sending my prayers for Jake and your family.

 

Ann

Kerri – just wanted to let you and Jake know that my husband was on Tafinlar for 2 1/2 years after initial tumor reduction followed by stable tumor load.  He was also not able to tolerate the combo with Mekinist and was on varying doses of Tafinlar so it can last longer than you might imagine.  A lot can happen in the world of cancer research in that length of time – always need to have hope that the drug that works is just around the research corner.  Sending my prayers for Jake and your family.

 

Ann

Kerri – just wanted to let you and Jake know that my husband was on Tafinlar for 2 1/2 years after initial tumor reduction followed by stable tumor load.  He was also not able to tolerate the combo with Mekinist and was on varying doses of Tafinlar so it can last longer than you might imagine.  A lot can happen in the world of cancer research in that length of time – always need to have hope that the drug that works is just around the research corner.  Sending my prayers for Jake and your family.

 

Ann

Hi Kerri,

Jake has really been on my mind as well.  So glad you updated us and especially glad he may very well be responding to BRAF inhibitors.  They do have an effect of immediately knocking down tumor load which often sets the stage for other treatments.  I was just recommended to join a trial of a new combo of BRAF inhibitors, so even if TAF runs its course, other BRAF options remain.  Many of us parents understand the dynamic between you and Jake and yes, you are an awesome Mom letting him be in-charge of his own body/life. It's scary, but no doubt what will work best for him.  He seems to be mentally battling the beast, in the right way.  Focused on survival and quality of life, rather than letting it get the best of him.  He is an amazing young man and you have much to be proud of.  We look forward to more updates and his defeat of this insidious disease.

Gary

Hi Kerri,

Jake has really been on my mind as well.  So glad you updated us and especially glad he may very well be responding to BRAF inhibitors.  They do have an effect of immediately knocking down tumor load which often sets the stage for other treatments.  I was just recommended to join a trial of a new combo of BRAF inhibitors, so even if TAF runs its course, other BRAF options remain.  Many of us parents understand the dynamic between you and Jake and yes, you are an awesome Mom letting him be in-charge of his own body/life. It's scary, but no doubt what will work best for him.  He seems to be mentally battling the beast, in the right way.  Focused on survival and quality of life, rather than letting it get the best of him.  He is an amazing young man and you have much to be proud of.  We look forward to more updates and his defeat of this insidious disease.

Gary

Hi Kerri,

Jake has really been on my mind as well.  So glad you updated us and especially glad he may very well be responding to BRAF inhibitors.  They do have an effect of immediately knocking down tumor load which often sets the stage for other treatments.  I was just recommended to join a trial of a new combo of BRAF inhibitors, so even if TAF runs its course, other BRAF options remain.  Many of us parents understand the dynamic between you and Jake and yes, you are an awesome Mom letting him be in-charge of his own body/life. It's scary, but no doubt what will work best for him.  He seems to be mentally battling the beast, in the right way.  Focused on survival and quality of life, rather than letting it get the best of him.  He is an amazing young man and you have much to be proud of.  We look forward to more updates and his defeat of this insidious disease.

Gary

I'm so glad to hear an update on Jake, he is obviously such a great kid and you are obviously an amazing mom.  Family members (kids, parents, siblings, spouses) are always toughest on eachother, but I guess it's because we are all so close to one another. . Kind of like how people say "Your kid is so well behaved and well mannered" and I'm thinking……are they talking about my kid, they can't be, if only they could see them at home!  He may also be trying to protect you in a weird way, my husband never told his mom his diagnosis (she is turning 90 this year).  I can't imagine going through this as a parent, but i've also had to give up "control" where my husband is concerned.  I want to run his medical regimen but he has a very different approach (which is wait and watch) and I'm learning to accept that.  it's hard though, feels like I'm OUT of control then.  My husband is Ukrainian and swears by the power of both pickle juice and Red cider vinegar as the cure for everything, and I just want to show him all the evidence-based medical research which he won't look at.

As someone that has read a lot of medical research, I can say that the placebo effect is pretty powerful, so Jake may be onto something there.  There is just so much unknown out there, and I can appreciate his search for knowledge and truth.

You are quite amazing!  Thank you for the update and wishing Jake all the best results possible.

 

 

 

I'm so glad to hear an update on Jake, he is obviously such a great kid and you are obviously an amazing mom.  Family members (kids, parents, siblings, spouses) are always toughest on eachother, but I guess it's because we are all so close to one another. . Kind of like how people say "Your kid is so well behaved and well mannered" and I'm thinking……are they talking about my kid, they can't be, if only they could see them at home!  He may also be trying to protect you in a weird way, my husband never told his mom his diagnosis (she is turning 90 this year).  I can't imagine going through this as a parent, but i've also had to give up "control" where my husband is concerned.  I want to run his medical regimen but he has a very different approach (which is wait and watch) and I'm learning to accept that.  it's hard though, feels like I'm OUT of control then.  My husband is Ukrainian and swears by the power of both pickle juice and Red cider vinegar as the cure for everything, and I just want to show him all the evidence-based medical research which he won't look at.

