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Ipi + Nivo trial start date

Forums General Melanoma Community Ipi + Nivo trial start date

  • Post
    Eileensulliv
    Participant

      Happy Sunday! A few weeks ago I posted asking if anyone could share their experiences on ipi and nivo, amd I am very grateful for the responses! I decided to go forward with the trial to treat my mets in my bowel and lung, and I also had a wider excision of the recurrence in my back on Feb. 5th. The path report stated there were all clear margins of that tumor. The incision is healing nicely, and despite of the fact that I still cannot wear a bra, I am going back to work on Monday (this should be interesting!) 

      This Thursday I am going for my first infusion of Yervoy and Nivolumab at Johns Hopkins. Although I am a bit nervous (I've never had any treatment of any sort) I am also very excited to get this started!! I am so hopeful that this will help!! And I am also excited because my dad arrives here the night before my treatment and will be staying for a week!

      There is some talk of putting in a port, just because I have lymphadema in both of my arms, but they said we would revisit the topic after my first treatment. 

      On a side note, we got about 10 inches of snow yesterday. Although it's beautiful, I'm ready for spring and some cherry blossoms… And a plow truck on our street would be nice, also! C'mon, Spring!!!

    Viewing 8 reply threads
    • Replies
        BrianP
        Participant

          Awesome Eileen! (The trial start, not all the snow). I'm very hopeful for you. I've had a port for about 17 of the 19 months I've been on my trial and I'm very thankful I've had it. Procedure putting it in isn't too bad and it makes the infusions and numerous blood draws so much easier. 

          Brian

          BrianP
          Participant

            Awesome Eileen! (The trial start, not all the snow). I'm very hopeful for you. I've had a port for about 17 of the 19 months I've been on my trial and I'm very thankful I've had it. Procedure putting it in isn't too bad and it makes the infusions and numerous blood draws so much easier. 

            Brian

            BrianP
            Participant

              Awesome Eileen! (The trial start, not all the snow). I'm very hopeful for you. I've had a port for about 17 of the 19 months I've been on my trial and I'm very thankful I've had it. Procedure putting it in isn't too bad and it makes the infusions and numerous blood draws so much easier. 

              Brian

              Bubbles
              Participant

                Glad you are starting ipi and nivo, Eileen!!  Spring will come!!  I wish you well!!!  C

                Bubbles
                Participant

                  Glad you are starting ipi and nivo, Eileen!!  Spring will come!!  I wish you well!!!  C

                  Bubbles
                  Participant

                    Glad you are starting ipi and nivo, Eileen!!  Spring will come!!  I wish you well!!!  C

                    AshleyS
                    Participant

                      Hi Eileen!

                      I hope this is the answer for you. I'm also starting an Ipi + Nivo trial next week but at MD Anderson. I'm also hopeful and excited. Good luck! Keep in touch!

                      Ashley

                      AshleyS
                      Participant

                        Hi Eileen!

                        I hope this is the answer for you. I'm also starting an Ipi + Nivo trial next week but at MD Anderson. I'm also hopeful and excited. Good luck! Keep in touch!

                        Ashley

                        AshleyS
                        Participant

                          Hi Eileen!

                          I hope this is the answer for you. I'm also starting an Ipi + Nivo trial next week but at MD Anderson. I'm also hopeful and excited. Good luck! Keep in touch!

                          Ashley

                      Viewing 8 reply threads
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