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Ipi related question
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Ipi related question

› Forums › General Melanoma Community › Ipi related question

  • Post
    • February 23, 2014 at 2:31 am
    nancyg
    Participant

      My husband's bone scan revealed…lesions on rib cage and a lesion on his rt temporal lobe…. He started his ipi infusions Sept… finished Nov 2013…. Had two CT scans Dec/Jan….big tumor on lung shrunk by50% one disappeared completely and others all stable… We are thrilled….. But then the bone scan results threw us off …those lesions did not show up on the Jan 10 CT.. Bone scan done Jan 16..So ..Do bone lesions show up on Ct or PET scans? (Obviously not, right?) Also, he had an appointment yesterday  and his LDH levels are going up… So the Dr  seems to think that the ipi may have stopped. Working???    The dr also feels that there were no bone lesions until October or after… Because a PET and  a CT scan done in July/September showed no indication  of bone involvement…So confused!!!! Can ipi be shrinking and stabilizing  some tumors…while lesions are spreading on the bone??  Like my husband says one step forward two steps back…trying to remain positive… He is Going for a Pet scan Tuesday and Brain MRI Friday

      Thanks and God Bless

      Nancy

       

    Viewing 8 reply threads
    • Replies
        • February 23, 2014 at 2:34 am
        nancyg
        Participant

          Oops…. Made a mistake… The bone scan  revealed a lesion on the RT temporal BONE not lobe

          sorry!

          • February 23, 2014 at 2:34 am
          nancyg
          Participant

            Oops…. Made a mistake… The bone scan  revealed a lesion on the RT temporal BONE not lobe

            sorry!

            • February 23, 2014 at 2:34 am
            nancyg
            Participant

              Oops…. Made a mistake… The bone scan  revealed a lesion on the RT temporal BONE not lobe

              sorry!

              • February 24, 2014 at 4:12 pm
              Ali
              Participant

                Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                That's exciting that he has had a respnes, hopefully there is more good news to come!!

                 

                • February 24, 2014 at 4:12 pm
                Ali
                Participant

                  Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                  Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                  That's exciting that he has had a respnes, hopefully there is more good news to come!!

                   

                  • February 24, 2014 at 4:12 pm
                  Ali
                  Participant

                    Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                    Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                    That's exciting that he has had a respnes, hopefully there is more good news to come!!

                     

                    • February 24, 2014 at 4:12 pm
                    Ali
                    Participant

                      Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                      Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                      That's exciting that he has had a respnes, hopefully there is more good news to come!!

                       

                        • February 25, 2014 at 7:20 pm
                        nancyg
                        Participant

                          Thank you for your response… Wishing you well!

                          Nancy

                           

                          • February 25, 2014 at 7:20 pm
                          nancyg
                          Participant

                            Thank you for your response… Wishing you well!

                            Nancy

                             

                            • February 25, 2014 at 7:20 pm
                            nancyg
                            Participant

                              Thank you for your response… Wishing you well!

                              Nancy

                               

                            • February 24, 2014 at 4:12 pm
                            Ali
                            Participant

                              Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                              Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                              That's exciting that he has had a respnes, hopefully there is more good news to come!!

                               

                              • February 24, 2014 at 4:12 pm
                              Ali
                              Participant

                                Yes, IPI can be shrinking and stabelizing some tumors while others are growing (so confusing).  This has been the case with me and almost all the immunotherapies I've been on.  I think all my bone tumors did show up on a CT, but for sure the PET, so I'm not sure why they do a bone scan. 

                                Radiation helped with my bone lesions, sometimes if you are responding to IPI and you have a couple of pesky tumors they will try and radiate them or surgically remove them.

                                That's exciting that he has had a respnes, hopefully there is more good news to come!!

                                 

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