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I’m back

› Forums › General Melanoma Community › I’m back

  • Post
    • January 6, 2013 at 4:59 pm
    Alan Muir
    Participant

    It's been over 3 years since Stephanie passed away.  I now have a new girlfriend.  Her daughter, age 26, was diagnosed with melanoma late last year.  It appears that she is stage III, as a few mm cells were found in her sentinal node.  Her onc is recommending LND and Interferon.  She's being treated at Bay State hospital in Springfield, MA.

    Of course, my girlfriend is worried sick.  I'll do what I can for her and for her daughter.

    It's been over 3 years since Stephanie passed away.  I now have a new girlfriend.  Her daughter, age 26, was diagnosed with melanoma late last year.  It appears that she is stage III, as a few mm cells were found in her sentinal node.  Her onc is recommending LND and Interferon.  She's being treated at Bay State hospital in Springfield, MA.

    Of course, my girlfriend is worried sick.  I'll do what I can for her and for her daughter.

Viewing 11 reply threads
  • Replies
      • January 6, 2013 at 5:57 pm
      bikerwife
      Participant

      Lots of new drugs are available know. Lord I know it's hard to stay strong but we have to.Saying prayers for y'all.

      • January 6, 2013 at 5:57 pm
      bikerwife
      Participant

      Lots of new drugs are available know. Lord I know it's hard to stay strong but we have to.Saying prayers for y'all.

      • January 6, 2013 at 5:57 pm
      bikerwife
      Participant

      Lots of new drugs are available know. Lord I know it's hard to stay strong but we have to.Saying prayers for y'all.

      • January 6, 2013 at 9:15 pm
      DonW
      Participant

      Hi, Alan. I remember you very well from the old days. Nice to see you, but of course not under these circumstances. I think there is at least one of the newer treatments that is being tried for stage III. You might check with large cancer centers in your area (NY, Boston). With the dicey effectiveness of Inf, I think it's worth investigating options. Maybe someone on this forum who is more knowledgeable than myself can point you in the right direction. Anyway, good luck to your GF's daughter.

        • January 6, 2013 at 10:09 pm
        Alan Muir
        Participant

        Hi Don,

        Long time, huh?  Glad to see you're doing well.

        Yeah, her doc suggested that she get a second opinion at Dana Farber cancer center in Boston.  When Stephanie was going there, she was uder the care of Dr. Stephen Hodi.  Not sure if he's still there.  She really liked him and his team.

        • January 6, 2013 at 10:33 pm
        NYKaren
        Participant
        Hi Alan,
        I’m Stage lll unresectable and I qualify for almost everything that
        stage IV people do. Best of luck.
        Karen
        • January 6, 2013 at 10:33 pm
        NYKaren
        Participant
        Hi Alan,
        I’m Stage lll unresectable and I qualify for almost everything that
        stage IV people do. Best of luck.
        Karen
        • January 6, 2013 at 10:33 pm
        NYKaren
        Participant
        Hi Alan,
        I’m Stage lll unresectable and I qualify for almost everything that
        stage IV people do. Best of luck.
        Karen
        • January 6, 2013 at 10:09 pm
        Alan Muir
        Participant

        Hi Don,

        Long time, huh?  Glad to see you're doing well.

        Yeah, her doc suggested that she get a second opinion at Dana Farber cancer center in Boston.  When Stephanie was going there, she was uder the care of Dr. Stephen Hodi.  Not sure if he's still there.  She really liked him and his team.

        • January 6, 2013 at 10:09 pm
        Alan Muir
        Participant

        Hi Don,

        Long time, huh?  Glad to see you're doing well.

        Yeah, her doc suggested that she get a second opinion at Dana Farber cancer center in Boston.  When Stephanie was going there, she was uder the care of Dr. Stephen Hodi.  Not sure if he's still there.  She really liked him and his team.

      • January 6, 2013 at 9:15 pm
      DonW
      Participant

      Hi, Alan. I remember you very well from the old days. Nice to see you, but of course not under these circumstances. I think there is at least one of the newer treatments that is being tried for stage III. You might check with large cancer centers in your area (NY, Boston). With the dicey effectiveness of Inf, I think it's worth investigating options. Maybe someone on this forum who is more knowledgeable than myself can point you in the right direction. Anyway, good luck to your GF's daughter.

      • January 6, 2013 at 9:15 pm
      DonW
      Participant

      Hi, Alan. I remember you very well from the old days. Nice to see you, but of course not under these circumstances. I think there is at least one of the newer treatments that is being tried for stage III. You might check with large cancer centers in your area (NY, Boston). With the dicey effectiveness of Inf, I think it's worth investigating options. Maybe someone on this forum who is more knowledgeable than myself can point you in the right direction. Anyway, good luck to your GF's daughter.

      • January 7, 2013 at 7:44 am
      JerryfromFauq
      Participant

      Alan look close at the Interferon.  There are several studies underway to determine who it may actually help.  Where is the daughters primary?  That can help determine which type of melanoma is the most likely for her and which DNA mutation is llikely involved and should be tested for.  Praying for her.

      • January 7, 2013 at 7:44 am
      JerryfromFauq
      Participant

      Alan look close at the Interferon.  There are several studies underway to determine who it may actually help.  Where is the daughters primary?  That can help determine which type of melanoma is the most likely for her and which DNA mutation is llikely involved and should be tested for.  Praying for her.

        • January 7, 2013 at 10:04 pm
        Alan Muir
        Participant

        Her primary is in her leg.  Thanks for the advice.  I'll look into it.

        • January 7, 2013 at 10:04 pm
        Alan Muir
        Participant

        Her primary is in her leg.  Thanks for the advice.  I'll look into it.

        • January 8, 2013 at 7:50 pm
        NYKaren
        Participant
        Sorry, meant to say lllC unresectable.
        • January 8, 2013 at 7:50 pm
        NYKaren
        Participant
        Sorry, meant to say lllC unresectable.
        • January 8, 2013 at 7:50 pm
        NYKaren
        Participant
        Sorry, meant to say lllC unresectable.
        • January 7, 2013 at 10:04 pm
        Alan Muir
        Participant

        Her primary is in her leg.  Thanks for the advice.  I'll look into it.

      • January 7, 2013 at 7:44 am
      JerryfromFauq
      Participant

      Alan look close at the Interferon.  There are several studies underway to determine who it may actually help.  Where is the daughters primary?  That can help determine which type of melanoma is the most likely for her and which DNA mutation is llikely involved and should be tested for.  Praying for her.

      • January 8, 2013 at 10:34 pm
      Swanee
      Participant

      Hi Alan,

      Sorry you find yourself here, once again!  But like everything that happens in life….there seems to be a reason!

      You, no doubt,  will be a great source of wisdom and guidance as you help your girlfriend and daughter  negotiate there way through this melanoma maze!  Best wishes to all!

      Swanee

      • January 8, 2013 at 10:34 pm
      Swanee
      Participant

      Hi Alan,

      Sorry you find yourself here, once again!  But like everything that happens in life….there seems to be a reason!

      You, no doubt,  will be a great source of wisdom and guidance as you help your girlfriend and daughter  negotiate there way through this melanoma maze!  Best wishes to all!

      Swanee

      • January 8, 2013 at 10:34 pm
      Swanee
      Participant

      Hi Alan,

      Sorry you find yourself here, once again!  But like everything that happens in life….there seems to be a reason!

      You, no doubt,  will be a great source of wisdom and guidance as you help your girlfriend and daughter  negotiate there way through this melanoma maze!  Best wishes to all!

      Swanee

Viewing 11 reply threads
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