High dose IL2..vitiligo…why now?
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High dose IL2..vitiligo…why now?

› Forums › General Melanoma Community › High dose IL2..vitiligo…why now?

  • Post
    • October 22, 2011 at 1:30 am
    Karin L
    Participant

    I finished my last bag/4th week of IL2 on June 14.  Within a few weeks I noticed some vitiligo on my hands, forearms, and a spot on my face. That was it until yesterday when I noticed a large area on my inner thigh (size of a lemon) that just showed up.  It's been 4mos.+ since treatment.  Anyone else have this happen this long after treatment?  Just seems…strange. 

    Thank you for any and all replies.

     

    Karin

    I finished my last bag/4th week of IL2 on June 14.  Within a few weeks I noticed some vitiligo on my hands, forearms, and a spot on my face. That was it until yesterday when I noticed a large area on my inner thigh (size of a lemon) that just showed up.  It's been 4mos.+ since treatment.  Anyone else have this happen this long after treatment?  Just seems…strange. 

    Thank you for any and all replies.

     

    Karin

Viewing 14 reply threads
  • Replies
      • October 22, 2011 at 2:28 am
      jag
      Participant

      Vitiligo is usually a good thing.

      http://www.ncbi.nlm.nih.gov/pubmed/21911918

      • October 22, 2011 at 2:28 am
      jag
      Participant

      Vitiligo is usually a good thing.

      http://www.ncbi.nlm.nih.gov/pubmed/21911918

      • October 22, 2011 at 2:28 am
      jag
      Participant

      Vitiligo is usually a good thing.

      http://www.ncbi.nlm.nih.gov/pubmed/21911918

      • October 22, 2011 at 2:38 am
      debbieVA
      Participant

      Karin…

      Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

      Wishing you the best and continued response to Il-2.  

       

      Debbie Stage 4 NED

      • October 22, 2011 at 2:38 am
      debbieVA
      Participant

      Karin…

      Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

      Wishing you the best and continued response to Il-2.  

       

      Debbie Stage 4 NED

      • October 22, 2011 at 2:38 am
      debbieVA
      Participant

      Karin…

      Vitilligo is a positive sign that IL-2 is doing it's job and you are responding.  I did IL-2 over 11 months, 57 infusions, and a complete responder….NED with vitilligo.  Not very noticible, good being alive.  

      Wishing you the best and continued response to Il-2.  

       

      Debbie Stage 4 NED

      • October 22, 2011 at 3:45 am
      Karin L
      Participant

      Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

       

      Karin

      • October 22, 2011 at 3:45 am
      Karin L
      Participant

      Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

       

      Karin

      • October 22, 2011 at 3:45 am
      Karin L
      Participant

      Well, oh my gosh.  Thank you for your replies.  I had no idea anything would show up this late after the treatment.

       

      Karin

      • October 22, 2011 at 1:12 pm
      MariaH
      Participant

      Karin,

      Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

      Best wishes,

      Maria

      • October 22, 2011 at 1:12 pm
      MariaH
      Participant

      Karin,

      Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

      Best wishes,

      Maria

      • October 22, 2011 at 1:12 pm
      MariaH
      Participant

      Karin,

      Seems to me this is a good thing!!  Hope  your immune system is still doing it's job!

      Best wishes,

      Maria

      • October 23, 2011 at 4:50 am
      LynnLuc
      Participant

      I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

      • October 23, 2011 at 4:50 am
      LynnLuc
      Participant

      I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

      • October 23, 2011 at 4:50 am
      LynnLuc
      Participant

      I'm a red head with freckles on about every part. I noticed only last week for the  small patches of vitilligo on my forearms- I am on anti PD 1 , which I did 12 times during the main part of the trial and 2 times as a booster every 3 months, so I guess it takes time to happen with some people…I remember as a kid hoping my freckles would melt into one massive suntan. Then I thought it would be nice to get rid of the freckles so I rubbed lemons all over me…nothing ever happened! Now I get patches of white  displacing my freckles! -Lynn

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