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Hospital – Day 8

Forums General Melanoma Community Hospital – Day 8

  • Post
    nickmac56
    Participant

      My wife is recovering from her brain shunt surgery. With a bit of luck maybe she can go home tomorrow or Tuesday. Still have some work to do to get her off a catheter (so she needs to be able to walk a bit with support) and IV medication. Half her head is shaved (even though it was pretty short already from previous surgery and radiation) but she doesn't care too much given she is going to lose it in the next couple days from the prior chemo or when the WBR starts.

      My wife is recovering from her brain shunt surgery. With a bit of luck maybe she can go home tomorrow or Tuesday. Still have some work to do to get her off a catheter (so she needs to be able to walk a bit with support) and IV medication. Half her head is shaved (even though it was pretty short already from previous surgery and radiation) but she doesn't care too much given she is going to lose it in the next couple days from the prior chemo or when the WBR starts. There is some tension between the neurosurgeon and the radiation oncologist about when to start the WBR – it is scheduled for this Tuesday but the neurosurgeon wants to wait a bit longer to let the surgical site heal. She has douple vision which we hope resolves now that her brain is buoyant instead of being pushed down on her optic nerve. She is understandably sad that she cannot have chemo anymore (can't do chemo and WBR at same time and the chemo isn't going to work on her spinal fluid cancer) and hopeful the WBR buys her some time without impinging too much more on her cognitive capabilities. 

      I wish there was something else we could do, but we are really at an end to treatment and now it's about palliation. That means it's all about pain control. And balancing pain control with nausea. It's been a challenge here in the hospital – with IV delivery – be interesting to find out how I can manage with oral meds.

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    • Replies
        James from Sydney
        Participant

          Nick,  i hope everything stabilises very soon so you can have some time at home surrounded by love and peace. You sound like a wonderful couple, life is not fair i just hate this disease. I note Jerry's post about the Viro Therapy from Latvia have a read. 

          Take care of yourself as wel, l i am thinking of your family.

          James

          James from Sydney
          Participant

            Nick,  i hope everything stabilises very soon so you can have some time at home surrounded by love and peace. You sound like a wonderful couple, life is not fair i just hate this disease. I note Jerry's post about the Viro Therapy from Latvia have a read. 

            Take care of yourself as wel, l i am thinking of your family.

            James

            James from Sydney
            Participant

              Nick,  i hope everything stabilises very soon so you can have some time at home surrounded by love and peace. You sound like a wonderful couple, life is not fair i just hate this disease. I note Jerry's post about the Viro Therapy from Latvia have a read. 

              Take care of yourself as wel, l i am thinking of your family.

              James

              Jan in OC
              Participant

                Nick, I'm not sure what to say.  I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options.  This is so hard and I admire how you both have managed to deal with this.  My prayers are with you.

                Take care.

                Jan, wife to Dirk

                Jan in OC
                Participant

                  Nick, I'm not sure what to say.  I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options.  This is so hard and I admire how you both have managed to deal with this.  My prayers are with you.

                  Take care.

                  Jan, wife to Dirk

                  Jan in OC
                  Participant

                    Nick, I'm not sure what to say.  I read about your journey throughout this and try to pull strength from it, but at the same time my heart breaks for your family and I am afraid we are not far behind in running out of options.  This is so hard and I admire how you both have managed to deal with this.  My prayers are with you.

                    Take care.

                    Jan, wife to Dirk

                    Hereiam
                    Participant

                      Hi ,

                      I am very sorry about your current situation, and I truly hope that your wife will do better soon. I agree to others, that Jerry`s post about Virotherapy seemed promising. Maybe the decrease of the side-effects is the most important goal for your wife right now.

                      Take care,

                      Hereiam

                      Hereiam
                      Participant

                        Hi ,

                        I am very sorry about your current situation, and I truly hope that your wife will do better soon. I agree to others, that Jerry`s post about Virotherapy seemed promising. Maybe the decrease of the side-effects is the most important goal for your wife right now.

                        Take care,

                        Hereiam

                        Hereiam
                        Participant

                          Hi ,

                          I am very sorry about your current situation, and I truly hope that your wife will do better soon. I agree to others, that Jerry`s post about Virotherapy seemed promising. Maybe the decrease of the side-effects is the most important goal for your wife right now.

                          Take care,

                          Hereiam

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