Anyone have any tips or tricks on how to manage the common side effects from immunotherapy? I’m starting treatment on Monday and am not sure what to expect in terms of how I’ll feel after the infusion. I know everyone responds differently and has a different experience. All responses are welcome.
- May 28, 2021 at 6:43 pm
- May 28, 2021 at 6:56 pm
Which immunotherapy will you be on? For me, Opdivo alone was fine, no issues for the most part. We did get to one point where they thought I was on the verge of colitis so we skipped a month. When I stopped responding to Opdivo alone and started Opdivo+Yervoy things were different. I didn’t feel awful but not great either. I had a lot more fatigue and tummy aches, and due to no response, they stopped me after two rounds. I feel it may have still worked but we moved to targeted therapy after that which opened up a whole new can of worms for me. The best thing to remember is everyone reacts differently, so just keep in contact with your care team if you feel anything off.
Best of luck to you!! Please keep us posted…we are all in this together!!
I forgot to mention rash…I had a lot of it. My oncologist gave me hydrocortisone cream to help with the itching. I also got sensitive skin laundry detergent, soap, etc., and Cerave skin cream to help with the skin issues. I also have vitiligo but it doesn’t hurt or feel bothersome, just looks funny but it is a good indication you are responding! Otherwise, rest when you need to, and don’t feel bad about it if you’re tired and need to take a break sometimes. Diarrhea, or in my case constipation, can happen so be sure to let your care team know and they can suggest what you need for that. Bland foods like rice, bread, and soup helped with my tummy aches…I was rarely nauseous on immunotherapy but I was given anti-nausea medication when I started targeted therapy and it helped. Just keep in close contact with your care team as you go and don’t feel like you are bothering them! They are there to help!
- May 29, 2021 at 11:09 am
If you haven’t checked out their website: https://www.opdivo.com/about-opdivo/side-effects and sign up for the Opdivo with You support program. I hope some of this helps. Best of luck!!
- May 29, 2021 at 2:31 pm
One more new video that is pretty interesting by Dr. Jason Luke uses virtual booth reality in the presentation of side effect information. http://www.patientlearninglab-virtualbooth.com/?fbclid=IwAR2RAoqfNb26tddL8gU6RHPIJOhxlCNph_6ZzXdM05QMO22n_rFacKv13KI
- May 29, 2021 at 3:03 pm
JudiAUParticipantThe drugs make me tired. Steroids make me fat and annoyed. I spiked a very high fever after two rounds of combo was hospitalized for a week and then had a brain met surgically removed, started steroids, within a week cut them in half, radiation, restarted immunotherapy. Diarrhea is common but for a lot of people it is mild, treatable with Imodium. Plenty of people go in to develop colitis.
- May 30, 2021 at 1:48 am
- You must be logged in to reply to this topic.