As someone that has read a lot of medical research, I can say that the placebo effect is pretty powerful, so Jake may be onto something there.  There is just so much unknown out there, and I can appreciate his search for knowledge and truth.

You are quite amazing!  Thank you for the update and wishing Jake all the best results possible.

 

 

 

I'm so glad to hear an update on Jake, he is obviously such a great kid and you are obviously an amazing mom.  Family members (kids, parents, siblings, spouses) are always toughest on eachother, but I guess it's because we are all so close to one another. . Kind of like how people say "Your kid is so well behaved and well mannered" and I'm thinking……are they talking about my kid, they can't be, if only they could see them at home!  He may also be trying to protect you in a weird way, my husband never told his mom his diagnosis (she is turning 90 this year).  I can't imagine going through this as a parent, but i've also had to give up "control" where my husband is concerned.  I want to run his medical regimen but he has a very different approach (which is wait and watch) and I'm learning to accept that.  it's hard though, feels like I'm OUT of control then.  My husband is Ukrainian and swears by the power of both pickle juice and Red cider vinegar as the cure for everything, and I just want to show him all the evidence-based medical research which he won't look at.

As someone that has read a lot of medical research, I can say that the placebo effect is pretty powerful, so Jake may be onto something there.  There is just so much unknown out there, and I can appreciate his search for knowledge and truth.

You are quite amazing!  Thank you for the update and wishing Jake all the best results possible.

 

 

 

Kerri,

Thank you so much for the update. I was so happy to hear such positive news about Jake.  Sending good thoughts your way always.  Take care.

Kerri,

Thank you so much for the update. I was so happy to hear such positive news about Jake.  Sending good thoughts your way always.  Take care.

Kerri,

Thank you so much for the update. I was so happy to hear such positive news about Jake.  Sending good thoughts your way always.  Take care.

Thanks for posting Kerri.  I've been thinking about you and Jake often.  Glad to hear TAF is knocking things back and I hope you all get a long run on it.  It does sound like Jake is wise beyond his years but one of the areas that most young adults are the last to get wise in is how much their parents love them and how much they do and sacrifice for them.  That day will come.  Hang in there.

Brian

Thanks for posting Kerri.  I've been thinking about you and Jake often.  Glad to hear TAF is knocking things back and I hope you all get a long run on it.  It does sound like Jake is wise beyond his years but one of the areas that most young adults are the last to get wise in is how much their parents love them and how much they do and sacrifice for them.  That day will come.  Hang in there.

Brian

Thanks for posting Kerri.  I've been thinking about you and Jake often.  Glad to hear TAF is knocking things back and I hope you all get a long run on it.  It does sound like Jake is wise beyond his years but one of the areas that most young adults are the last to get wise in is how much their parents love them and how much they do and sacrifice for them.  That day will come.  Hang in there.

Brian

A mother's love is one of the most powerful treatments I have ever borne witness to. And Jake has that is abundance. Hang in there. Celeste

A mother's love is one of the most powerful treatments I have ever borne witness to. And Jake has that is abundance. Hang in there. Celeste

A mother's love is one of the most powerful treatments I have ever borne witness to. And Jake has that is abundance. Hang in there. Celeste

Thank you so much for the update, Kerri – I often think of you and Jake and hope you both are doing well. Jake has def grown older and much wiser the past 2 years – and while he thinks he holds the burden all on his shoulders, he doesn’t know how much of that burden is on yours as well. I know it must be incredibly hard to watch him go through this, but keep and open heart and a friendly open ear and he will always come to you when he needs you. Wishing you both health and happiness and keep us updated on the scans coming up!

Lauren

Thank you so much for the update, Kerri – I often think of you and Jake and hope you both are doing well. Jake has def grown older and much wiser the past 2 years – and while he thinks he holds the burden all on his shoulders, he doesn’t know how much of that burden is on yours as well. I know it must be incredibly hard to watch him go through this, but keep and open heart and a friendly open ear and he will always come to you when he needs you. Wishing you both health and happiness and keep us updated on the scans coming up!

Lauren

Thank you so much for the update, Kerri – I often think of you and Jake and hope you both are doing well. Jake has def grown older and much wiser the past 2 years – and while he thinks he holds the burden all on his shoulders, he doesn’t know how much of that burden is on yours as well. I know it must be incredibly hard to watch him go through this, but keep and open heart and a friendly open ear and he will always come to you when he needs you. Wishing you both health and happiness and keep us updated on the scans coming up!

Lauren