› Forums › General Melanoma Community › Jaimeth29 and Lee P
- This topic has 36 replies, 6 voices, and was last updated 7 years, 6 months ago by
jamieth29.
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- October 19, 2016 at 2:03 pm
Still here Josh!! I have been keeping up following everyone just have had a lot going through my head lately and haven’t felt like posting. Quick update…ok maybe not quick. Last week emailed each other in told you of the lump of felt under my arm. That has gone away and I think I caused it by feeling around my lymph nodes to much. But the big problem right now is my head. The past few days I had gotten sort of a pulsing similar to when one of my treated brain mets bleed, been happening maybe once or twice a day since last Thursday. Called my local doc and he immediately had me come in for a mri. The repot stated no new lesions but did show a spot of hyperintensive activity in high right paratiel region only on flair imaging. It stated findings are non specific and could be do to about 3 or 4 things…a convexal subarachnoid hemorrhage,I think that means a tiny blood vessel that possibly ruptured,proteinaceous material,that is nothing I think and also and less likely artifact-me moving in mri. The scary part lepto or meningitis are less likely possibilities without enhancement. The doc said it doesn’t warrant a lumbar puncture or anything the radiologist could not tell what it was just that something showed. He said give it a week or two and see if symptoms go away or get worse-if they get worse we’ll have to dig deeper. So could be nothing,could be something again. So of course lots of things running through my mind. I have had a kind of chest/head cold for a bit and hoping maybe that had something to do with symptoms. Just hope I’m not reaching for straws here. Anyway man thanks for asking about me. I’ve read all your posts and I think things sound like they are moving in the right direction for you. Been thinking about you and everyone else here also. One thing that has crossed my mind is no matter what happens to me I wouldn’t trade my life for anything. I have 3 great kids and been with a great wife. In the long run into have no regrets. I have never believed this was gonna get me and I’m going to continue to think that way! -
- October 19, 2016 at 2:03 pm
Still here Josh!! I have been keeping up following everyone just have had a lot going through my head lately and haven’t felt like posting. Quick update…ok maybe not quick. Last week emailed each other in told you of the lump of felt under my arm. That has gone away and I think I caused it by feeling around my lymph nodes to much. But the big problem right now is my head. The past few days I had gotten sort of a pulsing similar to when one of my treated brain mets bleed, been happening maybe once or twice a day since last Thursday. Called my local doc and he immediately had me come in for a mri. The repot stated no new lesions but did show a spot of hyperintensive activity in high right paratiel region only on flair imaging. It stated findings are non specific and could be do to about 3 or 4 things…a convexal subarachnoid hemorrhage,I think that means a tiny blood vessel that possibly ruptured,proteinaceous material,that is nothing I think and also and less likely artifact-me moving in mri. The scary part lepto or meningitis are less likely possibilities without enhancement. The doc said it doesn’t warrant a lumbar puncture or anything the radiologist could not tell what it was just that something showed. He said give it a week or two and see if symptoms go away or get worse-if they get worse we’ll have to dig deeper. So could be nothing,could be something again. So of course lots of things running through my mind. I have had a kind of chest/head cold for a bit and hoping maybe that had something to do with symptoms. Just hope I’m not reaching for straws here. Anyway man thanks for asking about me. I’ve read all your posts and I think things sound like they are moving in the right direction for you. Been thinking about you and everyone else here also. One thing that has crossed my mind is no matter what happens to me I wouldn’t trade my life for anything. I have 3 great kids and been with a great wife. In the long run into have no regrets. I have never believed this was gonna get me and I’m going to continue to think that way!-
- October 20, 2016 at 1:45 am
I too have been thinking about you and your family! You have an amazing attitude and as I have said, "neighbor" if I can help in ANY way I am a text or phone call away! Hang in there, as hard as it gets you are tougher than melanoma or any of its side effects!
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- October 20, 2016 at 1:45 am
I too have been thinking about you and your family! You have an amazing attitude and as I have said, "neighbor" if I can help in ANY way I am a text or phone call away! Hang in there, as hard as it gets you are tougher than melanoma or any of its side effects!
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- October 21, 2016 at 2:09 am
Since I am asymptomatic insurance won't approve a scan until March. SO I sm grateful I have no symptoms, yet at stage 3C I am frightened at what could be going on internally. I take each day and am grateful to be here. If lymphedema is all I have to deal with I am truly grateful.
