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I haven’t updated since July.

Forums General Melanoma Community I haven’t updated since July.

  • Post
    Calynda
    Participant

      I've been busy with the baby boy in my profile picture.  He turns 10 months old on Friday the 15th.  And I just passed my 1 year N.E.D. Mark on the 7th.  Here was my last update from July:

      "I originally posted back in February… That post can be found here http://www.melanoma.org/community/mpip-melanoma-patients-information-pag…

       
      The quick version of the first post was that I was pregnant and got a spot checked out (that had been changing for almost a year, but hadn't had it looked at because I got pregnant, then had a miscarriage and needed a D&C, then got pregnant again. By the time we verified that pregnancy was sticking around, I was a month from changing insurance…
       
      So at the point of the last post, I had a shave biopsy done and it came back as a deep malignant melanoma. They had scheduled the WLE & SLNB…
       
      I found that thread and posted an update thinking it would bump it to the top, but it didn't, so here's what I posted on that thread:
       
      "Re: New Here … Calynda – (7/13/2013 – 3:39am)
      I thought I'd dig up my old thread to post an update. The WLE and SLNB were successful. The margins were clear and they pulled two lymph nodes during the surgery. One of the two tested positive… At that point, we couldn't do anything more before the baby got here.
       
      I had my baby boy on May 15th. I was induced at 37 1/2 weeks due to blood pressure. He's pretty much perfect. I had my PET scan on June 7th. There were two spots that they wanted to look at more closely, but were things that they usually wouldn't look twice at. One spot was in my spine and that turned out to be nothing. The other spot is a 6mm mass on my deltoid tendon that they aren't sure what it is. They don't think it's the cancer, but they couldn't rule it out.
       
      I had an axillary lymph node dissection on July 5th (and still have the JP drain hanging on me). They pulled an additional 12 lymph nodes and all 12 came back negative. Yay!
       
      Next week my baby boy has his two month check up on Monday, I have my post op appointment and hopefully have the drain removed on Tuesday, I have an orthopedic consult for the spot in my arm on Wednesday and get to drive 1.5 hours for a consult at a melanoma center on Friday. It'll be a busy week, but hopefully by the end of it, we'll have a plan of attack.
       
      I'm feeling good. The scariest part of all this (besides the waiting) was going for the PET scan because I knew that would give us the best indication of how bad the waiting might have been.
       
      I don't know if we can post pictures here… If we can, I'll share my little boy, Elliott Cole."
       
      The specialist visits went well and we went over every option.  The melanoma oncologist I saw gathered some more information about my SLNB and based on that (and the fact that it had already been almost 5 months since any sign of the melanoma had been seen in my body), she took most aggressive forms of treatment off the table.  She recommended just monitoring for me and if anything came back, we'd revisit the advanced bio-chemo treatment (or whatever was most effective at the time).  
       
      So, so far, so good.  I still worry every day, but I don't let it take over and diminish the joy I feel watching my son explore his world.
    Viewing 8 reply threads
    • Replies
        POW
        Participant

          Congratulations on your absolutely adorable little boy! What a cutie! Congratulations also on remaining melanoma-free. May you continue that way forever! 

          I think your oncologist gave you good advice– monitoring is a perfectly acceptable approach for Stage III NED (no evidence of disease). At least for now, any treatment you could get for Stage III would have a low probability of success and some pretty nasty side-effects. You probably need all the energy you can muster to handle what you have on your plate already. So watch-and-wait, while somewhat anxiety-making, is quite valid.

          POW
          Participant

            Congratulations on your absolutely adorable little boy! What a cutie! Congratulations also on remaining melanoma-free. May you continue that way forever! 

            I think your oncologist gave you good advice– monitoring is a perfectly acceptable approach for Stage III NED (no evidence of disease). At least for now, any treatment you could get for Stage III would have a low probability of success and some pretty nasty side-effects. You probably need all the energy you can muster to handle what you have on your plate already. So watch-and-wait, while somewhat anxiety-making, is quite valid.

            POW
            Participant

              Congratulations on your absolutely adorable little boy! What a cutie! Congratulations also on remaining melanoma-free. May you continue that way forever! 

              I think your oncologist gave you good advice– monitoring is a perfectly acceptable approach for Stage III NED (no evidence of disease). At least for now, any treatment you could get for Stage III would have a low probability of success and some pretty nasty side-effects. You probably need all the energy you can muster to handle what you have on your plate already. So watch-and-wait, while somewhat anxiety-making, is quite valid.

              Tina D
              Participant

                wow, what a journey you have been on! So glad you checked in! Glad to see the good reports and your little guy is ADORABLE ๐Ÿ™‚

                Tina

                Tina D
                Participant

                  wow, what a journey you have been on! So glad you checked in! Glad to see the good reports and your little guy is ADORABLE ๐Ÿ™‚

                  Tina

                  Tina D
                  Participant

                    wow, what a journey you have been on! So glad you checked in! Glad to see the good reports and your little guy is ADORABLE ๐Ÿ™‚

                    Tina

                    Calynda
                    Participant

                      Thanks!  He is getting to be a handful and our sleep schedule is still hit and miss, but it's getting better.  

                      Calynda
                      Participant

                        Thanks!  He is getting to be a handful and our sleep schedule is still hit and miss, but it's getting better.  

                        Calynda
                        Participant

                          Thanks!  He is getting to be a handful and our sleep schedule is still hit and miss, but it's getting better.  

                      Viewing 8 reply threads
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