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Hi, on my way back to the NIH…

Forums General Melanoma Community Hi, on my way back to the NIH…

  • Post
    himynameiskevin
    Participant

    The snowstorms actually have my flights canceled and I'm stuck in the Dallas Airport overnight. It's cold, uncomfortable, a little lonely… but a perfect time to check up and say hello to all of you.

    The snowstorms actually have my flights canceled and I'm stuck in the Dallas Airport overnight. It's cold, uncomfortable, a little lonely… but a perfect time to check up and say hello to all of you.

    It's been a couple weeks, did my best to enjoy the holidays, focus on the positive and live a life not revolving around this situation. And I've been doing well. I think I recovered great from the "ACT". The papers they gave me said I might be pretty fatigued for a month or so, but after three days home, and finally keeping food down and eating a lot of it… I've felt pretty good. Actually the best I've felt since August probably.  I'm back at work and am doing all the normal things I did before all of this. My weight is back to normal and now if my hair would just grow back, I'd be golden. :)

    Anyway, they've got me coming back to the NIH once a month for six months for scans to see what's going on inside of me. Hopefully I can get a couple hours of sleep here on the floor before my plane leaves tomorrow at 7am, and if that flight's not canceled I should make it to DC just in time to catch the shuttle which will get me the the NIH just in time to check in and make my way over to the MRI and CTscan area just in time to fill up on the fruity contrast drinks. mmmmm. It's going to be close. Then Thursday morning I have to do aphresis before the doctors meet with me. Then we talk, and that will be the first of hopefully a few big positive definitive moments. I'm not necessarily overly worried or exited about with they will say, but I am concerned and interested if that makes sense. I know I'm in good hands there and know they're doing what they can to help. Which does a lot to ease the mind. So we'll see how this goes. I'll let you all know. 

    Here's to a cold night in a strange airport. Where's the light switch?

    Goodnight all. :)

    -Kevin
     

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  • Replies
      dian in spokane
      Participant

      Kevin!

      Thanks for checking in. I'm so sorry you are stuck in the airport, and I hope you get a little sleep and get on your way to NIH. Everyone here will be keeping you in their thoughts and prayers.

      I hope you are a complete responder to this treatment.

      Good luck!

      dian

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      dian in spokane
      Participant

      Kevin!

      Thanks for checking in. I'm so sorry you are stuck in the airport, and I hope you get a little sleep and get on your way to NIH. Everyone here will be keeping you in their thoughts and prayers.

      I hope you are a complete responder to this treatment.

      Good luck!

      dian

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      Linda J
      Participant
      Good luck – I hope you get great news!!
      Linda J

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      Linda J
      Participant
      Good luck – I hope you get great news!!
      Linda J

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        Laurie from maine
        Participant

        Hi Kevin,

        So glad you checked in.  I have been stranded at airports before defintely an eerie feeling, hopefully you were able to rest some of make an "airport friend" to talk to during your long wait.  Good luck with scans – strong prayers and fingers crossed!

        take care

        laurie from maine

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        Laurie from maine
        Participant

        Hi Kevin,

        So glad you checked in.  I have been stranded at airports before defintely an eerie feeling, hopefully you were able to rest some of make an "airport friend" to talk to during your long wait.  Good luck with scans – strong prayers and fingers crossed!

        take care

        laurie from maine

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      lhaley
      Participant

      Kevin,

      Hope you got out of Dallas! Of course once you land in DC I hope you can get to NIH!  You'll have to ask Debbie from VA about the good things that can happen while stuck in an airport!  Her story might be in her profile.

      I'm sending prayers for great scans and a happy flight home!!

      Linda

      Stage IV in wait mode, scans in 4 weeks

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      lhaley
      Participant

      Kevin,

      Hope you got out of Dallas! Of course once you land in DC I hope you can get to NIH!  You'll have to ask Debbie from VA about the good things that can happen while stuck in an airport!  Her story might be in her profile.

      I'm sending prayers for great scans and a happy flight home!!

      Linda

      Stage IV in wait mode, scans in 4 weeks

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      jag
      Participant

      Kevin.

      Hang in there chief. 

      Thinking of you.

      John.

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      jag
      Participant

      Kevin.

      Hang in there chief. 

      Thinking of you.

      John.

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      Fen
      Participant

      I hope you made it in time, Kevin.  Thanks for posting. Keeping ever appendage I have crossed for you!

      Fen

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      Fen
      Participant

      I hope you made it in time, Kevin.  Thanks for posting. Keeping ever appendage I have crossed for you!

      Fen

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      King
      Participant

      Kevin,

      You are an amazing guy!  Spending the night in the Dallas airport had to be awful yet you managed to make the best of it.  I know you'll keep us posted.  You are a huge inspiration.

       

      Stay Strong

      King

      Stage IV  7/05  Liver mets

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      King
      Participant

      Kevin,

      You are an amazing guy!  Spending the night in the Dallas airport had to be awful yet you managed to make the best of it.  I know you'll keep us posted.  You are a huge inspiration.

       

      Stay Strong

      King

      Stage IV  7/05  Liver mets

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      BethA in VA
      Participant

      Oh don't you just hate the airport crap??  It isn't usually the most comfortable place to be.  Glad to hear life is returning somewhat to normal.  Hair or no hair…it's just fluff!!  Get great results on your testing…I will keep you in my prayers.  Beth 3/B

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      BethA in VA
      Participant

      Oh don't you just hate the airport crap??  It isn't usually the most comfortable place to be.  Glad to hear life is returning somewhat to normal.  Hair or no hair…it's just fluff!!  Get great results on your testing…I will keep you in my prayers.  Beth 3/B

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