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Holy Cannoli Skin Rash is a Real Thing on Ipi/Nivo
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Holy Cannoli Skin Rash is a Real Thing on Ipi/Nivo

› Forums › General Melanoma Community › Holy Cannoli Skin Rash is a Real Thing on Ipi/Nivo

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    • August 26, 2020 at 6:17 pm
    sing123
    Participant
      Hi dear friends, heading into the clinic for my first infusion, I thought of how lucky I’d be to coast that first month without side effects, as I’d read is pretty often the case. Boy was I wrong about me! Side effects hit second day. Luckily so far they resolve pretty quickly. Now I have a skin rash. Has anyone has this side effect on treatment and how did you manage with any natural options? I am on Triamcinolone (SP?) and Benadryl. I also continue to take my Dexamethasone for swelling from zapped brain mets, but only at 2 mg. Am hoping that I won’t have to go on a stronger one. And also, have you heard that skin rash may be a sign of treatment effectiveness? I sure hope so!

      Very best to you all!

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        • August 26, 2020 at 10:01 pm
        MelMel
        Participant
          I had most of my side effects 3-4 weeks post infusion. I had full torso measlelike rash about 5 weeks in. It was a bit itchy but resolved itself on it’s own. I had temperature at same time of the day for three days. Two weeks later I was admitted to the hospital due to a liver injury. From there I cannot attribute the side effects to the immunotherapy but to the large doses of steroids starting with 150 mg. Six months later, I developed vitiligo which has spread throughout my torso, arms and legs.
          Hopefully your rash resolves.
          Melanie
            • August 26, 2020 at 10:57 pm
            sing123
            Participant
              Oh goodness, Mel sorry to hear that you went through so much. And do you recall for how long you had the skin rash?
              • August 29, 2020 at 7:13 am
              MelMel
              Participant
                I had it for about 3 weeks. It started on top of my abdomen under my breasts and very quickly it spread throughout my entire torso. It was slightly itchy for a few days but not after and it never blistered. Eventually, it faded and disappeared all on it’s own.
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