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I am working on plan B and need some help

Forums General Melanoma Community I am working on plan B and need some help

  • Post
    Kevin from Atlanta
    Participant

    Next week I get my scans after doing four treatments of Ipi.

    If someone is severly allergic to leukine, who they be able to do IL-2?

    Next week I get my scans after doing four treatments of Ipi.

    If someone is severly allergic to leukine, who they be able to do IL-2?

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  • Replies
      jag
      Participant

      Are you allergic to leukine itself, or the adjuvant (solution) that it is made up in?

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        Kevin from Atlanta
        Participant

        Joe,

        I will look to see if Leikine and Taxol have the same avujant since I had the same reaction to Taxol. Muscles knotting up immediatly and had a very hard time breating.

         

        Nancy,

         

        I am not too worried about the CT scan, what are they going to tell me? I have cancer?

        It is the brain MRI I am worried about. I have a nice head for being bald, I hate to get scars all over it due to surgery.

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        jag
        Participant

        Kevin, 

        I don't understand your question .  
        I hope this clears things up a bit.

        Taxol is a chemotherapy, that has shown some response in melanoma patients, but as of yet, it is experimental.

        Interleukin 2 (Trade name Proleukin), has been proven to show a durable respone(cure) in a small percentage of patients(8-15% depending on what you are reading).  The immune responses, side effects etc, have been extensively studied and are dealt with immediately should you choose to go for therapy.  There are certain centers approved specifically for interleukin 2 administration.  A well trained center where many treatments have been given, is your best bet. Ask questions, make an appt etc, this board is a good resource for that kind of information.  

        Leukine, is a completely different immunostimulant, I don't know if it is being given in combination with Taxol, if so the side effects are much lower than interleukin 2.  

        Very best to you in your treatments

        God Bless

        John

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        jag
        Participant

        Kevin, 

        I don't understand your question .  
        I hope this clears things up a bit.

        Taxol is a chemotherapy, that has shown some response in melanoma patients, but as of yet, it is experimental.

        Interleukin 2 (Trade name Proleukin), has been proven to show a durable respone(cure) in a small percentage of patients(8-15% depending on what you are reading).  The immune responses, side effects etc, have been extensively studied and are dealt with immediately should you choose to go for therapy.  There are certain centers approved specifically for interleukin 2 administration.  A well trained center where many treatments have been given, is your best bet. Ask questions, make an appt etc, this board is a good resource for that kind of information.  

        Leukine, is a completely different immunostimulant, I don't know if it is being given in combination with Taxol, if so the side effects are much lower than interleukin 2.  

        Very best to you in your treatments

        God Bless

        John

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        Kevin from Atlanta
        Participant

        Joe,

        I will look to see if Leikine and Taxol have the same avujant since I had the same reaction to Taxol. Muscles knotting up immediatly and had a very hard time breating.

         

        Nancy,

         

        I am not too worried about the CT scan, what are they going to tell me? I have cancer?

        It is the brain MRI I am worried about. I have a nice head for being bald, I hate to get scars all over it due to surgery.

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      jag
      Participant

      Are you allergic to leukine itself, or the adjuvant (solution) that it is made up in?

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      TAC
      Participant

      Kevin, if you are contemplating taking IL2, I would recommend a consultation with Dr. David Lawson at Emory (Winship). He has vast experience with it plus should you decide to go ahead with it, his team is so experienced that you can remain in a regular room rather than ICU. I have several friends who have been there. All of them had a great initial response but it was not a durable one. As you may know, one of the side effects of IL2 is, in some people, a sever rash. Some interpret the rash as a sign of a response. Best of luck with uour choices.  Al Cato, Roswell

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        Nancy
        Participant

        Hi Kevin,  Buddy had to miss treatment #3 of IPI, as he fell, had to start steroids, and was unstable.  They will start to taper off on his steroids Tuesday so he can still get treatment #4 on Sept. 21…I don't really know if his tumors are growing or not.  Seems to me some of them are smaller, while others have remained about the same.

        I tend to think his brain mets are back, since his balance was off..and he fell.  With the steroids he does much better.

        Please let me know how the scans turn out – [email protected]

        Thanks Kevin, hang in there – keep fighting

         

         

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        Nancy
        Participant

        Hi Kevin,  Buddy had to miss treatment #3 of IPI, as he fell, had to start steroids, and was unstable.  They will start to taper off on his steroids Tuesday so he can still get treatment #4 on Sept. 21…I don't really know if his tumors are growing or not.  Seems to me some of them are smaller, while others have remained about the same.

        I tend to think his brain mets are back, since his balance was off..and he fell.  With the steroids he does much better.

        Please let me know how the scans turn out – [email protected]

        Thanks Kevin, hang in there – keep fighting

         

         

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      TAC
      Participant

      Kevin, if you are contemplating taking IL2, I would recommend a consultation with Dr. David Lawson at Emory (Winship). He has vast experience with it plus should you decide to go ahead with it, his team is so experienced that you can remain in a regular room rather than ICU. I have several friends who have been there. All of them had a great initial response but it was not a durable one. As you may know, one of the side effects of IL2 is, in some people, a sever rash. Some interpret the rash as a sign of a response. Best of luck with uour choices.  Al Cato, Roswell

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