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- October 21, 2016 at 2:09 am
Since I am asymptomatic insurance won't approve a scan until March. SO I sm grateful I have no symptoms, yet at stage 3C I am frightened at what could be going on internally. I take each day and am grateful to be here. If lymphedema is all I have to deal with I am truly grateful.
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- October 21, 2016 at 2:09 am
Since I am asymptomatic insurance won't approve a scan until March. SO I sm grateful I have no symptoms, yet at stage 3C I am frightened at what could be going on internally. I take each day and am grateful to be here. If lymphedema is all I have to deal with I am truly grateful.
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- October 20, 2016 at 1:45 am
I too have been thinking about you and your family! You have an amazing attitude and as I have said, "neighbor" if I can help in ANY way I am a text or phone call away! Hang in there, as hard as it gets you are tougher than melanoma or any of its side effects!
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- October 19, 2016 at 2:03 pm
Still here Josh!! I have been keeping up following everyone just have had a lot going through my head lately and haven’t felt like posting. Quick update…ok maybe not quick. Last week emailed each other in told you of the lump of felt under my arm. That has gone away and I think I caused it by feeling around my lymph nodes to much. But the big problem right now is my head. The past few days I had gotten sort of a pulsing similar to when one of my treated brain mets bleed, been happening maybe once or twice a day since last Thursday. Called my local doc and he immediately had me come in for a mri. The repot stated no new lesions but did show a spot of hyperintensive activity in high right paratiel region only on flair imaging. It stated findings are non specific and could be do to about 3 or 4 things…a convexal subarachnoid hemorrhage,I think that means a tiny blood vessel that possibly ruptured,proteinaceous material,that is nothing I think and also and less likely artifact-me moving in mri. The scary part lepto or meningitis are less likely possibilities without enhancement. The doc said it doesn’t warrant a lumbar puncture or anything the radiologist could not tell what it was just that something showed. He said give it a week or two and see if symptoms go away or get worse-if they get worse we’ll have to dig deeper. So could be nothing,could be something again. So of course lots of things running through my mind. I have had a kind of chest/head cold for a bit and hoping maybe that had something to do with symptoms. Just hope I’m not reaching for straws here. Anyway man thanks for asking about me. I’ve read all your posts and I think things sound like they are moving in the right direction for you. Been thinking about you and everyone else here also. One thing that has crossed my mind is no matter what happens to me I wouldn’t trade my life for anything. I have 3 great kids and been with a great wife. In the long run into have no regrets. I have never believed this was gonna get me and I’m going to continue to think that way! -
- October 19, 2016 at 7:18 pm
Hi Jamie- I too am so glad Josh asked about you….think of you soooooooo often.
I will hope and cross my fingers that your recent symptoms turn out to be any one of the "nothings" you listed and no more!
I understand about not posting, but glad to hear from you.
Continued good thoughts coming to you.
BEST,
jenny
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- October 19, 2016 at 7:18 pm
Hi Jamie- I too am so glad Josh asked about you….think of you soooooooo often.
I will hope and cross my fingers that your recent symptoms turn out to be any one of the "nothings" you listed and no more!
I understand about not posting, but glad to hear from you.
Continued good thoughts coming to you.
BEST,
jenny
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- October 19, 2016 at 11:19 pm
Oh brother, glad to hear from you. I was going to email you tonight if I didn't see anything on the board. I'm glad that bump was nothing, I know the anxiety was high with that. I get what you're going through with anxiety being out of control, as we discussed in the same way. You're right though, you have to push through and live…no other choices. Celeste had good post on her blog about living. It's not always easy but what I've come to realize is that if I feel good I'm going at it. Like you my wife and kids are what make me happiest so I try to take advantage of good days. Unfortunately I had more bad days than good but I am feeling better. I'm still an emotional wreck and as I tell my wife, I just want to feel good because then I find more enjoyment in life. I'm really glad to hear from you and pray that everything upstairs is all good. I know you're on top of it!!
So far for me I've noticed 2 sub-q's getting smaller which is good…I'm just waiting for the half dozen or so to start responding. Then we'll see Nov 4 what's happening inside me…MRI and CT. Tomorrow it'll be a month since I received cells…they said give it time!! You know how my mind works…I'm ready for a complete response yesterday!!! Again so glad to hear from you and keep in touch brother!
