The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Ipi/interferon trial

Forums General Melanoma Community Ipi/interferon trial

  • Post
    Marianne quinn
    Participant

      My husband is having his 2nd dose of 10 mg ipi tomorrow. He did very well with the first dose and we are so glad he did not get the interferon arm. Has anyone out there participated in this trial with the high dose ipi? How did it go? Any tips?  He got melanoma from hitting his thumb with a hammer! The wound never healed. This is very rare. He had  a partial amputation. He had two positive nodes and then a lymphendectomy. So far, so good. Feeling positive and being active. Any feedback would be appreciated.

    Viewing 2 reply threads
    • Replies
        Gene_S
        Participant

          My husband did the high dose of Ipi but not in the same trial as you are in.  He started the 10 mg/kg in March 2011 and became NED in Oct. of 2012 while just recently stopping the Ipi maintenance in Dec. 2013.

          You can read more in his profile if you wish.  He had a few side effects but none of the really bad ones.  He got his white eyebrows and lost the pigmentation in his face but this made the Dr. very happy as he said you can see the Ipi is working.

          Judy (loving wife of Gene Stage IV and now NED)

          Gene_S
          Participant

            My husband did the high dose of Ipi but not in the same trial as you are in.  He started the 10 mg/kg in March 2011 and became NED in Oct. of 2012 while just recently stopping the Ipi maintenance in Dec. 2013.

            You can read more in his profile if you wish.  He had a few side effects but none of the really bad ones.  He got his white eyebrows and lost the pigmentation in his face but this made the Dr. very happy as he said you can see the Ipi is working.

            Judy (loving wife of Gene Stage IV and now NED)

            Gene_S
            Participant

              My husband did the high dose of Ipi but not in the same trial as you are in.  He started the 10 mg/kg in March 2011 and became NED in Oct. of 2012 while just recently stopping the Ipi maintenance in Dec. 2013.

              You can read more in his profile if you wish.  He had a few side effects but none of the really bad ones.  He got his white eyebrows and lost the pigmentation in his face but this made the Dr. very happy as he said you can see the Ipi is working.

              Judy (loving wife of Gene Stage IV and now NED)

          Viewing 2 reply threads
          • You must be logged in to reply to this topic.
          About the MRF Patient Forum

          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.