Now Lee…what are you up to?
Josh
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- October 19, 2016 at 11:19 pm
Oh brother, glad to hear from you. I was going to email you tonight if I didn't see anything on the board. I'm glad that bump was nothing, I know the anxiety was high with that. I get what you're going through with anxiety being out of control, as we discussed in the same way. You're right though, you have to push through and live…no other choices. Celeste had good post on her blog about living. It's not always easy but what I've come to realize is that if I feel good I'm going at it. Like you my wife and kids are what make me happiest so I try to take advantage of good days. Unfortunately I had more bad days than good but I am feeling better. I'm still an emotional wreck and as I tell my wife, I just want to feel good because then I find more enjoyment in life. I'm really glad to hear from you and pray that everything upstairs is all good. I know you're on top of it!!
So far for me I've noticed 2 sub-q's getting smaller which is good…I'm just waiting for the half dozen or so to start responding. Then we'll see Nov 4 what's happening inside me…MRI and CT. Tomorrow it'll be a month since I received cells…they said give it time!! You know how my mind works…I'm ready for a complete response yesterday!!! Again so glad to hear from you and keep in touch brother!
Now Lee…what are you up to?
Josh
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- October 19, 2016 at 11:19 pm
Oh brother, glad to hear from you. I was going to email you tonight if I didn't see anything on the board. I'm glad that bump was nothing, I know the anxiety was high with that. I get what you're going through with anxiety being out of control, as we discussed in the same way. You're right though, you have to push through and live…no other choices. Celeste had good post on her blog about living. It's not always easy but what I've come to realize is that if I feel good I'm going at it. Like you my wife and kids are what make me happiest so I try to take advantage of good days. Unfortunately I had more bad days than good but I am feeling better. I'm still an emotional wreck and as I tell my wife, I just want to feel good because then I find more enjoyment in life. I'm really glad to hear from you and pray that everything upstairs is all good. I know you're on top of it!!
So far for me I've noticed 2 sub-q's getting smaller which is good…I'm just waiting for the half dozen or so to start responding. Then we'll see Nov 4 what's happening inside me…MRI and CT. Tomorrow it'll be a month since I received cells…they said give it time!! You know how my mind works…I'm ready for a complete response yesterday!!! Again so glad to hear from you and keep in touch brother!
Now Lee…what are you up to?
Josh
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- October 19, 2016 at 7:18 pm
Hi Jamie- I too am so glad Josh asked about you….think of you soooooooo often.
I will hope and cross my fingers that your recent symptoms turn out to be any one of the "nothings" you listed and no more!
I understand about not posting, but glad to hear from you.
Continued good thoughts coming to you.
BEST,
jenny
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- October 21, 2016 at 2:08 pm
Hi Jamie,
Glad to hear from you. Sorry about the constant ups and downs. They are exhausting! I hope you are able to look at them, see them for what they are and let them go until you have to deal with them on dr days. I shoot for the motto–don't ruin today!! If we need to be disappointed, worried or sad on dr days, well then we will(and I hate those so much)! But I want to be happy every day I don't have to hear the news and that Jake feels good. I hope we can manage this and I hope you get lots of happy days!! Please let us know how the next week or two goes:)
You got friends here,
Kerri
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- October 21, 2016 at 2:08 pm
Hi Jamie,
Glad to hear from you. Sorry about the constant ups and downs. They are exhausting! I hope you are able to look at them, see them for what they are and let them go until you have to deal with them on dr days. I shoot for the motto–don't ruin today!! If we need to be disappointed, worried or sad on dr days, well then we will(and I hate those so much)! But I want to be happy every day I don't have to hear the news and that Jake feels good. I hope we can manage this and I hope you get lots of happy days!! Please let us know how the next week or two goes:)
You got friends here,
Kerri
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- October 21, 2016 at 2:08 pm
Hi Jamie,
Glad to hear from you. Sorry about the constant ups and downs. They are exhausting! I hope you are able to look at them, see them for what they are and let them go until you have to deal with them on dr days. I shoot for the motto–don't ruin today!! If we need to be disappointed, worried or sad on dr days, well then we will(and I hate those so much)! But I want to be happy every day I don't have to hear the news and that Jake feels good. I hope we can manage this and I hope you get lots of happy days!! Please let us know how the next week or two goes:)
You got friends here,
Kerri
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